Most newsworthy research stories of 2017

In 2017, major scientific advances in Canada and internationally have led to significant and exciting progress in ALS research. Discoveries that increase our understanding of the disease are happening far more often than ever before and as a result many new experimental treatments are set to begin human clinical trials in the next few years. […]

Can a guardian protein protect motor neurons from toxicity in ALS?

Proteins are the workhorses inside cells, responsible for almost all cellular functions. To perform their tasks correctly, they must fold into the right 3D shapes. If they take on the wrong shape, they can stick together and form clumps. If the misfolded proteins are not removed by protective mechanisms in cells, they can cause toxic […]

A shift in perspective over the holidays

James and Madeleine have been married for 55 years. Their shared life together has included three children, six grandchildren, and a beloved cottage that has been in the family for over five decades. ALS has forced the family to make some adjustments. For example, since James was diagnosed with ALS in 2013, he has lost […]

Can probiotics play a protective role in ALS?

Probiotics are friendly, live bacteria that are good for the digestive system. You may be familiar with the digestive benefits of probiotics in foods like yogurt or kefir. Many scientists are investigating how changes in the composition of intestinal bacteria may play a role in a range of diseases including obesity, colorectal cancer, cardiovascular disease […]

Understanding if and how the body compensates for motor neuron loss in ALS

An electrical diagram of a building shows where all the electrical wires, fixtures and components are connected to an electrical system. When a circuit is faulty, it’s easy to identify the culprit because specific lights will not work. But the human nervous system is far more complicated. It is a living network of nerves that […]

Who does what?

If you are diagnosed with ALS in Ontario, you can access information, care and support through a few different sources: ALS Canada, your ALS clinic, and the LHIN (Local Health Integration Network, formerly known as the CCAC or Community Care Access Centre). Understanding the different role of each organization can help you decide who to […]

Talking about ALS with friends and family poses special challenges for caregivers

Caring for a loved one with ALS can bring out some of the best qualities in a person ‒ commitment, compassion, and resilience among them. At the same time, it is a stressful, emotionally draining, and sometimes overwhelming role. Being a caregiver to someone with ALS means new responsibilities and considerations as well as unexpected […]

A Giving Tuesday story of mental resilience and creative expression

When someone receives an ALS diagnosis, the first thought is often about the impending loss of function; for example, the progressive inability to walk, talk, eat and swallow. But the reality of this unforgiving disease can also result in emotional challenges, too. This is something Barry Law knows all too well. When Barry was diagnosed […]

Can a promising drug combination address one of the most defining biological characteristics of ALS?

All cells in our bodies make proteins, but sometimes they make mistakes, resulting in proteins that have the wrong shape. In a healthy body, protective mechanisms within the cells deal with the misshapen proteins so they don’t cause trouble, but when those mechanisms fail, the defective proteins can accumulate in clumps, making it difficult for […]

ALS Canada awards $3 million for 12 new research projects to help make amyotrophic lateral sclerosis (ALS) a treatable, not terminal disease

TORONTO, November 22, 2017 – Today, the ALS Society of Canada announced 12 exciting new research projects being funded in 2017 through the ALS Canada Research Program, which is supported by ALS Societies across Canada. The research being funded includes a multi-year study of a promising drug combination, three trainee grants that will help to […]

Communicating an ALS diagnosis

There is no easy way to tell family and friends you have been diagnosed with ALS. And there is no right or wrong way, either. Individual personalities, family circumstances, and the degree to which the symptoms are visible can all play a role in when, how, and with whom to share the news. Lianne Johnston […]

Holiday gift ideas for someone living with ALS

What do you give someone living with ALS to show you care? There’s no ‘one-size-fits-all’ gift that works for everyone, but there are special ways to say “I am thinking of you.” The holiday season can be a perfect time to do just that. We recognize that it’s not always easy to know how to […]

New Board appointments in 2017/18

According to Imagine Canada, a non-profit organization focused on strengthening the charitable sector, charitable and non-profit organizations have a responsibility to be well-governed. This is a responsibility that ALS Canada takes seriously, and that is reflected in the skills and experience of our volunteer Board of Directors, which welcomed a new Chair in April 2017 […]

ALS Research Update, November 2017

ALS research is at a time of unprecedented advancement. New information on genes linked to ALS and the downstream effects of mutations in these genes has helped researchers to develop a so-called ‘roadmap’ of biological pathways that are important in ALS and to gain a better understanding of this complex disease. With new advancements being […]

