ALS News

Please join us for this complimentary series informing and discussing the field of ALS research. Hosted by Dr. David Taylor, Director of Research at ALS Canada, learn about the latest advancements in research, how your dollars are funding one of the best research programs in the world and how to get involved in clinical trials to help make ALS a treatable, not terminal disease.

Webinar 1: ALS in 2015: Up to the Challenge

Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game.

We want to thank everyone who participated in the ALS Ice Bucket Challenge this year as we continue to fight this disease.

It is with great pleasure that ALS Canada announces the recipients of the 2015 Bridge Grants. Bridge Grants are designed to maintain the momentum of the most impactful ALS research that scored very highly in the 2015 Canadian Institutes of Health Research (CIHR) Operating Grant competition, but did not achieve the very stringent top 14% that were provided funding. Though CIHR peer review determined that 1959 of 2682 applications, covering all aspects of health research, merited funding, only 383 received support.

Dear ALS Community,

Once again this year the ALS Society of Saskatchewan is offering a youth retreat. Meet new friends, share feelings, explore how to overcome obstacles and feel empowered! The date of this retreat is from Friday, September 18 - 20, 2015. It is open to youths across Canada between the ages of 18 - 25 years old.

If you would like to be a part of the program we will cover your transportation costs. There is no cost for the retreat itself which includes accommodation and meals.


ALS Society of Canada
Vice President Client Services 

"The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat Quinn to unite Canadians, and challenge them to take the ALS Ice Bucket Challenge this August and every August until we find a cure,"  Brian Parsons, living with ALS and ALS advocate.

$17 million was raised through the ALS Ice Bucket Challenge in 2014

ALS Research:

  • $11.5 million went to ALS research from ALS Societies across Canada
  • We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program
  • By October 2015 $12.9 MILLION to be invested in research grants and programs

Client services:

It is with great pleasure that ALS Canada announces the 2015 recipients of our Doctoral Research Awards. As a result of continued pursuance of a better understanding of the disease and new treatments, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Attracting the brightest young minds to ALS research will contribute to a succession plan for the Canadian ALS research community and will nurture the potential for younger perspectives to bring new ideas to the field.

It is with great pleasure that ALS Canada announces the two recipients of 2015 postdoctoral fellowships awarded by the ALS Canada Research Program. As a result of the continued pursuance of a better understanding of the disease and new treatments to achieve our vision, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Early postdoctoral years are when critical decisions are made in determining the direction of an individual's research and academic career.

Two year study shows Canadians will take action to fight the terminal disease ALS

MARKHAM, ON, June 2, 2015 /CNW/ - In 2014, over 260,000 Canadians dumped a bucket of ice over their heads and made a donation through the ALS Ice Bucket Challenge. They demonstrated a commitment to fight the terminal disease ALS, commonly referred to as Lou Gehrig's Disease. The Challenge not only spurred Canadians to rally for the cause, but transformed awareness for the disease that previously was relatively unknown to Canadians.

June is ALS Awareness Month                                                                                                             Here's how you can get involved to help the ALS Community.

Join a WALK for ALS                                                                                                                               #walkforals

The team at ALS Canada welcomes Jill Bridgman as Vice President Fund Development. 

Jill brings over 15 years of experience in fundraising; specializing in business development, revenue generation, marketing, stakeholder engagement and relationship management.

We received good news today from the Government of Canada Budget 2015 announcement.  The Compassionate Care Benefit has been officially extended from six to 26 weeks. This is a really important step forward to support caregivers who are caring for a loved one at home. We thank the federal government for their commitment to the extension of the CCB.


Today, the Minister of Finance, Joe Oliver will deliver the 2015 budget. Within his announcement the Compassionate Care Benefit will be addressed. 

Did you know Canada has an estimated 13.3 million volunteers? Along side other charities, ALS Canada will celebrate National Volunteer Week from April 13-19, 2015.

Join ALS Canada on Facebook and Twitter during National Volunteer week and give a shout out to our volunteers, or someone special you know who volunteers.

Every year, ALS Canada hosts a forum, bringing the ALS research community together to exchange ideas, network and form collaborations to find a treatment for ALS. This year, we will be meeting at the Hilton Toronto Airport Hotel in early May. We are excited for this year's Research Forum and welcome the research community to Toronto. 

A special thank you to Cytokinetics for being this year's Opening Session and Chair's Reception Sponsor.


Melanie was a spirited person, a strong and passionate advocate for the ALS community and was always there to lend her voice and her independent thinking to raise awareness for ALS. Melanie truly used her life to try better the lives of others. She was a significant and cherished part our team at ALS Canada and she will be deeply missed. 

Thank you to Macleans Magazine for publishing this tribute to Melanie. 

The ALS Canada Board is seeking nominations for Directors to serve on the Board of Directors.

ALS Canada is a registered charity, dedicated to supporting Canadians living with ALS (amyotrophic lateral sclerosis) and investing in research to make ALS a treatable, not terminal disease.