Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Kingston family raises funds, awareness and hope for a future without ALS


Joe Pacheco has found a way to channel his ALS diagnosis into positivity and a renewed sense of purpose to support others. Having been diagnosed in late 2012, he has been living with the disease for almost six years --...

Posted in: WALK for ALS

A decade of strength, support and hope in Georgetown/Acton


Over the past decade, members of the Georgetown/Acton community have rallied together to help people and families living with ALS make the most of every moment, raising $1.6 million for ALS Canada — funds that provide help to those living...

Posted in: WALK for ALS

Can microscopic bubbles in our blood deliver ALS therapies effectively?


One of the hallmark characteristics of ALS is the clumping of proteins in motor neurons that are believed to cause toxicity and eventual death of the motor neurons, resulting in the loss of muscle control and mobility, and eventually, the...

Posted in: Research

A Mother’s Day story of love and devotion


Chris Silva’s mom Darlene was diagnosed with ALS on Mothers’ Day in 2016. She was 48 years old, a single parent, and devoted to her two sons. “It was all about me and my brother,” says Chris, who remembers his...

Posted in: Stories
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Halton family challenges ALS by giving back to the community

Halton Region WALK for ALS


When Mike and Carmen Cels participated in the Ice Bucket Challenge in 2014, they had no idea that ALS would affect them on a personal level. Both professionals in the pharmaceutical industry, they were peripherally aware of the disease at...

Posted in: WALK for ALS

Ice Bucket Challenge funded research published in scientific journal “Cell”


New research from the University of Toronto and the University of Cambridge, funded in part by the Ice Bucket Challenge and the ALS Society of Canada’s partnership with Brain Canada, is having an impact on our understanding of ALS and...

Posted in: Research