Strengthening Canada’s Excellence in ALS Clinical Trials

For a disease like ALS that has few treatment options and no cure, clinical trials are the best hope for the future. Participants in clinical trials play a critical role to help determine if a new treatment can slow, halt or reverse disease progression, or if a new intervention can improve the quality of life […]

Research to help people with ALS stay active and independent

Updated October 20, 2017 Staying active and independent for as long as possible is important for people living with ALS as the disease progresses. There are many ways in which to manage symptoms or receive care, but there often isn’t enough research performed to determine which approaches make the greatest difference. To help address these […]

The power of connection – one family’s experience with ALS

Throughout his lifetime, David Urlin has worn many hats. He has worked as a farmer, a businessman, a hotel owner and a deputy mayor, and in his spare time he used to play football, baseball, hockey, and racquetball. Then in 2016, everything changed. “David always did so much,” says his wife, Mag. “He cooked, he […]

Finding New Ways to Diagnose ALS Faster with Advanced Imaging

ALS is difficult to diagnose because no single test or procedure can firmly identify the disease. Current diagnostic tests for ALS focus on ruling out other diseases that share similar initial symptoms. For example, magnetic resonance imaging (MRI) is a test typically used to eliminate a diagnosis of cancer, multiple sclerosis or pressure on the […]

Deanna Fennell: moving forward and giving back

Updated: September 17, 2018 For many years, the WALK for ALS has been bringing people together in support of a shared cause. Everyone has their own reasons for participating: some go to support a recently-diagnosed friend or family member; others focus on raising awareness, and some people WALK to honour the legacy of a loved […]

Kristine Lee: making adjustments along the way

For the past decade, Kristine Lee has been progressively losing the ability to stand on her own. A wife and mother of two, Kristine has upper motor neuron predominant ALS, a form of the disease that typically progresses more slowly than others. A few weeks before her local WALK for ALS, she opened up about […]

Maximizing the impact of donor dollars for ALS research

Finding new treatments that can change the course of ALS requires a robust research program, one that supports a large community of researchers exploring multiple avenues of inquiry. ALS Canada has been supporting world-class research across Canada for more than 30 years with a variety of grants and awards that are helping to learn more […]

7 Ways to Support ALS Canada this fall

Are you looking for new and exciting ways to support ALS Canada this fall? This blog post outlines seven ways to get involved, join a community and make an impact on the lives of people and families living with ALS. To learn more about events outside of Ontario, please visit your provincial ALS Society’s website. […]

ALS researchers respond to the Ice Bucket Challenge

In 2014, the Ice Bucket Challenge became a viral social media sensation … and ALS researchers across the country – along with ALS Canada staff and supporters – responded to the challenge. For a full list of the researchers in the video, see below. ALS Canada Staff Dr. Richard Bedlack, Duke ALS Clinic, North Carolina Sneha […]

Bench Strength: The Power of Collaboration Fuels Canada’s ALS Research

It all started about five years ago, with worms in a Petri dish in a Canadian ALS researcher’s lab. Today, researchers are preparing to launch a Phase 2 clinical trial of the drug pimozide, which in a couple of months will begin recruiting participants at multiple locations across Canada. The story of how this discovery […]

Dr. Christen Shoesmith discusses the importance of donor support

Dr. Christen Shoesmith is the Director of the Motor Neuron Disease Clinic, a member of the London Health Sciences Centre, as well as a member of the Client Services Advisory Council and co-investigator for two ALS Canada clinical research fellowship grants. She is also the chair of the ALS Best Practice Recommendations. Why is donor support […]

Toilets are turning heads and raising awareness for ALS in the Soo!

