Press Releases

Charitable Giving in the Workplace garners a spotlight as ALS Canada recognizes HealthPartners at Annual General Meeting

MARKHAM, May 7, 2014/CNW - The importance of workplace giving was highlighted at ALS Canada’s annual general meeting over the weekend as HealthPartners was recognized for their exceptional programs aimed to educate and increase public awareness of amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease.

Over the past 25 years, HealthPartners has garnered close to $2 million dollars in donations to ALS Canada through their corporate giving model helping fund world-renowned research and support services for clients living with this terminal disease.  

“HealthPartners is a vital partner for ALS Canada. The ability to connect to the business world and employees through workplace giving is pivotal in opening up communication channels to raise awareness and funds for clients and families living with ALS,” says Dav Cvitkovic, Vice President, Fund Development and Marketing for ALS Canada and is a member of the board of directors at HealthPartners. “We value the partnership with HealthPartners and wanted to thank them for their continued support and dedication by honouring them with the TonyProudfoot Award.”

A champion for the cause, Tony Proudfoot was an all-star defensive back in the Canadian Football League (CFL) who lost his battle to ALS in 2010. For ALS Canada he epitomizes the ultimate ambassador in raising awareness for this disease.

 “On behalf of HealthPartners, I would like to sincerely thank ALS Canada for this great honour.  Tony Proudfoot was an outstanding Canadian who brought great attention to ALS and its impact on those who are diagnosed. To receive an award in his name – and in the presence of other award recipients who work so tirelessly on behalf of individuals with ALS and their families is inspiring,” said Eileen Dooley, CEO of HealthPartners. “At HealthPartners, we work to raise resources for charities that are finding cures, causes and treatments for diseases such as ALS.  We invest in research, frontline programs, services and supports through organizations such as ALS.   We believe charities do better when we work collaboratively to raise funds for research, prevention and cures, and we are proud to partner with the ALS Canada to support their critical work.”   

To learn more about HealthPartners and ALS Canada visit healthpartners.ca and als.ca respectively.

About ALS Canada    

ALS Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS and support for those with ALS. ALS Canada is the leading not-for-profit organization working nationwide to fund ALS research and, with the Provincial ALS Societies, working to improve the quality of life for Canadians affected by ALS. 

About ALS

ALS is a terminal disease characterized by progressive paralysis of muscles throughout the body. Ninety percent of ALS patients die within five years of diagnosis and some in less than one. An estimated 3,000 Canadians have the disease, yet there are currently no effective treatment options. ALS is caused by death of motor neurons, which connect the brain to the muscles. While the specific cause remains unknown, promising discoveries in recent years have provided significant clues that should pave the way for new therapies and an eventual cure.
 

About HealthPartners

HealthPartners is the workplace giving arm of 16 of Canada’s best known national health charities.

More than 25 years ago our partners had a vision that together they could do more to improve the lives of the 87% of Canadians likely to be affected by chronic disease or major illness. The more than $100 million we have raised has ensured life-saving medical research and treatments. And in every community across our country our 16 charities’ are helping Canadians lead longer and healthier lives. HealthPartners offers a convenient and cost-effective way for Canadians to give to health charities at work. We help improve the health of workplaces through engaged, motivated employees who have access to information, support and resources.
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For more information please contact: 
ALS Canada
Rebecca Grima                           Director of Marketing & Communications
 905.248.2052 x235                     rg@als.ca    

HealthPartners
Kelly Nolan                                   Director of Marketing & Communications 
613-562-1469 ext.228                  knolan@healthpartners.ca

 

ALS CANADA CELEBRATES VOLUNTEERS AT ANNUAL AGM

MARKHAM, May 6, 2014 - Legacies of people who have succumbed to the terminal disease, amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, continue to be remembered as ALS Canada bestowed awards to a new generation of community members who are making a difference in raising awareness and funds for the ALS Community.   

This past weekend, ALS Canada recognized individuals and corporations for their dedication and commitment to the cause. Read their stories here.

William Fraser Leadership Development Award - Presented to Dr. Heather Durham

Myra Rosenfeld Volunteer Award - Presented to Melanie York and Odette LaCroix

Marcel Bertrand Exceptional Support Services Award - Presented to The Ramp Project  

Brett Yerex Exceptional Advocacy Award - Presented to Don McCusker

Tony Proudfoot Exceptional Public Awareness Award - Presented to HealthPartners, The Varga and Allan-McCachen families and Stakeshow Productions

Sidney Valo Exceptional Fundraising Program Award - Presented to Jim Hunter and Family

Mary Pollock WALK for ALS Award - Presented to Christine HIlliard

Young Leader of Tomorrow Award - Presented to Michelle Watson

About ALS Canada
ALS Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS and support for those with ALS. ALS Canada is the leading not-for-profit organization working nationwide to fund ALS research and, with the Provincial ALS Societies, working to improve the quality of life for Canadians affected by ALS. 

