Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS gave me a different perspective


Here and now. After a year and a half of undiagnosed symptoms and testing, in November of 2018 I was diagnosed with ALS. I really remember that day as a transformative one. One moment my doctor was dropping the weight...

Ice Bucket Challenge Proceeds Help Fund First Canadian ALS Care and Management Guideline

Best practice recommendations establish national standard and address issues important to care in Canada


Toronto - The Ice Bucket Challenge continues to make an impact. Proceeds from the highly successful 2014 viral sensation have helped fund a comprehensive new resource to guide efforts to ensure people living with ALS in Canada receive the best...

Posted in: Research

ALS Doesn’t Stop – So Neither Can Research Investment


The ALS Canada Research Program awards $650K for three innovative new research initiatives, with an additional $1 million to be announced in 2021 TORONTO – The ALS Society of Canada today announced that as part of its 2020 research commitment,...

Posted in: Research

Maintaining dignity, independence and safety through ALS Canada’s Equipment Loan Program

Sustainable funding means sustainable assistance


Mark Vivarais was almost in tears as he walked back to his wife, Sandra, from a washroom at an outdoor outlet mall in Florida. He’d been stuck in there for half an hour, struggling to pull himself up from the...

Thanks to our ALS Canada Research Forum sponsors for standing with us


You don’t need us to tell you that 2020 has thrown everyone and everything for a loop. A few months into the year, we all found ourselves having to adapt very quickly to mitigate the unknowns of the COVID-19 pandemic....

Tips for successful virtual fundraising


Every year, hundreds of community events take place across Ontario, raising critical awareness and funds toward a future without ALS.  With the pandemic changing the way we work, dine and live, our dedicated community is adapting how they fundraise, too....

Posted in: Events, Fund Development