Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

A message from ALS Canada to our volunteers

National Volunteer Week


As a charitable organization, ALS Canada relies on the time and talents of dedicated volunteers in so many ways. Each one plays a vital role in helping us achieve a future without ALS. For the final day of National Volunteer...

Posted in: Volunteers

Young fundraisers making a big impact

Aaliyah Gallant-Barons, Niko Kremmydiotis, and Cole Hayward


When a disease like ALS strikes, people often rally around their loved ones and resolve to make a difference. The realities of the disease are such that every member of the family is impacted -- including children and youth --...

Posted in: Volunteers

National Volunteer Week | Debbie Damario and Ashley Dunseith

Niagara WALK for ALS


Today we are profiling two volunteers from the Niagara WALK for ALS: Debbie Damario and Ashley Dunseith. Both Debbie and Ashley have lost a loved one to ALS. Now, they dedicate their time to the Niagara WALK for ALS as...

Posted in: Volunteers

National Volunteer Week | Judith Malvern

York Region WALK for ALS


For day two of National Volunteer Week, we’re introducing you to Judith Malvern, a committee member for the York Region WALK for ALS. When her sister passed away from ALS, Judith felt she needed a way to pay it forward...

Posted in: Volunteers

Shining a light on volunteerism across the board

Ron Foerster, Chair of the ALS Canada Board of Directors


As a charitable organization, ALS Canada is fortunate to have a legion of volunteers who dedicate their time and talents to our shared cause. Each one of these volunteers has a unique story and experience that brought them to the...

Posted in: Volunteers

How new drugs become approved and available to Canadians


With the news that manufacturer MT Pharma is pursuing the regulatory channels necessary to bring the drug edaravone to Canada, the ALS community in this country finds itself facing the possibility of a second treatment option nearly 20 years after...

Posted in: Advocacy