News

Building on the first-of-its-kind ALS National Genetic Counsellor initiative, funding will help expand genetic information, counselling, and pathways to care for people affected by ALS TORONTO, November 12, 2026 – Two years after the ALS Society of Canada (ALS Canada)…

ALS community disappointed that Budget 2026 lacks dedicated funding for ALS research, renewing urgent calls on the federal government to commit $50 million over five years OTTAWA, November 5, 2026 – The ALS Society of Canada (ALS Canada) says the…

From advancing advocacy alongside the ALS community to strengthening ALS research across Canada, the ALS Society of Canada (ALS Canada) team members are helping drive meaningful progress toward a world free of ALS. Two team members have recently been recognized…

ALS Canada is making ALS-specific training and resources more accessible across Canada, helping ensure people living with ALS and their caregivers feel supported from diagnosis through to end-of-life care. ALS is a complex disease that affects each person differently, making…

With veterans at higher risk of developing ALS, national delegation returns to Parliament Hill to advance a plan that could benefit everyone affected by the disease OTTAWA, October 27, 2026 – People living with amyotrophic lateral sclerosis (ALS), caregivers, clinicians,…

Burden of ALS Study finds ALS costs Canada $628 million each year, with families carrying nearly 80 per cent of the burden, underscoring the need for urgent federal action. TORONTO, ON, October 14, 2026 – The new national Burden of…

From the Research Desk highlights recent efforts from the ALS Canada Research Team, offering a window into the work made possible through your commitment to ALS research. We couldn’t do what we do without you. Thank you for your continued…

Applications are now open for the Canadian ALS Learning Institute (CALI), an online learning experience developed for people affected by ALS, including people living with the disease, caregivers, or bereaved caregivers, who want to better understand ALS research, therapy development…