Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016 WALK for ALS.
ALS Canada is a national organization responsible for ALS Canada Research Program – funding peer-reviewed research grants and fostering collaboration amongst Canadian researchers, helping to nurture new ideas and build capacity. ALS Canada has a role in Ontario, similar to that of the Provincial Societies, providing services and support for people living within our provinces – we help fill the gaps between the healthcare system and needs of people living with ALS.
These words from Ice Bucket Challenge co-founder Pat Quinn speak to the importance of raising money for ALS research. As we approach the second anniversary of the Ice Bucket Challenge, we are already seeing its impact: last week, researchers who were funded through Ice Bucket Challenge donations announced that the gene NEK1 has been found to play a role in the development of ALS.
July 28, 2016 – Earlier this week researchers announced that the gene NEK1 has been found to play a significant role in the development of amyotrophic lateral sclerosis (ALS). This landmark discovery is the result of an 11-country research collaboration that was funded through the Ice Bucket Challenge. The research team included 3 Canadians, one of whom was directly funded by the ALS Society of Canada for their work during this discovery.
You’re invited to the 28th Magna Hoedown! As York Region’s largest annual fundraiser, the Hoedown has raised over $9 million for local charities, non-profits, and community groups.
ALS Canada is pleased to be one of 15 charities selected as a recipient of this year’s Hoedown proceeds! Join us on September 16 or 17, or buy raffle tickets for a chance to win $75,000!
MARKHAM, ON, April 19, 2016 /CNW/ - Six months ago, Liberal MP Mauril Bélanger was running in the federal election, continuing his dedication of over 20 years to serving his constituents in the riding of Ottawa-Vanier. His life changed November 2015, when he was diagnosed with the terminal disease amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's. Although ALS has taken away his ability to speak, it has not taken away his voice or commitment to help others.