A single mom living with ALS has high hopes for Lou Gehrig Day

For Taya Jones, a single mother of three, there has been one silver lining during COVID-19, and that has been making memories with her children in the evenings, after work and school. “We’ve been isolated together for more than a year, and it’s been probably the best year of my life because of that. ALS […]

Could inflammation in this pathway provide a new target for ALS therapies?

A newly identified pathway has been piquing research interest around the world for its possible role in ALS. Recently, Canadian virologist Dr. Honglin Luo, in collaboration with her colleague Dr. Neil Cashman, discovered that an immune pathway known as cGAS-STING – a catchier abbreviation for cyclic GMP-AMP synthase-stimulator of interferon genes – is activated by […]

How new drugs become approved and accessible to Canadians

Earlier this year, manufacturer Amylyx announced that it plans to pursue Health Canada approval for its AMX0035 therapy. We’ve updated the blog post we first published back in 2018 about how new drugs become accessible in Canada to help orient you to the steps involved, their purpose, the milestones along the way and the timelines […]

Lou Gehrig Day: A call to action from a former NHLer

Mark Kirton faces ALS with the mindset of a pro athlete. He played in the National Hockey League from 1978 to 1988 for Toronto, Detroit and Vancouver and then followed that up with a successful career in real estate in Oakville, which he still runs from home. In the spring of 2015, Mark started feeling […]

A family of Blue Jays fans cheers on Lou Gehrig Day

Baseball has always been a special part of the Cels family. Mike Cels played the sport through high school, switching to slow pitch as an adult and playing it at a competitive level for most of his adult life. After he was diagnosed with ALS in 2017, he and his wife Carmen checked off a […]

ALS Canada Strengthens Board of Directors with four new appointments in 2021/22

We are pleased to extend a warm welcome to Alyssa Barry, Ken Chan, Elizabeth Gandolfi and Dr. Angela Genge who recently joined the ALS Canada Board of Directors. Alyssa Barry became connected to the ALS community when her uncle was diagnosed with ALS. In addition to a personal connected to the cause, she brings to […]

ALS Canada thanks outgoing Board members for their commitment to a future without ALS

With deep appreciation for their contributions of time and expertise, we thank Carol Cottrill, Daniel Riverso and Vincent Quinn whose terms on the ALS Canada Board of Directors have come to an end, and Josette Melanson who becomes Past Chair after serving as Chair of the Board since 2019. Appointed to the Board in 2017, […]

ALS Canada Advocacy Update

Welcome to ALS Canada’s first Advocacy Update. This new blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government.  Please note that because ALS Canada advocates federally and provincially within Ontario, these updates will primarily feature updates from […]

Giving the gift of hope with a gift of tomorrow

Richard Ellis and Cathy Payne met on the first day of high school and they immediately became friends.  Their friendship continued throughout university, as they grew into adulthood and began their careers, up until her passing in 2004 at the young age of 41. News of Cathy’s diagnosis came as a shock to Richard because […]