Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Top 10 research stories of 2018


Last year, major scientific advances in Canada and internationally led to significant and exciting progress in ALS research. Discoveries that increase our understanding of ALS are happening far more often than ever before, and as a result many new experimental...

Posted in: Research
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Young mother of three adapts to life with ALS


For many people, the holidays are a special time for making memories and spending quality time with friends and loved ones. For 29 year-old mother of three, Stephanie, these quality moments became all the more meaningful since she was diagnosed...

Posted in: Stories
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Holiday Gift Ideas

For someone caring for a loved one living with ALS


Looking after a family member or close friend who is living with ALS is a precious act of love and devotion. It is often a full-time commitment that demands a lot of physical and emotional energy, making it challenging to...

Posted in: Support & Services
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ALS Society of Canada dedicates last of the matched Ice Bucket Challenge research funding to early-career researchers in pursuit of a future without ALS


2018 funding competition with Brain Canada results in $720,000 for six trainee awards – more trainee awards in a single year than ever before TORONTO December 13, 2018 – The ALS Society of Canada (ALS Canada), together with Brain Canada, today...

Posted in: Research

An author’s “silent rebellion” against ALS


Prior to 2009, Zehra Madenli was an active college student, studying Fashion Management at George Brown College in Toronto. She was talkative and outgoing, and loved spending time outdoors. Everything changed when Zehra was diagnosed with ALS. Within 12 months...

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Keeping hope alive this holiday season

Giving Tuesday 2018


2018 has been a year of promising discoveries and encouraging clinical trials, but ALS continues to rob countless moments from too many families – families like the Corbers who know all too well the gaps ALS can leave in people’s...