June 2020 PMPRB Draft Guidelines

Published in Advocacy on July 31, 2020

Updated August 5, 2020  BACKGROUND: In December 2017, the federal government proposed amendments to the Patented Medicines Regulations. These guidelines govern how the Patented Medicine Prices Review Board (PMPRB) sets the price at which companies sell their drug to distributors across the country. The PMPRB Amended Regulations were published in August 2018 in the Canada […]

For What Counts: ALS Canada’s 2019 Annual Report

Published in Stories, Support & Services, Update on July 28, 2020

Now is the time for change. More than 3,000 people and families throughout Canada continue to face the profound emotional, financial, and psychological impact of living with ALS. Their collective experience is core to every action we take and decision we make. And every person affected by this devastating disease is reason enough for our […]

ALS Canada community support services continue to evolve during COVID-19

Published in Support & Services, Update on July 17, 2020

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How support services are changing In the wake of the COVID-19 pandemic, our number one priority was to support the safety of the ALS community and our staff, and as a result, we quickly pivoted to moving all ALS Canada office staff to working remotely from home and made changes to our service model to […]