The ALS Canada Blog is a pilot project. We will be working towards publishing content in both English and French in the coming months. Please refer to the “Français” category to access blog posts that are available in French at this time.

Le blogue de la Société canadienne de la SLA est un projet pilote. Nous poursuivrons des travaux sur la publication d’un contenu de blogue en anglais et en français dans les mois à venir. Veuillez consulter la catégorie « Français » pour accéder aux entrées de blogue qui sont disponibles en français en ce moment.

“Compassion is what drives us.”


National Volunteer Week: Geneviève Bertrand Many of us who contribute to the work of ALS Canada as volunteers have a personal connection to ALS, whether we are living with the disease ourselves, or supporting or remembering a close family member, friend,...

Posted in: Volunteers

“When you are loved, you have everything:” ALS Canada ambassador Eddy Lefrançois reflects on 25 years living with ALS


Like many young people, 22-year-old Eddy Lefrançois had carefully mapped out his future and had a vision of how his life would be. Then, on April 14, 1992, his doctor delivered the news that Eddy had ALS. That day and...

Posted in: Stories

Upcoming Webinar: The Canadian ALS Neuroimaging Consortium (CALSNIC)


Webinar: The Canadian ALS Neuroimaging Consortium (CALSNIC) Monday, April 24 at 12:00 PM Eastern Time: 30 minutes + questions Hosted by: Dr. Sanjay Kalra Click here to register for the Webinar During this webinar you can expect to learn how...

Posted in: Events, Research

National Family Caregiver Day: A conversation with ALS Caregiver Jonathan Corber


Jonathan Corber is an ALS Canada Ambassador. After his mother, Wendy, was diagnosed with ALS in February 2016, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Jonathan took some...

Posted in: Stories

Trevor and Jennifer: Finding love while living with ALS


This Valentine’s Day, we would like to highlight Trevor and Jennifer’s story about finding love while living with ALS. - Trevor was my first love in high school. Although short term, the strong connection we had was never forgotten. We...

Posted in: Stories

Living with ALS during the Holidays: the Peacock Family


When a friend or loved one is living with ALS, the holiday season can be a difficult time. This is certainly true for the Peacock family ever since husband and father Jeff was diagnosed with ALS three years ago. This...

Posted in: Stories