Last summer when her mother Deloris was diagnosed with amyotrophic lateral sclerosis (ALS), Jennifer Tranberg decided to plan a community fundraising event in conjunction with members of her son’s hockey team, the Sault Ste. Marie Pee Wee Major AA Junior Greyhounds. With so many special events competing for charitable giving, Jennifer wanted to come up […]

ALS Research Update, August 2017

ALS research is at a time of unprecedented advancement. New information on genes linked to ALS and the downstream effects of mutations in these genes has helped researchers to develop a so-called ‘roadmap’ of biological pathways that are important in ALS and to gain a better understanding of this complex disease. With new advancements being […]

Eric Martineau: ALS Researcher Profile

Eric Martineau is a PhD student in Richard Robitaille’s laboratory at l’Université de Montréal. In 2015, he received the ALS Canada Doctoral Research Award, which provides $25,000 per year over three years for young researchers to pursue a PhD in a Canadian laboratory. How long have you been studying ALS? I’ve been studying ALS since 2011 when I joined the […]

Audrey Labarre: ALS Researcher Profile

Audrey Labarre studies in Dr. Alex Parker’s lab at l’Université de Montréal. Could you tell us a little bit about your work? We’re working with the C. elegans, little worms one millimetre long. We use them to model the ALS disease. I’m interested in the gut microbiota – all your bacterial friends that are living […]

Elsa Tremblay – ALS and the Neuromuscular Junction

Updated October 20, 2017 Elsa Tremblay from l’Université de Montréal studies ALS because of a personal connection. Is there anything in particular that drew you to studying ALS? I went into ALS because my father died from ALS, and also my grandmother. So it’s pretty clear that ALS is running in the family…probably a genetic […]

Pimozide: Everything Old is New Again

Updated October 20, 2017 Very early in his medical training, Dr. Lawrence Korngut was introduced to the concept of ALS. “As a neurologist, I have always been very interested in the physical exam and ALS is the perfect example since the diagnosis is made entirely by physical exam,” said Dr. Korngut in an interview with […]

Dr. Christen Shoesmith – ALS Best Practice Recommendations

Updated November 28, 2017 A group of ALS clinicians across the country is developing Best Practice Recommendations to set a common standard of care for Canadians living with ALS. Dr. Christen Shoesmith of the London Health Sciences Centre explains. She will be speaking about the Canadian ALS Best Practice Recommendations at the Virtual Research Forum on […]

ALS Canada Webinar Series: Clinical Trials

Many people living with ALS and their families want to know how scientific discoveries move from basic research in the laboratory through different phases of clinical trials using human volunteers. They also want to understand why clinical research is required before a new therapy is approved and why it takes so long for researchers to […]

From Inquiry to Insight: Dr. Michael Strong

Updated October 20, 2017 Dr. Michael Strong has spent his career as a clinician scientist researching ALS with a determined curiosity and keen attention to new learning in the field. Over the years, people living with ALS and their families have been an ongoing source of inspiration to him. “The toughest thing in life is […]

Skin models for the study of ALS

Updated October 20, 2017 Bastien Paré from l’Université Laval has been studying ALS for more than five years. We spoke with him about his research and the future of ALS in Canada. Can you tell us about your ALS Canada-funded research? I’m quite different from most people that are working on neurons, and trying to understand […]

Every August Until A Cure

“Every August until a cure.” These five words were first spoken by ALS patient and advocate Pat Quinn upon accepting a Webby Award for his part in creating the Ice Bucket Challenge. The social media phenomenon and global sensation raised millions of dollars for charitable organizations dedicated to funding ALS research and support, and gave […]

Learning more about how gene mutations can cause ALS

Updated October 20, 2017 In the late 1980s, Dr. Neil Cashman was completing a neurology fellowship in ALS at the University of Chicago. At that time, little was known about the genetics or biology of ALS and Dr. Cashman became captivated by trying to understand the cause of the progressive paralysis he observed in his […]

For Tom and Denis, the Ice Bucket Challenge is Personal

Like many people, Denis and his husband Tom were familiar with the Ice Bucket Challenge that became a social media phenomenon in the summer of 2014 – but they never imagined they would one day have a personal motivation to participate. That all changed in 2015 when Denis was diagnosed with ALS. From that point […]

Could viruses play a role in the onset or progression of ALS in people with a genetic link?

