Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Creating with her hands until she no longer can


When Shelly Gregory first noticed her speech was slurred two years ago, she drove herself to the hospital in Belleville thinking she was having a stroke. Eight months later, in May 2018, she learned she had bulbar onset amyotrophic lateral...

Posted in: Stories, Walk To End ALS

Walking to end ALS when ALS runs in the family


It wasn’t until her own diagnosis that Jackie learned ALS can be passed on through generations. Jackie Pasch, 55, was diagnosed with familial ALS almost a year ago. Shortly after, she lost the use of her left arm and developed...

Posted in: Stories, Walk To End ALS

Finding ways to make a meaningful difference while living with ALS


Until he was diagnosed with ALS in 2016, Alan Medcalf spent his adult life “in love with movement.” He was a snowboarder, cross-country skier, unicyclist, cyclist and competed as a runner, swimmer and triathlete. After a second hip replacement he...

Posted in: Stories, Walk To End ALS

ALS Research Update | August 2019


What’s happening in the world of ALS research at this point in the year? Read about the progress researchers have made in developing new and better models to study ALS in the lab, insights gained into the progression of ALS...

Posted in: Research

Mother and son hold on to precious time left together


[caption id="attachment_8469" align="alignleft" width="228"] Click to watch Mario Cleroux's Ice Bucket Challenge[/caption] Five years ago, when the ALS Ice Bucket Challenge went viral in 2014, Mario knew very little about ALS, and had no idea how it would affect his...

From ice bucket to bucket list: how Margot is coping with ALS


Margot Algie heard about the ALS Ice Bucket Challenge in 2014 through friends and had no idea that only one year later, she would be diagnosed with the disease. Since then, she has come to understand firsthand the importance of...

Posted in: Research, Stories