2018 Virtual Research Forum

Banner image for the 3rd Annual Virtual Research Forum with science icons

Join us on Wednesday, October 17th for an engaging, eye-opening, online forum highlighting the latest in ALS research.

If you’re interested in the world of ALS research, you may also be interested in ALS Canada’s 2018 Virtual Research Forum.

It’s free to access and open to all.

You’ll get access to live presentations from Canada’s world-class ALS research community, international ALS researchers and experts who are excited to share their research and updates with you. What are researchers accomplishing and at what rate? How will this progress make a difference in the future? We invite you to gain a sneak peek into ALS laboratories from across the globe to learn how today’s research could lead to tomorrow’s treatments. We want to show you what dedicated, passionate and relentless researchers are doing toward a future without ALS. Join us.

For those who share our cause, you know that research represents hope and the good news is that there’s more to be hopeful about today than ever before.

Event Details

Date:  Wednesday, October 17, 2018
Time: 11:00 am – 6:00 pm ET
Online attendance only. Registration required.*




Session Speakers*

The Road to Personalized Medicine

  • Jeffrey Rothstein, Founder and Executive Director for the Answer ALS Research Program
    John W. Griffin Director for the Brain Science Institute (BSi); Professor of Neurology and Neuroscience
    Founding Director of the Robert Packard Center for ALS Research
    Johns Hopkins University School of Medicine
    Answer ALS
  • Jan Veldink, Professor of Neurology & Neurosurgery; Head of the Human Neurogenetics Unit UMC Utrecht
    Project MinE
  • Martin Turner, Professor of Clinical Neurology & Neuroscience; Lead Researcher on AMBRoSIA, University of Oxford
    John Radcliffe Hospital
    Project AMBRoSIA

Improving Quality of Life

  • Nick Ramsey, Professor of Neuroscience, Brain Center Rudolf Magnus
    University Medical Center Utrecht
    Breaking Barriers, connecting Brains to Machines
  • Kendra Berry, Occupational Therapist, Clinical Research Unit, Montreal Neurological Institute McGill University
    ALS Steering Wheel
  • To be announced!

Understanding Why ALS Occurs

  • Ekaterina Rogaeva, Chair in Research on Dementia with Lewy Bodies
    Professor Department of Neurology, Tanz Centre for Research in Neurodegenerative Disease
    University of Toronto
    The epigenetic study of age acceleration in C9orf72 carriers
  • Stefano Stifani & Mathilde Chaineau, Professor, Department of Neurology and Neurosurgery and Postdoctoral Fellow, Montreal Neurological Institute
    McGill University
    A platform to study human ALS in the lab
  • Gary Armstrong, Assistant Professor in the Department of Neurology and Neurosurgery Montreal Neurological Institute, McGill University
    Zebrafish models of ALS
  • Sahara Khademullah, Postdoctoral Fellow, Université Laval
    An Unlikely Suspect in ALS: Inhibitory Homeostasis

Experimental Treatments for ALS

  • Orphazyme
    Orphazyme’s trial of arimoclomol. What does a small biotech company really know about Patient-centric approaches?
  • Orion
    ODM-109: Oral Levosimendan in ALS
  • Mallinckrodt Pharmaceuticals
    A Study to Assess the Efficacy and Safety of H.P. Acthar® Gelin the treatment of Subjects With ALS.
  • Lorne Zinman & Agessandro Abrahao, Director of Sunnybrook ALS Clinic
    Associate Professor of Neurology and ALS/Neuromuscular Clinical Fellow
    Sunnybrook Research Institute, University of Toronto
    MRI-guided focused ultrasound: a new frontier in the delivery of biotherapeutics for ALS

Ask the Experts 

  • Dr. David Taylor, VP Research, ALS Canada and Dr. Angela Genge, Associate Professor, Department of Neurology and Neurosurgery, Director Clinical Research Unit, Montreal Neurological Institute, McGill University




Who Should Attend?

  • People affected by ALS | You know better than anyone, the importance of ALS research.
  • Caregiver Community | You provide or previously provided physical, emotional and
    other support for someone affected by ALS.
  • ALS Canada Donors | Your generosity makes ALS Canada’s work possible, and several
    of the speakers have received funding from ALS Canada as a direct result of donor support.
    Learn how your donations are making a difference.
  • Ambassadors | You stand behind the ALS cause and do all that you can to spread awareness.
  • ALS Researchers | You’ve dedicated your life’s work to discovering the root causes, connections and disconnects around the disease.
  • Pharmaceutical Companies | You’re involved in the development of drugs that may one day contribute to making ALS a treatable disease. You have drugs in the pipeline or that are already being used in clinical trials with ALS patients.

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