Updated November 28, 2017 When a person is infected with a virus, it triggers an immune response that generally results in inflammation. For example – think of the sore throat, redness and swelling that occurs when you are sick with tonsillitis. The immune response is designed to rid the body of the pathogens causing the […]

Dr. Richard Bedlack’s Quest for ALS Discovery: The Truth is Out There

Updated October 20, 2017 Dr. Richard Bedlack’s passion for neurology started when he was a child. As many children do, he used to roll down hills with his little brother – but Dr. Bedlack’s inquisitive nature made him wonder why it made them dizzy. His fascination with the nervous system grew over time as he […]

Q&A with Dr. David Taylor, VP, Research

This interview was originally posted on the Hitfar website in February 2017. Thank you to Hitfar for giving ALS Canada permission to re-post this content. Could you start by explaining the disease and its effects? ALS is a disease where the living wires, called motor neurons, that connect your brain to your muscles die. This means […]

Improved community-based support for people living with ALS

Updated November 28, 2017 As we mentioned in an earlier post, ALS Canada has made some improvements to our service offering with the goal of strengthening the support we offer to people and families living with ALS in Ontario. In mid-July, we shared some of the enhancements made to our equipment program. Another important area […]

Do you use ALS Canada’s Equipment Loan Program? Improvements are here!

Updated November 28, 2017 In a previous post we shared that we would be implementing a series of improvements to better serve people and families living with ALS in Ontario. One of the improvements we made was to our equipment program, which provides people with a range of items – mobility devices, lifts and transfers, […]

Now available: ALS Canada’s 2016 Annual Report

The ALS Society of Canada is part of a passionate and compassionate community united in our deep desire to improve the lives of people living with ALS and to make ALS a treatable, not terminal disease. We know that it takes ALL OF US—donors, volunteers, people living with ALS, caregivers, researchers, and advocates—to make a […]

Seizing Today by Planning for Tomorrow

As a former business analyst, James is accustomed to planning for the future. He has lived with ALS officially since 2013, but his doctors believe he has had ALS for over 20 years. James has an exceptionally slow progression of the disease, which has given him time to do what he does best: plan for […]

A story of unwavering positivity in the face of ALS

When Shelley first started to notice a change in her gait, she had no idea that an ALS diagnosis was on the horizon. In fact, up until her neurologist confirmed the diagnosis in early 2016, Shelley didn’t even know what ALS was. For many people and families living with ALS, the diagnosis can come as […]

MPs give ALS a voice in Parliament

In 2016, a group of parliamentarians and senators from all major political parties united to bring awareness to the challenges facing Canadians living with ALS. Chaired by Francis Drouin, MP for Glengarry-Prescott-Russell, the creation of the ALS Caucus on Parliament Hill was a significant achievement, and ALS Canada is proud to have played a role […]

Awareness Month Round-Up

As the month of June wraps up, so too does ALS Awareness Month. Over the past several weeks, ALS Canada has invited you to #SeizeTodayALS by telling us how you have chosen to find joy and laughter in every day, despite the challenges of living with ALS. We have been privileged to share the stories […]

ALS Canada Webinar Series: Research Update

ALS research is at a significant tipping point, and we can now envision a future where ALS becomes a treatable condition. This was one of the highlights shared by Dr. David Taylor, Vice President of Research at ALS Canada, during a webinar presentation on June 13, 2017. The webinar was the first in a series […]

Caring for a loved one with ALS brings poignant new perspectives

A week before the annual WALK for ALS in his community, Susan Peacock’s husband, Jeff, spent a few hours on his computer composing a message to post on Facebook using eye gaze software. The technology allows him to communicate now that he can no longer speak, but, as Susan is quick to point out, it […]

The Power of Love: “As long as we’re together, everything will be alright”

Like most couples, Denis and Tom had dreams for their future together. They met 25 years ago in Philadelphia, and when Denis accepted a new position in Toronto, Tom quit his job and moved to a foreign city to be with him. Tom found a job in his field, became a Canadian in 2000 and […]

Building “a beautiful life” with dignity and respect

Husband. Partner. Lifelong friend. Grace had known Randy since he was a teenager, and over time he had become all of these things to her. The couple had been married for almost 50 years before Randy passed away from ALS in March 2016, and Grace recounts that they had built “a beautiful life” together in […]

How a grandson learned to cherish every moment

When Fabio talks about his grandmother Giuseppina, the love and respect he has for her is unmistakable. The woman he describes is warm, fun-spirited and hard-working; a woman who would do anything for the ones she loves. As the eldest of eight grandchildren, Fabio shared a unique bond with Giuseppina, who passed away earlier this […]

From grief to hope: how my grandfather’s ALS diagnosis gave me purpose

From a very young age, my grandfather and I had a special connection. I remember as a young girl, he and my grandmother would go to Portugal for six months at a time. When they returned, I refused to leave his side and would spend hours just staring up at him, thinking how lucky I […]

“I am so much more than my physical abilities”