About ALS
ALS is a terminal disease characterized by progressive paralysis of muscles throughout the body. Ninety percent of ALS patients die within five years of diagnosis and some in less than one. An estimated 3,000 Canadians have the disease, yet there are currently no effective treatment options. ALS is caused by death of motor neurons, which connect the brain to the muscles. While the specific cause remains unknown, promising discoveries in recent years have provided significant clues that should pave the way for new therapies and an eventual cure.
                                                                          -30-

For more information contact Rebecca Grima, Director of Marketing & Communications rg@als.ca

 

ALS CANADA BOARD EXPANDS
MARKHAM MAY 6, 2014 - ALS Canada, the only national voluntary health organization dedicated solely to the fight against amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease announces it has added four new members to its board. 

"Our organization continues to grow and make positive changes for people living with the devastating disease," said Lanny McInnes, Chair, ALS Canada. "Canadians affected by ALS face significant burdens physically, emotionally and financially. We welcome our new board members in our fight to ease these burdens."

Through collective collaboration amongst a diverse talent pool, ALS Canada is positioned to continue to propel the organization forward in its mission to support families and clients living with this disease as well as fund world-renowned research to find a therapeutic discovery for ALS.

The 2014 New Board Members

Dr. Angela Genge

Newfoundland-born, Dr. Angela Genge completed her medical degree at the Memorial University of Newfoundland. She completed her Canadian and American certifications in Internal Medicine and Neurology prior to completing a fellowship in neuromuscular diseases. She joined the staff of the Montreal Neurological Hospital in 1994 and became Director of the ALS Clinic in 1998. 

Her involvement in clinical research began while still a resident in Neurology. She began assisting Dr. Gordon Francis, the founding director of the CRU at the Montreal Neurological Institute, in early trials in both multiple sclerosis and NeuroAIDS. 

Although her interests in neurology focused on neuromuscular disease, she continued working with the CRU and brought in clinical trials in more neuromuscular disorders such as ALS, Myopathies, Neuropathies, Myasthenia Gravis and pain. 

Dr. Genge was appointed Director of the CRU in 2004. Her goal is to expand both the number and scope of clinical trials in neurological disease. 

Rick Morgan

Rick Morgan’s success and reputation, during twenty-five years in executive search, has been earned through identifying, managing and recruiting exceptional leadership in not-for-profit, public, private and government organizations with national and international scope. 

He has had a very successful career in executive search established through working in a senior partner and consultant capacity and helping build three of Canada’s major executive search firms.

Tracey Wallace

Tracey Wallace is a dynamic human resources executive with a strong results orientation, and a proven track record of achievement in driving change and getting things done at ATCO. Tracey's role is to design and develop overall human resource strategies and programs, as well as a disciplined focus on execution. 

Tracey is a frequent speaker on Human Capital. She holds an MBA in Human Resources Management and is a Certified Human Resources Professional.
 

Patrick Merz 

In 2013, Patrick Merz stepped up to take on the position of Treasurer for the Board of Directors at ALS Alberta. Patrick quickly got up to speed with intricacies of this position and provides expert advice and information to the Board of ALS Alberta. 

As a caregiver, Patrick has a deep and passionate connection to the ALS community. Patrick also brings his extensive experience as a CGA, business analyst and business design owner. In addition, Patrick has both shared and enhanced his expertise through his 20 years of involvement on other volunteer boards, including holding roles as treasurer, secretary and president.

About ALS Canada
ALS Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS and support for those with ALS. ALS Canada is the leading not-for-profit organization working nationwide to fund ALS research and, with the Provincial ALS Societies, working to improve the quality of life for Canadians affected by ALS. 

About ALS
ALS is a terminal disease characterized by progressive paralysis of muscles throughout the body. Ninety percent of ALS patients die within five years of diagnosis and some in less than one. An estimated 3,000 Canadians have the disease, yet there are currently no effective treatment options. ALS is caused by death of motor neurons, which connect the brain to the muscles. While the specific cause remains unknown, promising discoveries in recent years have provided significant clues that should pave the way for new therapies and an eventual cure.
                                                                   -30-
For more information please contact: 
Rebecca Grima       905.248.2052 x235     rg@als.ca    als.ca

CURRENT RESEARCH NEWS

2012 was a year of dynamic, positive change delivering a unified organization. We firmly built the foundation for a brighter future to serve clients with ALS in Ontario and across Canada. The success of the new model is clearly evident as you read throughout the annual report.
ALS Canada recognizes individuals during ALS Awareness Month Markham Ont., June 3, 2013 – ALS Canada has made significant strides in the fight against amyotrophic lateral sclerosis (ALS). During ALS Awareness Month, individuals supporting people living with the devastating disease are recognized.
MARKHAM, ON, May 9, 2013 /CNW/ - ALS Canada is amplifying its efforts to find a cure and offer the best support for Canadians with amyotrophic lateral sclerosis (ALS). Six new board members, with a breadth of experience in finance, education and research, will guide the organization in minimizing the hardships caused by ALS.