News

As we look back on 2025, we’re proud to highlight the research achievements we accomplished together.  Advancing ALS research is costly, requiring specialized equipment, data analysis, participant recruitment, and highly skilled teams. Yet investment in Canada still falls short of what’s needed to accelerate discoveries at…

The ALS Society of Canada is proud to announce the funding of a 2025 ALS Canada Discovery Grant in partnership with the ALS Québec – Dr. Jean-Pierre Canuel Fund, to support a research project led by Dr. Janice Robertson at…

From the Research Desk highlights recent activities and accomplishments from the ALS Canada Research Team, and what is happening in the ALS research world. By actively engaging with the global ALS community, supporting ALS research advancements, and providing knowledge…

Being a caregiver for someone living with ALS can be emotionally and physically exhausting, isolating, and overwhelming. Families need consistent guidance, resources, and support to manage both the disease and the strain it places on them. ALS Canada’s Community Leads…

December 11, 2025 - Canada’s Drug Agency (CDA) has released its final reimbursement recommendation for Qalsody (tofersen), advising that the therapy be reimbursed with conditions for adults living with SOD1-ALS. This decision is an important step forward in the pathway…

TORONTO, November 21, 2025 — The 2025 Allied Professionals Forum (APF) brings together more than 300 healthcare professionals from around the world, including physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers, and other specialists working in amyotrophic lateral sclerosis (ALS)…

Toronto, November 12, 2025 – The ALS Society of Canada (ALS Canada) and ALS Association are pleased to welcome the global ALS community to Toronto,…

ALS researchers worldwide continue to build on existing work and make new discoveries in the hopes of a world free of ALS. In the November 2025 Research Update, explore new insights into clinical trials, biomarkers, and strategies for understanding and…