About Us

Founded in 1977, the ALS Society of Canada (ALS Canada) and our provincial partners are dedicated to supporting Canadians living with ALS and investing in research to make ALS a treatable, not terminal, disease. We are a registered charity that receives no government funding – all of our services and research are funded through the generosity of our donors.

Through the ALS Canada Research Program, we fund peer-reviewed research grants, foster collaboration and build capacity within Canada’s ALS research community, and participate in new areas of research where we are well-positioned to have an impact.

Within Ontario, ALS Canada has a role similar to that of the provincial ALS societies providing services and support to help meet the needs of people living with ALS.

Through advocacy federally and provincially within Ontario, ALS Canada gives voice to the collective experience of people living with ALS to help drive program and system changes for the ALS community.

Vision, Mission, Values

Our vision is a future without ALS.

Our mission is our everyday journey as an organization:

We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS.

Our values are the principles that guide our work every day:

  • Accountability
  • Collaboration
  • Compassion
  • Integrity
  • Resiliency
  • Respect

Strategic Plan

In 2016 – 2017 ALS Canada embarked on an ambitious process to engage the ALS community and to learn from others as we sought to create a vision for the future and set a strategic plan to get there.

In April 2018, our Board of Directors approved our 2018 to 2023 strategic plan. This plan will guide ALS Canada through the next stage of our growth and development with a focus on three strategic impacts:

  1. People affected by ALS receive the best possible standard of care.
  2. More treatments are available to improve quality of life and extend lifespan.
  3. People are empowered to make informed decisions about ALS.

There is an inherent understanding that these strategic impacts require a collective effort and speak to how the lives of people affected by ALS will be different. It is understood that no one organization can or will create this future state; it will take the global ALS community working together to achieve these outcomes.