The only muscles Jeff can fully control are behind his eyes. He lives with ALS, but that hasn’t stopped him from staying fully engaged in life and finding purpose in helping others. That’s the way he’s always been, says his wife, Darlene, who has known him since high school. Nowadays, everything takes extra time, but […]

A Daughter’s Resolution to Honour her Father

If you were to have asked Kimberley a couple years ago the definition of Amyotrophic Lateral Sclerosis, she would have admitted that she did not know. Medically speaking, the word “lateral” identifies the area where nerve cells in the spinal cord that nourish the muscles are located. As nerve cells die, the muscles receive no […]

Finding Comfort in Creativity

When life hands you an ALS diagnosis, the fear of the unknown can often prevent you from embracing the present. This is something Mary-Anne experienced first-hand three years ago, when she was diagnosed with ALS. During a vacation in Puerto Vallarta, Mexico in 2012, on her way to a yoga class, Mary-Anne tripped and fell […]

Eddy is Living Life on his Terms

When Eddy was diagnosed with ALS in 1992, he was given three to five years to live. His symptoms began with a weakness in his left hand that gradually progressed throughout his body. “Over the next 15 months I was unable to skate, run the length of a squash court without falling, and was constantly […]

Seizing Today with Passion and Humour

Judy is the kind of woman who can make you smile in any situation. With a zest for life, unwavering positivity and a witty sense of humour, Judy is an inspiration for what it means to seize today. At first glance, you wouldn’t know that Judy has ALS. At the age of 64, she is […]

Carol: Living, Loving and Laughing Today

Diagnosed with ALS in September 2013 at the age of 41, Carol has surpassed the two to three year life expectancy that was originally given to her by her neurologist. Since then, she has struggled with degenerating muscle function every day – but she refuses to let that stop her. When she first received her […]

Improving support for people and families living with ALS

Updated November 28, 2017 When you are living with or caring for someone with ALS, there are countless challenges and changes to consider. Through donor support, ALS Canada helps people and families in Ontario to navigate the options available through the healthcare system and tries to fill the gaps in whatever ways we are able. […]

A Walk for Remembrance and Awareness

Last month, John Scarborough and his two brothers completed their “Long Walk Home.” The 459km walk was a way to honour their sister and John’s first wife who both died of cancer, and to remember Rita, John’s second wife who died with ALS a year ago. The brothers set out in Toronto from the home […]

“Life is beautiful:” Seizing Today with love, support and adventure

In his lifetime, Jamie has climbed the Swiss Alps, bungee jumped, skydived, white water rafted and cave climbed. He has gone on a balloon ride in Estonia, taken a cruise to the Caribbean, done a rainforest canopy tour in St. Lucia and proposed to his best friend. Since his ALS diagnosis in 2016, he has […]

A positive mental attitude continues to drive Don’s daily workout

Oftentimes, significant life struggles – like an ALS diagnosis – bring about a reassessment and shift in perspective. For Don, living with ALS means readjusting his physical goals, but his attitude about life is the same as it has always been. He calls it “PMA” (positive mental attitude), a term that embodies Don’s optimism. Don […]

Losing mobility never stopped Tim from walking through life with a smile

Tim was always actively engaged in life. He loved his work, coaching and playing hockey, riding his bike, and spending time with his circle of family and friends. ALS took away his ability to move. It forced him to make huge adjustments but living with the disease never changed the way he approached life. Just […]

The ALS Canada Research Program

Today was the deadline for applications from the research community for three different types of funding through the ALS Canada Research Program. Applications are evaluated by an international panel of scientific experts through a peer review process, regarded as the international benchmark of excellence in research funding. This approach enables us to maximize the impact […]

John: Getting by with a little help from his friends

John has always had a positive outlook on life. For many of those living with ALS, the diagnosis can often bring a shift in perspective in what is meaningful and important. For John, it simply reaffirmed the way he has always chosen to live. John is a 63 year-old retired animal and agriculture research worker […]

There’s no better time than right now to seize today

Receiving an ALS diagnosis is overwhelming, and many people and families living with the disease will tell you its realities are devastating. ALS can take away your mobility, your ability to speak and laugh, your strength and your ability to eat and drink. What it cannot take away is the relationships, love and personal connections […]

Could state-of-the-art gene editing play a role in correcting genetic mutations linked to the development of ALS?

