ALS News

It is with great pleasure that ALS Canada announces the two recipients of 2015 postdoctoral fellowships awarded by the ALS Canada Research Program. As a result of the continued pursuance of a better understanding of the disease and new treatments to achieve our vision, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Early postdoctoral years are when critical decisions are made in determining the direction of an individual's research and academic career.

Two year study shows Canadians will take action to fight the terminal disease ALS

MARKHAM, ON, June 2, 2015 /CNW/ - In 2014, over 260,000 Canadians dumped a bucket of ice over their heads and made a donation through the ALS Ice Bucket Challenge. They demonstrated a commitment to fight the terminal disease ALS, commonly referred to as Lou Gehrig's Disease. The Challenge not only spurred Canadians to rally for the cause, but transformed awareness for the disease that previously was relatively unknown to Canadians.

June is ALS Awareness Month                                                                                                             Here's how you can get involved to help the ALS Community.

Join a WALK for ALS                                                                                                                               #walkforals

The team at ALS Canada welcomes Jill Bridgman as Vice President Fund Development. 

Jill brings over 15 years of experience in fundraising; specializing in business development, revenue generation, marketing, stakeholder engagement and relationship management.

We received good news today from the Government of Canada Budget 2015 announcement.  The Compassionate Care Benefit has been officially extended from six to 26 weeks. This is a really important step forward to support caregivers who are caring for a loved one at home. We thank the federal government for their commitment to the extension of the CCB.


Today, the Minister of Finance, Joe Oliver will deliver the 2015 budget. Within his announcement the Compassionate Care Benefit will be addressed. 

Did you know Canada has an estimated 13.3 million volunteers? Along side other charities, ALS Canada will celebrate National Volunteer Week from April 13-19, 2015.

Join ALS Canada on Facebook and Twitter during National Volunteer week and give a shout out to our volunteers, or someone special you know who volunteers.

Every year, ALS Canada hosts a forum, bringing the ALS research community together to exchange ideas, network and form collaborations to find a treatment for ALS. This year, we will be meeting at the Hilton Toronto Airport Hotel in early May. We are excited for this year's Research Forum and welcome the research community to Toronto. 

A special thank you to Cytokinetics for being this year's Opening Session and Chair's Reception Sponsor.


Melanie was a spirited person, a strong and passionate advocate for the ALS community and was always there to lend her voice and her independent thinking to raise awareness for ALS. Melanie truly used her life to try better the lives of others. She was a significant and cherished part our team at ALS Canada and she will be deeply missed. 

Thank you to Macleans Magazine for publishing this tribute to Melanie. 

The ALS Canada Board is seeking nominations for Directors to serve on the Board of Directors.

ALS Canada is a registered charity, dedicated to supporting Canadians living with ALS (amyotrophic lateral sclerosis) and investing in research to make ALS a treatable, not terminal disease. 

A large consortium of researchers from six countries have definitively identified a new ALS gene called TANK-binding kinase 1 (TBK1) by performing a rigorous study that involved sequencing of more than 2800 people with ALS compared with more than 6000 control samples. Canadian researcher Dr. Guy Rouleau, Director of the Montreal Neurological Institute and his colleague Dr. Patrick A. Dion, along with current Tim E. Noël (ALS Canada) Postdoctoral Fellowship recipient Dr. Claire Leblond are authors on this landmark manuscript, recently published early online for the top journal Science.

The Arthur J. Hudson Translational Team Grant was first announced on May 3, 2014 at the ALS Canada Research Forum and the inaugural competition deadline was July 1, 2014. This new grant program is designed to fund teams of Canadian researchers to accelerate the movement of ideas out of the laboratory and into the clinic with the hope of assisting development of new therapeutics for ALS. It is the cornerstone of our ALS Canada Research Program designed to emphasize bench-to-bedside translation.

ALS Society of Canada
Vice President Fund Development 

ALS Canada is looking for an energetic professional to join our team. We want to find a person who understands the critical contribution they will make to our vision to make a difference in the lives of people living with ALS today and to a future, where ALS will be a treatable, not terminal disease. They love a challenge, developing a plan and orchestrating a multi-disciplinary team to achieve outstanding outcomes in fund development and donor relations. Could this be you?

GivingTuesday is a global day of giving. It is a time to celebrate and give back to our fellow neighbours, friends and charitable organizations in need. GivingTuesday is a movement for everyone who wants to give something back.
You can do your part by making a donation, volunteering time, and even raising awareness with #givingtuesday. 

There are many different ways you can support the ALS community. Visit here and learn how you can get involved and give back.

The ALS Canada Research program was established to fund the top ALS research in Canada to meet ALS Canada’s strategic vision to find a treatment for ALS. Thanks to your support, we are pleased to announce the recipients of the 2014 ALS Canada-Brain Canada Discovery Grants.

This announcement marks the first grants named in the partnership with Brain Canada. As part of the ALS community, we are tremendously excited about that this partnership is able to fund world class projects that will ultimately move the field of ALS research forward.

This summer, with a bucket, ice and water, you have transformed ALS - a disease that before the ALS Ice Bucket Challenge was largely unknown.  Because of you, your recent gift through the ALS Ice Bucket Challenge is enabling the ALS Societies across Canada to inject $26 million into the ALS community over the next three years. 

Below is the formal announcement given today in Ottawa and distributed to the press. It outlines where your dollars will be used, as well as a special partnership, that we believe will contribute to changing the future of ALS. 

On Wednesday November 19, 2014 ALS Societies across Canada will be making an unprecedented announcement about the funds generously donated by Canadians through the ALS Ice Bucket Challenge. We will be making the official announcement at a press conference in Ottawa at 10:30a.m. At this press conference we will be sharing the phenomenal impact Canadians across the country have made for the ALS community. Because of their generosity through the ALS Ice Bucket Challenge, amazing things are happening and we can’t wait to share the details with you.  

The ALS Canada Board of Directors is pleased to announce the appointment of Tammy Moore as Chief Executive Officer to ALS Canada, effective November 10, 2014.
Earlier this year, ALS Canada underwent a leadership transition, requiring the ALS Canada Board of Directors to embark on a competitive and comprehensive recruitment process to fill the role of CEO. Upon completing a thorough and rigorous process, Ms. Moore was chosen to execute ALS Canada’s strategic vision.

Representatives of the ALS Societies across Canada met in Toronto this past weekend to give thoughtful consideration regarding the allocation of the funds raised through the Ice Bucket Challenges. As beneficiaries of these donations, we accept this task as a huge responsibility and are mindful of what this means towards fostering research and supporting families living with ALS. All ALS Society Boards will now be asked to ratify the decisions made in Toronto and an announcement of the final outcome will be made in November 2014.