ALS News

A year ago today, the team at ALS Canada and members of the ALS Community were in Ottawa announcing the generosity of Canadians who supported ALS through the Ice Bucket Challenge, which allowed ALS Canada to sign a partnership with Brain Canada for matching dollars for ALS research. 

We will be making a historic research announcement tomorrow! Watch for our upcoming announcement.



We are very pleased to announce that Lisa Droppo has joined ALS Canada as Vice President Client Services!

Dear ALS Community Partner:

We are seeking people with experiences and knowledge which connect to the needs of people living with ALS in Ontario, to participate in our Client Services Advisory Council, to help inform and make recommendations to the Board of ALS Canada.

Please join us for this complimentary series informing and discussing the field of ALS research. Hosted by Dr. David Taylor, Director of Research at ALS Canada, learn about the latest advancements in research, how your dollars are funding one of the best research programs in the world and how to get involved in clinical trials to help make ALS a treatable, not terminal disease.

Webinar 1: ALS in 2015: Up to the Challenge

Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game.

We want to thank everyone who participated in the ALS Ice Bucket Challenge this year as we continue to fight this disease.

It is with great pleasure that ALS Canada announces the recipients of the 2015 Bridge Grants. Bridge Grants are designed to maintain the momentum of the most impactful ALS research that scored very highly in the 2015 Canadian Institutes of Health Research (CIHR) Operating Grant competition, but did not achieve the very stringent top 14% that were provided funding. Though CIHR peer review determined that 1959 of 2682 applications, covering all aspects of health research, merited funding, only 383 received support.

Dear ALS Community,

Once again this year the ALS Society of Saskatchewan is offering a youth retreat. Meet new friends, share feelings, explore how to overcome obstacles and feel empowered! The date of this retreat is from Friday, September 18 - 20, 2015. It is open to youths across Canada between the ages of 18 - 25 years old.

If you would like to be a part of the program we will cover your transportation costs. There is no cost for the retreat itself which includes accommodation and meals.


ALS Society of Canada
Vice President Client Services 

"The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat Quinn to unite Canadians, and challenge them to take the ALS Ice Bucket Challenge this August and every August until we find a cure,"  Brian Parsons, living with ALS and ALS advocate.

$17 million was raised through the ALS Ice Bucket Challenge in 2014

ALS Research:

  • $11.5 million went to ALS research from ALS Societies across Canada
  • We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program
  • By October 2015 $12.9 MILLION to be invested in research grants and programs

Client services:

It is with great pleasure that ALS Canada announces the 2015 recipients of our Doctoral Research Awards. As a result of continued pursuance of a better understanding of the disease and new treatments, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Attracting the brightest young minds to ALS research will contribute to a succession plan for the Canadian ALS research community and will nurture the potential for younger perspectives to bring new ideas to the field.

It is with great pleasure that ALS Canada announces the two recipients of 2015 postdoctoral fellowships awarded by the ALS Canada Research Program. As a result of the continued pursuance of a better understanding of the disease and new treatments to achieve our vision, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Early postdoctoral years are when critical decisions are made in determining the direction of an individual's research and academic career.

Two year study shows Canadians will take action to fight the terminal disease ALS

MARKHAM, ON, June 2, 2015 /CNW/ - In 2014, over 260,000 Canadians dumped a bucket of ice over their heads and made a donation through the ALS Ice Bucket Challenge. They demonstrated a commitment to fight the terminal disease ALS, commonly referred to as Lou Gehrig's Disease. The Challenge not only spurred Canadians to rally for the cause, but transformed awareness for the disease that previously was relatively unknown to Canadians.

June is ALS Awareness Month                                                                                                             Here's how you can get involved to help the ALS Community.

Join a WALK for ALS                                                                                                                               #walkforals

The team at ALS Canada welcomes Jill Bridgman as Vice President Fund Development. 

Jill brings over 15 years of experience in fundraising; specializing in business development, revenue generation, marketing, stakeholder engagement and relationship management.

We received good news today from the Government of Canada Budget 2015 announcement.  The Compassionate Care Benefit has been officially extended from six to 26 weeks. This is a really important step forward to support caregivers who are caring for a loved one at home. We thank the federal government for their commitment to the extension of the CCB.


Today, the Minister of Finance, Joe Oliver will deliver the 2015 budget. Within his announcement the Compassionate Care Benefit will be addressed.