Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

A Caregiver’s Story, Part 2: Speaking out against the helplessness of ALS

Part two of a three-part series


It is difficult to stay positive in the face of an ALS diagnosis. Jess Gustafson says she and her husband, Alan, found hope and courage by supporting each other with a love that deepened over the course of Alan’s illness....

Posted in: Events

A Caregiver’s Story, Part 1: Championing the ALS cause

Part one of a three-part series


Caring for a loved one with ALS is a challenging task that requires time, energy and emotional resilience, and caregivers give so much of themselves -- time and time again. Even after a loved one passes away, caregivers continue to...

Posted in: Events

How it feels knowing your daughter has ALS

A father’s journey


Peter Sharman and his wife, Louise, were on a cruise in the Black Sea when they received the call. Their daughter, Carol, had just been diagnosed with ALS and they were thousands of miles away. Immediately running to the computer,...

Posted in: Events

Radicava (edaravone): Make your voice heard


Updated July 18, 2018 The Canadian Agency for Drugs and Technologies in Health (CADTH) recently posted an open call for patient input on Radicava (edaravone). This is an additional step along the approval and affordability pathway for the drug, which...

Posted in: Advocacy

Giving back to stop ALS from taking more

Kitchener/Waterloo WALK for ALS


According to Brian Heaney, the Kitchener/Waterloo WALK for ALS is the “best day of the year.” As a dedicated participant attending the WALK for his eighth year in a row, Brian has a robust understanding of what the WALK for...

Posted in: WALK for ALS

ALS Research Update, June 2018


ALS research is at a time of unprecedented advancement. Our biggest hope is to stop ALS from stealing dreams, abilities, and lives – and researchers are closer than they’ve ever been to making this a reality. With such unprecedented momentum,...

Posted in: Research