ALS News

Dear ALS Community,

We are pleased to advise you that the Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks. Effective January 3, 2016, caregivers can now claim up to $13,624 in benefits, where previously it was $3,144. We hope this announcement will now relieve some of the financial burden related to this disease.  

The Canada Revenue Agency has a great video series on charitable giving and as a donor what you should look for when donating to a charity. 

In a few weeks, we will be celebrating and welcoming in the New Year. However, there is still time to give a gift and receive a tax receipt before year end. Your deadline to submit a donation is Dec 31, 2015

To ensure you receive your charitable tax benefit for 2015,  when donating to ALS Canada, here are a few tips :

Last Christmas I was playing hockey. Now I need help to stand up.
John Hamm, diagnosed with ALS in 2014

One of John Hamm’s favourite holiday traditions is playing pond hockey with his three kids. But this year, he won’t be strapping on skates.

This holiday season, John’s wife Cathy will bundle him up in warm clothes and, together with son Jake, pull John out to the pond on a toboggan so he can watch. 

Today is Giving Tuesday. On this very special day of giving from the heart, I hope you’ll give the most precious gift of all — the gift of hope. 

Right now, approximately 3,000 Canadians are living with ALS (Amyotrophic Lateral Sclerosis) — a degenerative disease that quickly and progressively steals a person’s mobility, speech and eventually the ability to breathe. Today, most people live only two to five years after a diagnosis. 

Please make your Giving Tuesday gift to the ALS Society of Canada. 

A year ago today, the team at ALS Canada and members of the ALS Community were in Ottawa announcing the generosity of Canadians who supported ALS through the Ice Bucket Challenge, which allowed ALS Canada to sign a partnership with Brain Canada for matching dollars for ALS research. 

We will be making a historic research announcement tomorrow! Watch for our upcoming announcement.

 

 

We are very pleased to announce that Lisa Droppo has joined ALS Canada as Vice President Client Services!

Dear ALS Community Partner:

We are seeking people with experiences and knowledge which connect to the needs of people living with ALS in Ontario, to participate in our Client Services Advisory Council, to help inform and make recommendations to the Board of ALS Canada.

Please join us for this complimentary series informing and discussing the field of ALS research. Hosted by Dr. David Taylor, Director of Research at ALS Canada, learn about the latest advancements in research, how your dollars are funding one of the best research programs in the world and how to get involved in clinical trials to help make ALS a treatable, not terminal disease.

Webinar 1: ALS in 2015: Up to the Challenge

Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game.

We want to thank everyone who participated in the ALS Ice Bucket Challenge this year as we continue to fight this disease.

https://www.youtube.com/watch?v=4Eaypr2tKTc

It is with great pleasure that ALS Canada announces the recipients of the 2015 Bridge Grants. Bridge Grants are designed to maintain the momentum of the most impactful ALS research that scored very highly in the 2015 Canadian Institutes of Health Research (CIHR) Operating Grant competition, but did not achieve the very stringent top 14% that were provided funding. Though CIHR peer review determined that 1959 of 2682 applications, covering all aspects of health research, merited funding, only 383 received support.

Dear ALS Community,

Once again this year the ALS Society of Saskatchewan is offering a youth retreat. Meet new friends, share feelings, explore how to overcome obstacles and feel empowered! The date of this retreat is from Friday, September 18 - 20, 2015. It is open to youths across Canada between the ages of 18 - 25 years old.

If you would like to be a part of the program we will cover your transportation costs. There is no cost for the retreat itself which includes accommodation and meals.

THE ALS ICE BUCKET CHALLENGE IS BACK!

ALS Society of Canada
Vice President Client Services 

"The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat Quinn to unite Canadians, and challenge them to take the ALS Ice Bucket Challenge this August and every August until we find a cure,"  Brian Parsons, living with ALS and ALS advocate. https://www.youtube.com/watch?v=nh29NIDXww4

CANADA YOU MADE A DIFFERENCE 
$17 million was raised through the ALS Ice Bucket Challenge in 2014

ALS Research:

  • $11.5 million went to ALS research from ALS Societies across Canada
  • We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program
  • By October 2015 $12.9 MILLION to be invested in research grants and programs

Client services:

It is with great pleasure that ALS Canada announces the 2015 recipients of our Doctoral Research Awards. As a result of continued pursuance of a better understanding of the disease and new treatments, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Attracting the brightest young minds to ALS research will contribute to a succession plan for the Canadian ALS research community and will nurture the potential for younger perspectives to bring new ideas to the field.

It is with great pleasure that ALS Canada announces the two recipients of 2015 postdoctoral fellowships awarded by the ALS Canada Research Program. As a result of the continued pursuance of a better understanding of the disease and new treatments to achieve our vision, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Early postdoctoral years are when critical decisions are made in determining the direction of an individual's research and academic career.

Two year study shows Canadians will take action to fight the terminal disease ALS

MARKHAM, ON, June 2, 2015 /CNW/ - In 2014, over 260,000 Canadians dumped a bucket of ice over their heads and made a donation through the ALS Ice Bucket Challenge. They demonstrated a commitment to fight the terminal disease ALS, commonly referred to as Lou Gehrig's Disease. The Challenge not only spurred Canadians to rally for the cause, but transformed awareness for the disease that previously was relatively unknown to Canadians.

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