Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
Loss and healing: A 900-km bike ride to drive ALS awareness
Adam Foley set to take on epic cycling trip after loss of his brother
June 25, 2019
Miles4Matty is part of Adam Foley’s search for meaning after losing his brother, Matthew (aka Matty), who passed of ALS in 2014 at the age of 38. Adam and Matthew were roommates at the time of the diagnosis. When Matthew’s... Read More
Posted in: Advocacy
Because Of You: ALS Canada’s 2018 Annual Report
June 24, 2019
Every day, more than 3,000 people and families throughout Ontario and Canada live with the realities of ALS, a devastating disease that takes away dreams, abilities, and lives. But for all ALS takes, it cannot take away our shared desire... Read More
From the Boston Marathon to the Walk to End ALS
In the face of an ALS diagnosis, Don Doan is committed to staying active
June 21, 2019
On June 15, Don Doan participated in the Walk to End ALS in Brampton for the fourth time. It’s been three years since he was able to walk the course, but his positive outlook hasn’t changed. There are always people... Read More
Fighting for more time – to dream, to live, to be with loved ones
June 20, 2019
Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk... Read More
Walking in memory fuels hope and strengthens community
June 18, 2019
Lise Michaud’s brother, Eddy Lefrançois, made every day count. He lived nearly three decades with ALS, proudly defying the odds and outliving his “expiry date” (EXP: 04.97) which he tattooed on the inside of his forearm as a reminder to... Read More
Coach Sunshine’s ‘never quit attitude’ can help change the future of ALS
June 13, 2019
At the rink where he has coached boys’ ice hockey for more than 10 years, Adam Welburn-Ross, 43, is fondly known as “Coach Sunshine.” He wears his positivity as a badge of honour and now that he is living with... Read More
Posted in: Walk To End ALS