Published in Advocacy on May 30, 2019
ALS is always about time. How much time do I have? How much time until I can’t hug my children? How much time until I can no longer walk, or eat, or breathe? It’s about time we change that. It’s about time we stop ALS from shattering dreams, from devastating lives. It’s about time to […]
Published in Stories on May 29, 2019
Kyla and Vaughn visited their Great Uncle Murray in Thunder Bay a couple summers ago, making the trip all the way from Colorado. It was their first time meeting someone with ALS, and they were both affected deeply by the experience – choosing to write about it for school assignments later that year. Thank you […]
Published in Events, Walk To End ALS on May 29, 2019
Tags: 2019-personal-stories, als canada, als ontario, ALS research, als support, clinical trials als, end als, finding a cure for als, funding als, funding als research, funding als trials, funding research for als, researching als, the walk to end als, walk to end als
Talking about his dad’s ALS diagnosis, Connor Stratton, 17, says, “It’s a hard thing to understand at times, but it’s good to try to look at the bright side because my dad still has his spirits up. He’s still happy around us, and that’s something that reflects on all of us.” Kerry Stratton, a well-known […]
Published in Events, Walk To End ALS on May 29, 2019
Tags: 2019-personal-stories, als canada, als clinical trials, als ontario support, ALS research, als support, clinical trials als, end als, finding a cure for als, funding als, funding als research, funding als trials, support als ontario, the walk to end als, walk to end als
Since receiving his ALS diagnosis in February 2018, Mark Ianniello’s life has changed in profound ways. He is a 49-year-old father to three teenagers and can no longer work to help support his family. ALS has affected his speech and his mobility. Mark admits to having ups and downs. Despite the challenges, he says ALS […]
Published in Events, Walk To End ALS on May 23, 2019
Tags: 2019-personal-stories, ALS, als cure, als research is important, als research matters, Amyotrophic lateral sclerosis, Amyotrophic lateral sclerosis cure, motor neuron disease, treating als, walk to end als
For the past 40 years, Dale Hodgins has been saving lives as a paramedic and volunteer firefighter in Kingston, Ontario. In December 2018, he was diagnosed with ALS – a disease he was already familiar with through his work. As far back as the 80s and 90s, Dale remembers driving people living with ALS home […]
Published in Research on May 15, 2019
Tags: als-research-profile
Microglia are the primary immune cells of the brain and spinal cord. They patrol the central nervous system to track down and dispose of unwanted cellular debris and dead neurons, as well as organisms like bacteria and viruses that pose a threat of infection. When they detect invaders, they change their behaviour to summon the […]
Published in Events, Walk To End ALS on May 15, 2019
Tags: 2019-personal-stories, ALS, als cure, als research is important, als research matters, Amyotrophic lateral sclerosis, Amyotrophic lateral sclerosis cure, finding a cure for als, finding a cure for motor neurone disease, motor neuron disease, motor neurone disease cure, treating als, walk to end als
According to Kevin, there’s one word that sums up ALS: a thief. “ALS is a thief – and a remorseless one at that,” he explains in writing. Now that he can no longer speak, he uses eye gaze technology to type messages with his eyes – his only method of communicating. “The sooner we can arrest […]
Published in Stories, WALK for ALS on May 9, 2019
Tags: 2019 walks, 2019-personal-stories, als donations, als fundraising, ALS research, donations to als, finding a cure, finding a cure to als, how to help people with als, how to help people with als peterborough, peterborough walk 2019, research for als, walk to end als
Entering his 60’s, Ed Parcells was in the best shape of his life. He ran most mornings, cycled 60-100 km a few times a week, and played hockey on a regular basis. At the time, he and his wife Ev had sold their house and were looking forward to travelling and enjoying their retirement together. […]
Published in Research on May 8, 2019
Tags: als-research-profile
When someone has a disease, like ALS, their quality of life is affected in many different ways as the disease progresses. “Quality of life can mean many different things to different people. For some, it means functional abilities, like walking to the mailbox, but for others, it may mean leisure activities, or family and social […]
