Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
Your messages of hope, strength and resiliency during the holiday season
December 23, 2020
What is community? It’s where we find people with whom we can share experiences. Community is where we are relentless in our efforts to change ALS forever. It’s where we come together and use our voice to fight for each... Read More
Posted in: Stories
My brother Andrew, my only sibling, my closest friend.
December 4, 2020
Stories like the one below from the community are so important and really help people feel connected to one another. Right now we are collecting short stories and messages of hope from people like you so that we can share... Read More
Posted in: Stories
ALS Research Update, November 2020
November 25, 2020
While 2020 has been an unpredictable and challenging year on many fronts, the ALS Canada Research Program continues to observe positive momentum in ALS research. This month you’ll learn about results from two different Phase 2 clinical trials in ALS;... Read More
Tagged:
ALS gave me a different perspective
November 24, 2020
Here and now. After a year and a half of undiagnosed symptoms and testing, in November of 2018 I was diagnosed with ALS. I really remember that day as a transformative one. One moment my doctor was dropping the weight... Read More
Ice Bucket Challenge Proceeds Help Fund First Canadian ALS Care and Management Guideline
Best practice recommendations establish national standard and address issues important to care in Canada
November 16, 2020
Toronto - The Ice Bucket Challenge continues to make an impact. Proceeds from the highly successful 2014 viral sensation have helped fund a comprehensive new resource to guide efforts to ensure people living with ALS in Canada receive the best... Read More
Posted in: Research
ALS Doesn’t Stop – So Neither Can Research Investment
November 12, 2020
The ALS Canada Research Program awards $650K for three innovative new research initiatives, with an additional $1 million to be announced in 2021 TORONTO – The ALS Society of Canada today announced that as part of its 2020 research commitment,... Read More
Posted in: Research