Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

June 2020 PMPRB Draft Guidelines


Updated August 5, 2020  BACKGROUND: In December 2017, the federal government proposed amendments to the Patented Medicines Regulations. These guidelines govern how the Patented Medicine Prices Review Board (PMPRB) sets the price at which companies sell their drug to distributors...

Posted in: Advocacy

For What Counts: ALS Canada’s 2019 Annual Report


Now is the time for change. More than 3,000 people and families throughout Canada continue to face the profound emotional, financial, and psychological impact of living with ALS. Their collective experience is core to every action we take and decision...

ALS Canada community support services continue to evolve during COVID-19


How support services are changing In the wake of the COVID-19 pandemic, our number one priority was to support the safety of the ALS community and our staff, and as a result, we quickly pivoted to moving all ALS Canada...

The virtual Walk to End ALS was a day to remember


I reached out to you on June 1 to invite you to join us in 21 Days to Make a Difference. You embraced the daily activities across social media platforms and openly shared your stories, photos, memories, and experiences. What...

Team “Living into a Cure” is keeping hope alive

It is possible to sustain hope even in the face of a terminal disease.


Charmaine Loverin, who was diagnosed with ALS last year, has stayed positive through tremendous change and upheaval imposed by the disease, especially during the COVID-19 crisis. She left her home and relocated to Belleville to live with her sister, Michelle,...

ALS Canada welcomes three new Board members in 2020/21


ALS Canada is pleased to welcome Catherine Bélanger, Richard Ellis and Lisa Flaifel to our Board of Directors. Comprised of senior leadership volunteers, our Board ensures ALS Canada is well-governed and donor dollars are maximized to serve our charitable purpose....

Posted in: Volunteers