The ALS Canada Blog is a pilot project. We will be working towards publishing content in both English and French in the coming months. Please refer to the “Français” category to access blog posts that are available in French at this time.

Le blogue de la Société canadienne de la SLA est un projet pilote. Nous poursuivrons des travaux sur la publication d’un contenu de blogue en anglais et en français dans les mois à venir. Veuillez consulter la catégorie « Français » pour accéder aux entrées de blogue qui sont disponibles en français en ce moment.

The emotional challenges of ALS

Below the surface


When someone hears about ALS, the first thought is often about the loss of physical function; for example, the progressive inability to walk, talk, eat, swallow, and eventually, breathe. Losing these functions one by one can be profoundly difficult on...

Posted in: Stories

Wrapping up ALS Awareness Month

Who do you give for?


ALS Awareness Month is all about telling stories. Over the course of the month of June, people and families affected by ALS shared their personal stories about why they gave and who they gave for. On June 27, 2018, Dr. David...

Posted in: Events

Mother and daughter caregiving team reach out with love and compassion


When Emma and Tom Belen decided to share the tragic news of Tom’s ALS diagnosis with their two daughters at a Sunday lunch gathering in March 2011, their eldest daughter, Stephanie, surprised them both. She decided to announce her pregnancy...

Posted in: Events

Healing through giving: A daughter’s story


It was Noella LeBlanc’s father who was diagnosed with ALS, but she believes the disease was responsible for her mother’s death, too. “The two of them had been joined at the hip for nearly 50 years, raising their children and...

Posted in: Events

Enduring love of a ‘forever husband’ inspires hope


ALS took the love of her life in September 2017, but Debbie Caswell’s love for her husband Jamie is still the light that guides her. This June Awareness Month marks their first wedding anniversary. At the time of the ceremony,...

Posted in: Events

A Caregiver’s Story, Part 3: Looking forward, looking back

Part three of a three-part series


Jess Gustafson says she will never forget the first time she met Lianne, the ALS Canada Regional Manager in her area. Lianne came and sat with Jess and her husband, Alan, on their front porch to talk to them about...

Posted in: Events