Published in Fund Development, Stories on August 23, 2019
Tags: 2019-personal-stories, ALS, ALS research, als stories, caregiving, Donate to ALS, Every August, Every August Until A Cure, families with ALS, fundraising, Ice Bucket Challenge, support
Five years ago, when the ALS Ice Bucket Challenge went viral in 2014, Mario knew very little about ALS, and had no idea how it would affect his life. Because of a co-worker whose dad was living with ALS, Mario completed the ALS Ice Bucket Challenge. “Once I got tagged in a post there was […]
Published in Research, Stories on August 15, 2019
Tags: 2019-personal-stories, ALS Canada Research Program, ALS research, als stories, Donate to ALS, Every August, Every August Until A Cure, find a cure for ALS, funding als research, fundraising, Ice Bucket Challenge, living with ALS, motor neuron disease
Margot Algie heard about the ALS Ice Bucket Challenge in 2014 through friends and had no idea that only one year later, she would be diagnosed with the disease. Since then, she has come to understand firsthand the importance of maintaining the momentum of the viral social media phenomenon that resulted in a $21.5M investment […]
Published in Fund Development on August 12, 2019
Tags: community engagement, Donate to ALS, donating to ALS, finding a cure for als, funding als research, fundraising, Get Involved, How to donate to ALS research, research funding
In late 2018, Facebook began offering the option for Canadians to create fundraisers for nonprofit organizations or for personal causes. Since then many of you have reached out to us with questions about how these giving options can be used to support ALS Canada. We know Facebook can be a quick and easy way to […]
Published in Research, Stories on August 9, 2019
Tags: 2019-personal-stories, ALS Canada Research Program, als cure, ALS research, Donate to ALS, Every August, find a cure for ALS, funding als research, fundraising, genetic research, motor neuron disease, research, women in science
“When you start researching ALS, it becomes a life mission,” says Dr. Janice Robertson, a prominent figure in the ALS research community in Canada and abroad. Dr. Robertson is studying variations within the brain and spinal cord of people living with ALS using two powerful new technologies that allow researchers to examine the nuclei of […]
Published in Research, Stories, Volunteers on August 2, 2019
Tags: 2019-personal-stories, ALS Canada Research Program, als cure, ALS research, caregiving, Donate to ALS, Every August, Every August Until A Cure, fundraising, Ice Bucket Challenge, living with ALS, motor neuron disease
Beth Robertson’s husband, Tim, lived courageously with ALS for 12 years. He was sustained by the loving presence of his wife, Beth, his three children, and a large network of family and friends. Beth says she would do it all over again for Tim, but she admits ALS is a terrible burden for everyone it […]