Almost 30 years living with ALS and volunteering just as long

ALS usually moves at a rapid pace but Sharon Carson has been living with the disease for almost 30 years. It started with loss of control in her hands and arms making it difficult for her to manage doorknobs, seatbelts, buttons, and shoelaces – and then restricting her ability to drive, dress herself, and eat […]

Walking for a common cause keeps the Bailis family connected

Brigitte Bailis is described by her three daughters as a friendly and easygoing woman that was more of a friend to them growing up than a mom. As someone who liked to run, salsa dance, cycle, and try new things, Brigitte was the kind of mom that her daughters wanted to go for coffee with. […]

WALK for ALS fundraiser inspired by the hope of future treatments

When Mike Rannie first noticed a problem in his right hand in October 2016, he assumed it had something to do with the arthritis he had been living with for 14 years. In fact, the lack of mobility was an early symptom of ALS. After a series of tests and consultations with neurologists, Mike received […]

Richard and Heather leave gifts of hope for the future

Richard Ellis and Dr. Heather Durham are two people who have each been affected by the realities of ALS, but in very different ways. Having witnessed the physical and emotional tolls of the disease, Richard and Heather each decided to leave a gift to ALS Canada in their wills — gifts that will bring hope […]

Making life better for people living with ALS today inspires couple to pay it forward

Sandy and Mark Vivarais’ three-year-old grandson, Keaten, is a ray of sunshine in their daily lives, especially now that Mark has been diagnosed with ALS. Keaten is also a great little helper. He loves to put Mark’s socks on and comb his hair for him, simple tasks Mark can no longer complete on his own. Keaten […]

Kingston family raises funds, awareness and hope for a future without ALS

Joe Pacheco has found a way to channel his ALS diagnosis into positivity and a renewed sense of purpose to support others. Having been diagnosed in late 2012, he has been living with the disease for almost six years — time he has used to help raise funds, awareness and hope for a disease with […]

A decade of strength, support and hope in Georgetown/Acton

Over the past decade, members of the Georgetown/Acton community have rallied together to help people and families living with ALS make the most of every moment, raising $1.6 million for ALS Canada — funds that provide help to those living with the disease today and hope in the form of research investment for a future […]

Can microscopic bubbles in our blood deliver ALS therapies effectively?

One of the hallmark characteristics of ALS is the clumping of proteins in motor neurons that are believed to cause toxicity and eventual death of the motor neurons, resulting in the loss of muscle control and mobility, and eventually, the abilities to eat and breathe. Many scientists are looking for ways to eliminate protein clumping […]

A Mother’s Day story of love and devotion

Chris Silva’s mom Darlene was diagnosed with ALS on Mothers’ Day in 2016. She was 48 years old, a single parent, and devoted to her two sons. “It was all about me and my brother,” says Chris, who remembers his mother as “the most important person in my life. She was both parents to me.” […]

Halton family challenges ALS by giving back to the community

When Mike and Carmen Cels participated in the Ice Bucket Challenge in 2014, they had no idea that ALS would affect them on a personal level. Both professionals in the pharmaceutical industry, they were peripherally aware of the disease at the time; however, it wasn’t until Mike was diagnosed with ALS in 2017 that they […]