Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
Tips for successful virtual fundraising
September 28, 2020
Every year, hundreds of community events take place across Ontario, raising critical awareness and funds toward a future without ALS. With the pandemic changing the way we work, dine and live, our dedicated community is adapting how they fundraise, too.... Read More
ALS Research Update, August 2020
August 31, 2020
The ALS Canada Research Program is encouraged by the continued momentum seen in ALS research at a time when support for it is more important than ever before. Read about the progress researchers have made in advancing new treatment strategies,... Read More
COVID-19 and the impact of your donor dollars
August 27, 2020
Because of supporters like you, in addition to the $10,000 match that was offered by ALS Canada’s dear friend, Deirdre, $24,000 was raised for the ALS Canada COVID-19 Urgent Response Fund and it has helped to evolve our programs for... Read More
June 2020 PMPRB Draft Guidelines
July 31, 2020
Updated August 5, 2020 BACKGROUND: In December 2017, the federal government proposed amendments to the Patented Medicines Regulations. These guidelines govern how the Patented Medicine Prices Review Board (PMPRB) sets the price at which companies sell their drug to distributors... Read More
Posted in: Advocacy
For What Counts: ALS Canada’s 2019 Annual Report
July 28, 2020
Now is the time for change. More than 3,000 people and families throughout Canada continue to face the profound emotional, financial, and psychological impact of living with ALS. Their collective experience is core to every action we take and decision... Read More
ALS Canada community support services continue to evolve during COVID-19
July 17, 2020
How support services are changing In the wake of the COVID-19 pandemic, our number one priority was to support the safety of the ALS community and our staff, and as a result, we quickly pivoted to moving all ALS Canada... Read More