ALS (also known as Lou Gehrig's Disease) is a progressive neuromuscular disease in which nerve cells die and leave voluntary muscles paralyzed.

Every day two or three Canadians die of the disease.

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ALS News

This summer, with a bucket, ice and water, you have transformed ALS - a disease that before the ALS Ice Bucket Challenge was largely unknown.  Because of you, your recent gift through the ALS Ice Bucket Challenge is enabling the ALS Societies across Canada to inject $26 million into the ALS community over the next three years. 

Below is the formal announcement given today in Ottawa and distributed to the press. It outlines where your dollars will be used, as well as a special partnership, that we believe will contribute to changing the future of ALS. 

On Wednesday November 19, 2014 ALS Societies across Canada will be making an unprecedented announcement about the funds generously donated by Canadians through the ALS Ice Bucket Challenge. We will be making the official announcement at a press conference in Ottawa at 10:30a.m. At this press conference we will be sharing the phenomenal impact Canadians across the country have made for the ALS community. Because of their generosity through the ALS Ice Bucket Challenge, amazing things are happening and we can’t wait to share the details with you.  

The ALS Canada Board of Directors is pleased to announce the appointment of Tammy Moore as Chief Executive Officer to ALS Canada, effective November 10, 2014.
Earlier this year, ALS Canada underwent a leadership transition, requiring the ALS Canada Board of Directors to embark on a competitive and comprehensive recruitment process to fill the role of CEO. Upon completing a thorough and rigorous process, Ms. Moore was chosen to execute ALS Canada’s strategic vision.

Representatives of the ALS Societies across Canada met in Toronto this past weekend to give thoughtful consideration regarding the allocation of the funds raised through the Ice Bucket Challenges. As beneficiaries of these donations, we accept this task as a huge responsibility and are mindful of what this means towards fostering research and supporting families living with ALS. All ALS Society Boards will now be asked to ratify the decisions made in Toronto and an announcement of the final outcome will be made in November 2014.

ALS society lobbying for extended caregiver benefit in budget 2015


The Amyotrophic Lateral Sclerosis Society of Canada is using momentum from this
summer to carry the group through the fall parliamentary session and toward the 2015
federal budget.

The summer of 2014 will be known as the summer of the ALS Ice Bucket Challenge, when the world came to know ALS as a disease. This awareness led to support for ALS organizations that both help people living with ALS today, as well as facilitate research that will change the future of ALS.

Moving forward, we will keep you informed on how your funds given through the ALS Ice Bucket Challenge will help families across Canada, and the impact the dollars will have in funding ALS research to find a treatment.