Research is increasingly demonstrating that genetic mutations play a significant role in the development of ALS: for example, the C9orf72 gene is one of the most prominent genetic causes of the disease. With the scientific community abuzz about CRISPR/CAS9, a state-of-the-art technology that enables scientists to precisely manipulate and edit genes in living organisms, the […]

Paying it forward to benefit people with ALS in the future

Deirdre O’Connor and her husband, Floyd, became ALS Canada donors 15 years ago. At the time, they had no personal connection to the cause, but they liked the fact that ALS Canada was a small, cost-effective charitable organization without a lot of overhead. Deirdre’s generosity extends to half a dozen or more organizations she supports […]

Honouring Mom this Mother’s Day, and always

For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be the first Mother’s Day she spends without her mother, Margaret. After participating in the 2016 […]

A second ALS treatment, edaravone, has been newly approved in the United States

Updated October 5, 2017 Highlights: In May 2017 the United States Food and Drug Administration approved edaravone (also referred to as Radicava and Radicut) for the treatment of ALS. It’s the second ALS drug to be approved in the US. The first drug, riluzole, was approved more than 20 years ago. Radicava became available in […]

Fulfilling a promise and a passion

National Volunteer Week: Tara Wingrave With two 18 year-old daughters, a 19 year-old son, and a highly demanding job, life is hectic, but that won’s stop me from making the time to organize the Barrie WALK for ALS again this year. It’s something I feel passionate about, and it’s one of the most important ways […]

Finding support, hope, and community through volunteering

National Volunteer Week: Jacqui Devine They always say ALS is rare, so it’s surprising how many times you hear about people who have been diagnosed with the disease. In 2012, I was working as a personal support worker and my favourite client was living with ALS. Since I knew very little about it, I decided […]

Fighting for Genetic Fairness

National Volunteer Week: Benjamin Ritsma I am a physician in Physical Medicine and Rehabilitation (Physiatry), a specialty that aims to help people function better as they deal with a neurological or musculoskeletal condition. My career path was influenced by my own family’s experience with ALS. As a Physiatrist at the ALS clinic, I work with […]

Making a meaningful contribution

National Volunteer Week: Caroline Price The hardest part about retiring for me was losing the daily connection with my “family” of colleagues. It was one of the reasons I was actively looking for a volunteer role when a position with ALS Canada turned up in an online search. If an opportunity presents itself at the […]

Living, Loving, Laughing… and Volunteering

National Volunteer Week: Carol Skinner When I received my ALS diagnosis in 2013, I was given two to three years to live. I was 41 years old. I had settled into a rewarding career – art therapy – and I was happily married to the man I love. Learning I had ALS and that “there […]

“Compassion is what drives us.”

National Volunteer Week: Geneviève Bertrand Many of us who contribute to the work of ALS Canada as volunteers have a personal connection to ALS, whether we are living with the disease ourselves, or supporting or remembering a close family member, friend, colleague or acquaintance. We are spurred on by the hope for a cure, and want […]

“When you are loved, you have everything:” ALS Canada ambassador Eddy Lefrançois reflects on 25 years living with ALS

Like many young people, 22-year-old Eddy Lefrançois had carefully mapped out his future and had a vision of how his life would be. Then, on April 14, 1992, his doctor delivered the news that Eddy had ALS. That day and that news changed his life forever – but not in the way you might expect. […]

Upcoming Webinar: The Canadian ALS Neuroimaging Consortium (CALSNIC)

Webinar: The Canadian ALS Neuroimaging Consortium (CALSNIC) Monday, April 24 at 12:00 PM Eastern Time: 30 minutes + questions Hosted by: Dr. Sanjay Kalra Click here to register for the Webinar During this webinar you can expect to learn how Dr. Kalra has built a team of researchers across Canada to develop the ability to […]

National Family Caregiver Day: A conversation with ALS Caregiver Jonathan Corber

Jonathan Corber is an ALS Canada Ambassador. After his mother, Wendy, was diagnosed with ALS in February 2016, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Jonathan took some time to connect with us recently to share his experience as his mother’s caregiver for […]

Trevor and Jennifer: Finding love while living with ALS

This Valentine’s Day, we would like to highlight Trevor and Jennifer’s story about finding love while living with ALS. – Trevor was my first love in high school. Although short term, the strong connection we had was never forgotten. We lost track of each other but reconnected again after 28 years on Facebook in 2015. […]