Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

What is the role of a newly discovered protein in ALS?


Myriam Gagné was not expecting to work on ALS research. But the first time she saw Dr. Christine Vande Velde’s lab at l’Université de Montréal, it was “love at first sight.” Studying ALS would allow her to combine basic cell...

Posted in: Research

Is an experimental drug that can prevent abnormal protein behaviour in ALS already out there?


When Marc Shenouda first learned about ALS as an undergraduate science student, he found himself asking many questions: Why is the average life expectancy only two to five years after diagnosis? Why is there is no cure yet? How can...

Posted in: Research

Giving back honours a father’s sacrifice and untimely passing


Lolo Lam has a deep sense of gratitude for the sacrifices her parents made leaving Hong Kong so she and her two brothers could have a better life in Canada. She was only a child at the time, but she...

Posted in: Advocacy, Stories

The end of the year brings reflection and renewed perspective


“ALS is not for the weak of heart,” says Martha Williams whose husband, Scott, has been living with a slow-progressing form of ALS since 2015. The symptoms may be slow-moving compared to the rapid decline some ALS patients experience, but...

Posted in: Stories

When you live with ALS, you can’t afford to take time for granted


Peter Wood has never taken time for granted, especially moments in the presence of his two young children. “Every day counts when you can’t take for granted that you’ll have enough time together,” he says. “I wish I could still...

Posted in: Stories

Holiday gatherings connect family and honour a mother’s memory


Mahek Kaur is a 15-year-old first generation Canadian with strong cultural roots to her parents’ homeland in Punjab, India. “The importance of family connections is ingrained in us,” she says. “We have huge families and we stick together.” [caption id="attachment_9296"...

Posted in: Stories