The ALS Canada Blog is a pilot project. We will be working towards publishing content in both English and French in the coming months. Please refer to the “Français” category to access blog posts that are available in French at this time.

Le blogue de la Société canadienne de la SLA est un projet pilote. Nous poursuivrons des travaux sur la publication d’un contenu de blogue en anglais et en français dans les mois à venir. Veuillez consulter la catégorie « Français » pour accéder aux entrées de blogue qui sont disponibles en français en ce moment.

How a grandson learned to cherish every moment


When Fabio talks about his grandmother Giuseppina, the love and respect he has for her is unmistakable. The woman he describes is warm, fun-spirited and hard-working; a woman who would do anything for the ones she loves. As the eldest...

Posted in: Stories

From grief to hope: how my grandfather’s ALS diagnosis gave me purpose


From a very young age, my grandfather and I had a special connection. I remember as a young girl, he and my grandmother would go to Portugal for six months at a time. When they returned, I refused to leave...

Posted in: Stories

“I am so much more than my physical abilities”


The only muscles Jeff can fully control are behind his eyes. He lives with ALS, but that hasn’t stopped him from staying fully engaged in life and finding purpose in helping others. That’s the way he’s always been, says his...

Posted in: Stories

A Daughter’s Resolution to Honour her Father


If you were to have asked Kimberley a couple years ago the definition of Amyotrophic Lateral Sclerosis, she would have admitted that she did not know. Medically speaking, the word “lateral” identifies the area where nerve cells in the spinal...

Posted in: Stories

Finding Comfort in Creativity


When life hands you an ALS diagnosis, the fear of the unknown can often prevent you from embracing the present. This is something Mary-Anne experienced first-hand three years ago, when she was diagnosed with ALS. During a vacation in Puerto...

Posted in: Stories

Eddy is Living Life on his Terms


When Eddy was diagnosed with ALS in 1992, he was given three to five years to live. His symptoms began with a weakness in his left hand that gradually progressed throughout his body. “Over the next 15 months I was...

Posted in: Stories