ALS (also known as Lou Gehrig's Disease) is a progressive neuromuscular disease in which nerve cells die and leave voluntary muscles paralyzed.

Every day two or three Canadians die of the disease.

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ALS News

We received good news today from the Government of Canada Budget 2015 announcement.  The Compassionate Care Benefit has been officially extended from six to 26 weeks. This is a really important step forward to support caregivers who are caring for a loved one at home. We thank the federal government for their commitment to the extension of the CCB.


Today, the Minister of Finance, Joe Oliver will deliver the 2015 budget. Within his announcement the Compassionate Care Benefit will be addressed. 

Did you know Canada has an estimated 13.3 million volunteers? Along side other charities, ALS Canada will celebrate National Volunteer Week from April 13-19, 2015.

Join ALS Canada on Facebook and Twitter during National Volunteer week and give a shout out to our volunteers, or someone special you know who volunteers.

Every year, ALS Canada hosts a forum, bringing the ALS research community together to exchange ideas, network and form collaborations to find a treatment for ALS. This year, we will be meeting at the Hilton Toronto Airport Hotel in early May. We are excited for this year's Research Forum and welcome the research community to Toronto. 

A special thank you to Cytokinetics for being this year's Opening Session and Chair's Reception Sponsor.


Melanie was a spirited person, a strong and passionate advocate for the ALS community and was always there to lend her voice and her independent thinking to raise awareness for ALS. Melanie truly used her life to try better the lives of others. She was a significant and cherished part our team at ALS Canada and she will be deeply missed. 

Thank you to Macleans Magazine for publishing this tribute to Melanie. 

The ALS Canada Board is seeking nominations for Directors to serve on the Board of Directors.

ALS Canada is a registered charity, dedicated to supporting Canadians living with ALS (amyotrophic lateral sclerosis) and investing in research to make ALS a treatable, not terminal disease.