The Do’s and Dont’s of Pulling a Plane

The countdown is on to ALS Canada’s Plane Pull to End ALS. With only two days until the event, we wanted to help get you in the right frame of mind and give you some advice to consider. Pulling a plane isn’t something that most people have done and there really isn’t a lot of […]

Pulling together – with our sponsors – to end ALS

It takes a lot of people to develop and execute an incredible fundraising event — and establishing and nurturing strong relationships is critical to its success. Our partners have demonstrated commitment, dedication and enthusiasm for the upcoming Plane Pull to End ALS and we wanted to take this opportunity to highlight their contributions. Thank you […]

ALS Research Update, October 2018

ALS research is at a time of unprecedented advancement and Canada’s world-class ALS research community – along with international ALS researchers and experts – are accomplishing more than ever before. With new advancements being announced daily, the ALS Canada Research Program team regularly summarizes what we believe are the most significant research discoveries. We’re excited […]

A Thanksgiving reminder to treasure those we care about

Today, on a day when many Canadians are sharing a meal and thinking about their blessings, Tammy Fasken is giving thanks for her family, friends and network of formal and informal supports who are the reason she is alive today. Tammy has been living with ALS for three years, receiving the diagnosis after more than […]

Health Canada has approved Radicava (edaravone), a second ALS treatment for Canadians

Highlights: On October 4, Health Canada approved Radicava (edaravone) for the treatment of ALS. Health Canada’s terminology for this approval is called a Notice of Compliance, or NOC. The approval follows a 180-day priority review of the drug. Approval from Health Canada means that Radicava (edaravone) can be marketed and sold in Canada. Other considerations, […]

Power in Numbers

Updated October 17, 2018 The first ALS gene was discovered over two decades ago. By the end of 2017, scientists had found more than 25 genes. By studying these genes that are involved in familial ALS, which accounts for 5 to 10 per cent of ALS cases, researchers hope to learn more about the 90 […]