ALS News

Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the day for ALS Canada.

Community Engagement Coordinator, Events

Classification: Full-Time, Permanent

Location: ALS Canada is moving offices in the fall of 2016 to Toronto’s downtown core. Applicants should be prepared to work out of our Markham office for the first several months.

MARKHAM, ON, April 19, 2016 /CNW/ - Six months ago, Liberal MP Mauril Bélanger was running in the federal election, continuing his dedication of over 20 years to serving his constituents in the riding of Ottawa-Vanier. His life changed November 2015, when he was diagnosed with the terminal disease amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's. Although ALS has taken away his ability to speak, it has not taken away his voice or commitment to help others.

First ALS Canada Clinical Management Grant to Support Exploration of Cannabinoids on Quality of Life

Community engagement plays a really important role in fundraising for ALS Canada. We are grateful for everyone who gets involved and dedicates their time to hosting BBQ’s, block parties, dance-a-thons, and Ice Bucket Challenges! We could not do the work we do, without your support.

Meet Kinga Repic.

ALS Canada: What kind of community events have you helped organize?

Caregiver Information Sessions

How to deal with the unique and individual journey that caregivers and loved ones experience when supporting those living with ALS. 

In Person:

Wednesday April 20th 2016
7 pm – 9pm
Olivet Baptiste Church
36 Margueretta St
Toronto, ON M6K 2P5
RSVP by Monday April 18th 2016


1988. At the office. A young independent redhead grabs Jocelyn’s attention immediately.

She emits a contagious “joie de vivre” that instantly seduces the young man. Chantal, on the other hand, was charmed by Jocelyn’s ability to listen and his sincere consideration for everyone around him. After almost 23 years of marriage and a daughter named Maya, their love has never been so strong. Their secret? “It’s in the little things: a look, a gesture, a spontaneous hug, a compliment, a morning smile and tenderness. These are all elements that keep our flame alive,” confides Chantal.

Dear ALS Community,

We are pleased to advise you that the Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks. Effective January 3, 2016, caregivers can now claim up to $13,624 in benefits, where previously it was $3,144. We hope this announcement will now relieve some of the financial burden related to this disease.  

The Canada Revenue Agency has a great video series on charitable giving and as a donor what you should look for when donating to a charity. 

In a few weeks, we will be celebrating and welcoming in the New Year. However, there is still time to give a gift and receive a tax receipt before year end. Your deadline to submit a donation is Dec 31, 2015

To ensure you receive your charitable tax benefit for 2015,  when donating to ALS Canada, here are a few tips :

Last Christmas I was playing hockey. Now I need help to stand up.
John Hamm, diagnosed with ALS in 2014

One of John Hamm’s favourite holiday traditions is playing pond hockey with his three kids. But this year, he won’t be strapping on skates.

This holiday season, John’s wife Cathy will bundle him up in warm clothes and, together with son Jake, pull John out to the pond on a toboggan so he can watch. 

Today is Giving Tuesday. On this very special day of giving from the heart, I hope you’ll give the most precious gift of all — the gift of hope. 

Right now, approximately 3,000 Canadians are living with ALS (Amyotrophic Lateral Sclerosis) — a degenerative disease that quickly and progressively steals a person’s mobility, speech and eventually the ability to breathe. Today, most people live only two to five years after a diagnosis. 

Please make your Giving Tuesday gift to the ALS Society of Canada. 

A year ago today, the team at ALS Canada and members of the ALS Community were in Ottawa announcing the generosity of Canadians who supported ALS through the Ice Bucket Challenge, which allowed ALS Canada to sign a partnership with Brain Canada for matching dollars for ALS research. 

We will be making a historic research announcement tomorrow! Watch for our upcoming announcement.



We are very pleased to announce that Lisa Droppo has joined ALS Canada as Vice President Client Services!

Dear ALS Community Partner:

We are seeking people with experiences and knowledge which connect to the needs of people living with ALS in Ontario, to participate in our Client Services Advisory Council, to help inform and make recommendations to the Board of ALS Canada.

Please join us for this complimentary series informing and discussing the field of ALS research. Hosted by Dr. David Taylor, Director of Research at ALS Canada, learn about the latest advancements in research, how your dollars are funding one of the best research programs in the world and how to get involved in clinical trials to help make ALS a treatable, not terminal disease.

Webinar 1: ALS in 2015: Up to the Challenge

Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game.

We want to thank everyone who participated in the ALS Ice Bucket Challenge this year as we continue to fight this disease.

It is with great pleasure that ALS Canada announces the recipients of the 2015 Bridge Grants. Bridge Grants are designed to maintain the momentum of the most impactful ALS research that scored very highly in the 2015 Canadian Institutes of Health Research (CIHR) Operating Grant competition, but did not achieve the very stringent top 14% that were provided funding. Though CIHR peer review determined that 1959 of 2682 applications, covering all aspects of health research, merited funding, only 383 received support.

Dear ALS Community,

Once again this year the ALS Society of Saskatchewan is offering a youth retreat. Meet new friends, share feelings, explore how to overcome obstacles and feel empowered! The date of this retreat is from Friday, September 18 - 20, 2015. It is open to youths across Canada between the ages of 18 - 25 years old.

If you would like to be a part of the program we will cover your transportation costs. There is no cost for the retreat itself which includes accommodation and meals.