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News

We deliver information that you can trust, informing you about the latest advances in ALS research, as well as upcoming events.

    Press Releases

    Day in the Life with ALS: An immersive technology experience advancing accessibility for people living with ALS

    November 21, 2025
    TORONTO, November 21, 2025 — The 2025 Allied Professionals Forum (APF) brings together more than 300 healthcare professionals from around the world, including physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers, and other specialists working in amyotrophic lateral sclerosis (ALS)…
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    Press Releases

    ALS Society of Canada and the ALS Association welcome the global ALS community to Canada as co-hosts of the 2025 International Alliance Meetings

    November 18, 2025
    Toronto, November 12, 2025 – The ALS Society of Canada (ALS Canada) and ALS Association are pleased to welcome the global ALS community to Toronto,…
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    Research

    Research Update, November 2025

    November 11, 2025
    ALS researchers worldwide continue to build on existing work and make new discoveries in the hopes of a world free of ALS. In the November 2025 Research Update, explore new insights into clinical trials, biomarkers, and strategies for understanding and…
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    Research

    Inside the Science: Biomarkers

    October 23, 2025
    In our blog series, Inside the Science, we break down and discuss trending topics in ALS research, making complex science accessible to anyone affected by ALS.   For much of ALS research history, clinicians could only track the disease by observing…
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    Advocacy

    ALS Canada Advocacy Update, July – September 2025

    October 08, 2025
    This blog series is a place for the ALS community to learn about and stay updated on ALS Canada's advocacy efforts as well as relevant developments within the government. Please note that because ALS Canada…
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    Research

    Canadian ALS experts push for equitable access to genetic testing across the country

    October 07, 2025
    The approval of Qalsody (tofersen) by Health Canada marked a transformative moment in the treatment of ALS caused by pathogenic variants in the SOD1 gene. This new genetic therapy offers hope for a subset of people with ALS and marks…
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    Press Releases

    ALS community urges federal government to act now on research investment

    October 02, 2025
    Advocates on Parliament Hill call for immediate federal investment to accelerate progress, protect Canadian research data, and build on Canada’s leadership in ALS research to drive innovation OTTAWA, October 2, 2025  – Today, people living with amyotrophic lateral sclerosis…
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    Press Releases

    New roads, same purpose: ALS Canada Revolution Ride pedals into Jordan, Ontario

    October 01, 2025
    Cyclists gear up for a challenge along scenic vineyard routes to fuel research and support for people living with ALS JORDAN, ON, October 1, 2025 – On Sunday, October 5, cyclists will take to the rolling vineyards and country…
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    The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society of Canada. Registration No. 10670-8977-RR0002.

    2025 Amyotrophic Lateral Sclerosis Society of Canada

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