Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Your messages of hope, strength and resiliency during the holiday season


What is community? It’s where we find people with whom we can share experiences. Community is where we are relentless in our efforts to change ALS forever. It’s where we come together and use our voice to fight for each...

Posted in: Stories

My brother Andrew, my only sibling, my closest friend.


Stories like the one below from the community are so important and really help people feel connected to one another. Right now we are collecting short stories and messages of hope from people like you so that we can share...

Posted in: Stories

ALS Research Update, November 2020


While 2020 has been an unpredictable and challenging year on many fronts, the ALS Canada Research Program continues to observe positive momentum in ALS research. This month you’ll learn about results from two different Phase 2 clinical trials in ALS;...

Posted in: Research, Update

ALS gave me a different perspective


Here and now. After a year and a half of undiagnosed symptoms and testing, in November of 2018 I was diagnosed with ALS. I really remember that day as a transformative one. One moment my doctor was dropping the weight...

Ice Bucket Challenge Proceeds Help Fund First Canadian ALS Care and Management Guideline

Best practice recommendations establish national standard and address issues important to care in Canada


Toronto - The Ice Bucket Challenge continues to make an impact. Proceeds from the highly successful 2014 viral sensation have helped fund a comprehensive new resource to guide efforts to ensure people living with ALS in Canada receive the best...

Posted in: Research

ALS Doesn’t Stop – So Neither Can Research Investment


The ALS Canada Research Program awards $650K for three innovative new research initiatives, with an additional $1 million to be announced in 2021 TORONTO – The ALS Society of Canada today announced that as part of its 2020 research commitment,...

Posted in: Research