Seizing Today by Planning for Tomorrow

As a former business analyst, James is accustomed to planning for the future. He has lived with ALS officially since 2013, but his doctors believe he has had ALS for over 20 years. James has an exceptionally slow progression of the disease, which has given him time to do what he does best: plan for […]

A story of unwavering positivity in the face of ALS

When Shelley first started to notice a change in her gait, she had no idea that an ALS diagnosis was on the horizon. In fact, up until her neurologist confirmed the diagnosis in early 2016, Shelley didn’t even know what ALS was. For many people and families living with ALS, the diagnosis can come as […]

MPs give ALS a voice in Parliament

In 2016, a group of parliamentarians and senators from all major political parties united to bring awareness to the challenges facing Canadians living with ALS. Chaired by Francis Drouin, MP for Glengarry-Prescott-Russell, the creation of the ALS Caucus on Parliament Hill was a significant achievement, and ALS Canada is proud to have played a role […]

Awareness Month Round-Up

As the month of June wraps up, so too does ALS Awareness Month. Over the past several weeks, ALS Canada has invited you to #SeizeTodayALS by telling us how you have chosen to find joy and laughter in every day, despite the challenges of living with ALS. We have been privileged to share the stories […]

ALS Canada Research Update

ALS research is at a significant tipping point, and we can now envision a future where ALS becomes a treatable condition. This was one of the highlights shared by Dr. David Taylor, Vice President of Research at ALS Canada, during a webinar presentation on June 13, 2017. The webinar was the first in a series […]