Published in Advocacy on June 25, 2019
Tags: 2019-personal-stories, ALS awareness, ALS Awareness Month, als stories, finding a cure for als, funding als research, fundraising
Miles4Matty is part of Adam Foley’s search for meaning after losing his brother, Matthew (aka Matty), who passed of ALS in 2014 at the age of 38. Adam and Matthew were roommates at the time of the diagnosis. When Matthew’s mobility became a significant challenge, they moved into a more accessible apartment together where Adam […]
Published in Advocacy, Fund Development on June 24, 2019
Tags: advocacy, als cure, Donate to ALS, donating to ALS, edaravone, find a cure for ALS, fundraising, research funding, Research update
Every day, more than 3,000 people and families throughout Ontario and Canada live with the realities of ALS, a devastating disease that takes away dreams, abilities, and lives. But for all ALS takes, it cannot take away our shared desire for a future without this disease. We rely on you – our generous donors – […]
Published in Events, Walk To End ALS on June 21, 2019
Tags: 2019-personal-stories, ALS awareness, ALS Awareness Month, als stories, community, families with ALS, finding a cure for als, living with ALS, walk to end als
On June 15, Don Doan participated in the Walk to End ALS in Brampton for the fourth time. It’s been three years since he was able to walk the course, but his positive outlook hasn’t changed. There are always people around, including his wife, Pam, to help with his wheelchair. “Generally, it’s a fight over […]
Published in Events, Walk To End ALS on June 20, 2019
Tags: 2019-personal-stories, advocacy, ALS, ALS awareness, ALS Awareness Month, community, families with ALS, funding als research
Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk without assistance. “Now that I am living with ALS, the roles are a bit reversed,” […]
Published in Events, Walk To End ALS on June 18, 2019
Tags: ALS researching, find a cure for ALS, finding a cure for als, funding als research, how to live with als, living with ALS, motor neuron disease
Lise Michaud’s brother, Eddy Lefrançois, made every day count. He lived nearly three decades with ALS, proudly defying the odds and outliving his “expiry date” (EXP: 04.97) which he tattooed on the inside of his forearm as a reminder to live with passion and purpose. Eddy’s personal motto – “Let’s Roll” – always kept him […]
Published in Walk To End ALS on June 13, 2019
Tags: als canada, als diagnosis, ALS research, als society of canada, Donate to ALS, donate to als research, donating to ALS, finding a cure for als, finding out you have ALS, having als, how to handle als, supporting people with als, walk to end als
At the rink where he has coached boys’ ice hockey for more than 10 years, Adam Welburn-Ross, 43, is fondly known as “Coach Sunshine.” He wears his positivity as a badge of honour and now that he is living with ALS, his disposition is helping everyone around him appreciate every precious moment of the day. […]
Published in Events, Walk To End ALS on June 6, 2019
Tags: 2019-personal-stories, ALS research, Donate to ALS, donating to ALS, finding a cure for als, fundraise for ALS, fundraising for als, how to donate to ALS, How to donate to ALS research, how to help ALS, how to help people with als, walk to end als
An active mother of three young children, Stephanie Christiansen Hall wants people to know she has ALS – but she wants everyone to know that her disease is only part of her story. Apart from living with ALS, Stephanie is – and has always been – a selfless person with a positive nature, a desire […]
Published in Events, Walk To End ALS on June 3, 2019
Tags: 2019-personal-stories, ALS funding, ALS research, ALS research and funding, canadian ALS research, find a cure for ALS, finding a cure for als, funding als research
Brian Bower has always been passionate about sports. Above all, he is an ardent fisherman, known on occasion to snatch 15 minutes from his day for the joy of casting a line in one of the abundant waterways in and around Welland, where he lives. Brian also loves soccer, tennis, lacrosse, hockey and baseball. An […]
