ALS News

GivingTuesday is a global day of giving. It is a time to celebrate and give back to our fellow neighbours, friends and charitable organizations in need. GivingTuesday is a movement for everyone who wants to give something back.
 
You can do your part by making a donation, volunteering time, and even raising awareness with #givingtuesday. 

There are many different ways you can support the ALS community. Visit here and learn how you can get involved and give back.

The ALS Canada Research program was established to fund the top ALS research in Canada to meet ALS Canada’s strategic vision to find a treatment for ALS. Thanks to your support, we are pleased to announce the recipients of the 2014 ALS Canada-Brain Canada Discovery Grants.

This announcement marks the first grants named in the partnership with Brain Canada. As part of the ALS community, we are tremendously excited about that this partnership is able to fund world class projects that will ultimately move the field of ALS research forward.

This summer, with a bucket, ice and water, you have transformed ALS - a disease that before the ALS Ice Bucket Challenge was largely unknown.  Because of you, your recent gift through the ALS Ice Bucket Challenge is enabling the ALS Societies across Canada to inject $26 million into the ALS community over the next three years. 

Below is the formal announcement given today in Ottawa and distributed to the press. It outlines where your dollars will be used, as well as a special partnership, that we believe will contribute to changing the future of ALS. 

On Wednesday November 19, 2014 ALS Societies across Canada will be making an unprecedented announcement about the funds generously donated by Canadians through the ALS Ice Bucket Challenge. We will be making the official announcement at a press conference in Ottawa at 10:30a.m. At this press conference we will be sharing the phenomenal impact Canadians across the country have made for the ALS community. Because of their generosity through the ALS Ice Bucket Challenge, amazing things are happening and we can’t wait to share the details with you.  

The ALS Canada Board of Directors is pleased to announce the appointment of Tammy Moore as Chief Executive Officer to ALS Canada, effective November 10, 2014.
 
Earlier this year, ALS Canada underwent a leadership transition, requiring the ALS Canada Board of Directors to embark on a competitive and comprehensive recruitment process to fill the role of CEO. Upon completing a thorough and rigorous process, Ms. Moore was chosen to execute ALS Canada’s strategic vision.
 

Representatives of the ALS Societies across Canada met in Toronto this past weekend to give thoughtful consideration regarding the allocation of the funds raised through the Ice Bucket Challenges. As beneficiaries of these donations, we accept this task as a huge responsibility and are mindful of what this means towards fostering research and supporting families living with ALS. All ALS Society Boards will now be asked to ratify the decisions made in Toronto and an announcement of the final outcome will be made in November 2014.

ALS society lobbying for extended caregiver benefit in budget 2015

NEWS | YAEL BERGER
PUBLISHED: THURSDAY, 10/16/2014 5:33 PM EDT

The Amyotrophic Lateral Sclerosis Society of Canada is using momentum from this
summer to carry the group through the fall parliamentary session and toward the 2015
federal budget.

The summer of 2014 will be known as the summer of the ALS Ice Bucket Challenge, when the world came to know ALS as a disease. This awareness led to support for ALS organizations that both help people living with ALS today, as well as facilitate research that will change the future of ALS.

Moving forward, we will keep you informed on how your funds given through the ALS Ice Bucket Challenge will help families across Canada, and the impact the dollars will have in funding ALS research to find a treatment. 

Hello.

We have been getting questions whether your dollars from the Ice Bucket Challenge will also help families outside of Ontario. The answer is absolutely, yes. 

We wanted to re-post the details of ALS Canada’s 2013 financials numbers to ensure the information you receive reflects the fiscal responsibility and true facts around ALS Canada's financial performance. 

Firstly, ALS Canada and the Provincial Societies do not have any relationship to US organizations. All revenue and expenses reported from the US are not applicable to any of our Canadian ALS Provincials Societies or ALS Canada.

Dear Canadians,

The outpouring of support you have shown for the ALS community, ALS Canada and the ALS Provincial Societies has truly been transformative. Thanks to you, Amyotrophic Lateral Sclerosis (ALS), is no longer an unknown disease.

It is with a profound sense of gratitude we share that your donations have surpassed $10 million. 

Thank you Canada!

Canadians generous support to the Ice Bucket Challenge for ALS has almost reached $10 million in donations. In the scope of our organizations and the need to fund research it is not overwhelming.  ALS Canada’s annual budget is $7M and collectively with the Provincial Societies across the country, the annual budgets are $14M.

Over the past month, we have received many questions regarding ALS Research and the ALS Canada Research Program. To keep you informed, we pulled together the top questions that are coming through to ensure you are informed on ALS Canada and our funding program. If you have any further questions that you don’t see below, please do not hesitate to reach out to me at dt@als.ca Thank you Canada, for your continued support!

Dear Canadians,

We have received great questions asking where your funds will be directed from the Ice Bucket Challenge for ALS. Thank you for your questions and giving us an opportunity to share our charitable purpose that is defined within a comprehensive strategic plan and to present our historical financial performance.

The staff @alscanada accepted the #icebucketchallenge from our Interim CEO, Tammy Moore. We now challenge YOU to help raise awareness for ALS and support families living with this disease. Donate at www.als.ca/donate or set up your own personal Ice Bucket Challenge page at als.ca/icebucketchallenge

Check on.fb.me/1nN15WG to watch our video.

 

 

 

Dousing your friends and family with ice cold water is creating a media storm around North America, raising awareness for ALS. The‪#‎icebucketchallenge‬, inspired by Boston College baseball player Pete Frates, who is living with ALS, has placed the challenge to anyone who wants to get involved.

Have you had your own #icebucketchallenge? Stay tuned for @alscanada staff who is taking on the challenge Monday August 11! Donate at http://bit.ly/1pGEGw4

 

ALS Canada Bridge Grants are a critical part of ALS Canada’s Research Program. Designed to keep top scientists focused on ALS and to maintain support for top ranked ALS projects in Canada, Bridge Grants are a partnership with the Canadian Institutes of Health Research (CIHR) where ALS Canada provides $100,000 for one year to top ranked ALS research. 

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