ALS researchers respond to the Ice Bucket Challenge

In 2014, the Ice Bucket Challenge became a viral social media sensation … and ALS researchers across the country – along with ALS Canada staff and supporters – responded to the challenge. For a full list of the researchers in the video, see below. ALS Canada Staff Dr. Richard Bedlack, Duke ALS Clinic, North Carolina Sneha […]

Bench Strength: The Power of Collaboration Fuels Canada’s ALS Research

It all started about five years ago, with worms in a Petri dish in a Canadian ALS researcher’s lab. Today, researchers are preparing to launch a Phase 2 clinical trial of the drug pimozide, which in a couple of months will begin recruiting participants at multiple locations across Canada. The story of how this discovery […]

Dr. Christen Shoesmith discusses the importance of donor support

Dr. Christen Shoesmith is the Director of the Motor Neuron Disease Clinic, a member of the London Health Sciences Centre, as well as a member of the Client Services Advisory Council and co-investigator for two ALS Canada clinical research fellowship grants. She is also the chair of the ALS Best Practice Recommendations. Why is donor support […]

Toilets are turning heads and raising awareness for ALS in the Soo!

Last summer when her mother Deloris was diagnosed with amyotrophic lateral sclerosis (ALS), Jennifer Tranberg decided to plan a community fundraising event in conjunction with members of her son’s hockey team, the Sault Ste. Marie Pee Wee Major AA Junior Greyhounds. With so many special events competing for charitable giving, Jennifer wanted to come up […]

Research Update, August 2017

ALS research is at a time of unprecedented advancement. New information on genes linked to ALS and the downstream effects of mutations in these genes has helped researchers to develop a so-called ‘roadmap’ of biological pathways that are important in ALS and to gain a better understanding of this complex disease. With new advancements being […]

Eric Martineau: ALS Researcher Profile

Eric Martineau is a PhD student in Richard Robitaille’s laboratory at l’Université de Montréal. In 2015, he received the ALS Canada Doctoral Research Award, which provides $25,000 per year over three years for young researchers to pursue a PhD in a Canadian laboratory. How long have you been studying ALS? I’ve been studying ALS since 2011 when I joined the […]

Audrey Labarre: ALS Researcher Profile

Audrey Labarre studies in Dr. Alex Parker’s lab at l’Université de Montréal. Could you tell us a little bit about your work? We’re working with the C. elegans, little worms one millimetre long. We use them to model the ALS disease. I’m interested in the gut microbiota – all your bacterial friends that are living […]

Elsa Tremblay – ALS and the Neuromuscular Junction

Updated October 20, 2017 Elsa Tremblay from l’Université de Montréal studies ALS because of a personal connection. Is there anything in particular that drew you to studying ALS? I went into ALS because my father died from ALS, and also my grandmother. So it’s pretty clear that ALS is running in the family…probably a genetic […]

Pimozide: Everything Old is New Again

Updated October 20, 2017 Very early in his medical training, Dr. Lawrence Korngut was introduced to the concept of ALS. “As a neurologist, I have always been very interested in the physical exam and ALS is the perfect example since the diagnosis is made entirely by physical exam,” said Dr. Korngut in an interview with […]

Dr. Christen Shoesmith – ALS Best Practice Recommendations

Updated November 28, 2017 A group of ALS clinicians across the country is developing Best Practice Recommendations to set a common standard of care for Canadians living with ALS. Dr. Christen Shoesmith of the London Health Sciences Centre explains. She will be speaking about the Canadian ALS Best Practice Recommendations at the Virtual Research Forum on […]

ALS Canada Webinar Series: Clinical Trials

Many people living with ALS and their families want to know how scientific discoveries move from basic research in the laboratory through different phases of clinical trials using human volunteers. They also want to understand why clinical research is required before a new therapy is approved and why it takes so long for researchers to […]

From Inquiry to Insight: Dr. Michael Strong

Updated October 20, 2017 Dr. Michael Strong has spent his career as a clinician scientist researching ALS with a determined curiosity and keen attention to new learning in the field. Over the years, people living with ALS and their families have been an ongoing source of inspiration to him. “The toughest thing in life is […]

Skin models for the study of ALS

Updated October 20, 2017 Bastien Paré from l’Université Laval has been studying ALS for more than five years. We spoke with him about his research and the future of ALS in Canada. Can you tell us about your ALS Canada-funded research? I’m quite different from most people that are working on neurons, and trying to understand […]

Every August Until A Cure

“Every August until a cure.” These five words were first spoken by ALS patient and advocate Pat Quinn upon accepting a Webby Award for his part in creating the Ice Bucket Challenge. The social media phenomenon and global sensation raised millions of dollars for charitable organizations dedicated to funding ALS research and support, and gave […]