At ALS Canada, we have the privilege and responsibility of connecting every day with people who are living with ALS and supporting them in their journey. They are our clients, our colleagues, and our friends. We see firsthand the tremendous burden of the disease – physically, psychologically and financially. The realities of ALS are harsh – and they reinforce the need for better government support and access within the healthcare system.
We engage with federal and provincial governments to represent the voices and experiences of people living with ALS and to advocate for policy changes and funding that will have a meaningful impact on people living with ALS today and in the future. We also engage at the local level with health care providers and agencies to help the people we support access services and other resources that can lessen the burden of living with ALS.