ALS News

Dear ALS Community,

Once again this year the ALS Society of Saskatchewan is offering a youth retreat. Meet new friends, share feelings, explore how to overcome obstacles and feel empowered! The date of this retreat is from Friday, September 18 - 20, 2015. It is open to youths across Canada between the ages of 18 - 25 years old.

If you would like to be a part of the program we will cover your transportation costs. There is no cost for the retreat itself which includes accommodation and meals.

THE ALS ICE BUCKET CHALLENGE IS BACK!

ALS Society of Canada
Vice President Client Services 

"The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat Quinn to unite Canadians, and challenge them to take the ALS Ice Bucket Challenge this August and every August until we find a cure,"  Brian Parsons, living with ALS and ALS advocate. https://www.youtube.com/watch?v=nh29NIDXww4

CANADA YOU MADE A DIFFERENCE 
$17 million was raised through the ALS Ice Bucket Challenge in 2014

ALS Research:

  • $11.5 million went to ALS research from ALS Societies across Canada
  • We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program
  • By October 2015 $12.9 MILLION to be invested in research grants and programs

Client services:

It is with great pleasure that ALS Canada announces the 2015 recipients of our Doctoral Research Awards. As a result of continued pursuance of a better understanding of the disease and new treatments, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Attracting the brightest young minds to ALS research will contribute to a succession plan for the Canadian ALS research community and will nurture the potential for younger perspectives to bring new ideas to the field.

It is with great pleasure that ALS Canada announces the two recipients of 2015 postdoctoral fellowships awarded by the ALS Canada Research Program. As a result of the continued pursuance of a better understanding of the disease and new treatments to achieve our vision, it is imperative that promising young investigators are nurtured into a career focused on ALS research. Early postdoctoral years are when critical decisions are made in determining the direction of an individual's research and academic career.

Two year study shows Canadians will take action to fight the terminal disease ALS

MARKHAM, ON, June 2, 2015 /CNW/ - In 2014, over 260,000 Canadians dumped a bucket of ice over their heads and made a donation through the ALS Ice Bucket Challenge. They demonstrated a commitment to fight the terminal disease ALS, commonly referred to as Lou Gehrig's Disease. The Challenge not only spurred Canadians to rally for the cause, but transformed awareness for the disease that previously was relatively unknown to Canadians.

June is ALS Awareness Month                                                                                                             Here's how you can get involved to help the ALS Community.

Join a WALK for ALS                                                                                                                               #walkforals

The team at ALS Canada welcomes Jill Bridgman as Vice President Fund Development. 

Jill brings over 15 years of experience in fundraising; specializing in business development, revenue generation, marketing, stakeholder engagement and relationship management.

We received good news today from the Government of Canada Budget 2015 announcement.  The Compassionate Care Benefit has been officially extended from six to 26 weeks. This is a really important step forward to support caregivers who are caring for a loved one at home. We thank the federal government for their commitment to the extension of the CCB.

ALS CANADA SUPPORTS THE GOVERNMENT OF CANADA’S DECISION TO EXTEND THE COMPASSIONATE CARE BENEFIT TO 26 WEEKS

Today, the Minister of Finance, Joe Oliver will deliver the 2015 budget. Within his announcement the Compassionate Care Benefit will be addressed. 
 

Did you know Canada has an estimated 13.3 million volunteers? Along side other charities, ALS Canada will celebrate National Volunteer Week from April 13-19, 2015.

Join ALS Canada on Facebook and Twitter during National Volunteer week and give a shout out to our volunteers, or someone special you know who volunteers.

Every year, ALS Canada hosts a forum, bringing the ALS research community together to exchange ideas, network and form collaborations to find a treatment for ALS. This year, we will be meeting at the Hilton Toronto Airport Hotel in early May. We are excited for this year's Research Forum and welcome the research community to Toronto. 

A special thank you to Cytokinetics for being this year's Opening Session and Chair's Reception Sponsor.

 

Melanie was a spirited person, a strong and passionate advocate for the ALS community and was always there to lend her voice and her independent thinking to raise awareness for ALS. Melanie truly used her life to try better the lives of others. She was a significant and cherished part our team at ALS Canada and she will be deeply missed. 

Thank you to Macleans Magazine for publishing this tribute to Melanie. 

The ALS Canada Board is seeking nominations for Directors to serve on the Board of Directors.

ALS Canada is a registered charity, dedicated to supporting Canadians living with ALS (amyotrophic lateral sclerosis) and investing in research to make ALS a treatable, not terminal disease. 

A large consortium of researchers from six countries have definitively identified a new ALS gene called TANK-binding kinase 1 (TBK1) by performing a rigorous study that involved sequencing of more than 2800 people with ALS compared with more than 6000 control samples. Canadian researcher Dr. Guy Rouleau, Director of the Montreal Neurological Institute and his colleague Dr. Patrick A. Dion, along with current Tim E. Noël (ALS Canada) Postdoctoral Fellowship recipient Dr. Claire Leblond are authors on this landmark manuscript, recently published early online for the top journal Science.

The Arthur J. Hudson Translational Team Grant was first announced on May 3, 2014 at the ALS Canada Research Forum and the inaugural competition deadline was July 1, 2014. This new grant program is designed to fund teams of Canadian researchers to accelerate the movement of ideas out of the laboratory and into the clinic with the hope of assisting development of new therapeutics for ALS. It is the cornerstone of our ALS Canada Research Program designed to emphasize bench-to-bedside translation.

ALS Society of Canada
Vice President Fund Development 

ALS Canada is looking for an energetic professional to join our team. We want to find a person who understands the critical contribution they will make to our vision to make a difference in the lives of people living with ALS today and to a future, where ALS will be a treatable, not terminal disease. They love a challenge, developing a plan and orchestrating a multi-disciplinary team to achieve outstanding outcomes in fund development and donor relations. Could this be you?

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