Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
Walking to increase funding for ALS research
October 9, 2019
The Walk to End ALS events that take place across the province, throughout the year, mean different things to different people, but there is a common thread of support, community and knowing you’re not alone on this journey. [caption id="attachment_8727"... Read More
In the face of ALS, Dad is a hero and community is everything
September 26, 2019
Kelsey Barker describes her dad, Jeff, as her hero. Diagnosed with ALS in February 2018, he has since lost the use of his right arm and is now having difficulty breathing and walking - but ALS has not changed the... Read More
What’s all this FUS about? A new way of delivering future ALS treatments is off to a good start.
ALS Canada donor-funded research featured in Nature Communications
September 26, 2019
Delivering promising treatments to the brain can be a challenge because our bodies have a specialized barrier, called the blood-brain barrier, that protects it from substances in the bloodstream. For people living with ALS, this means researchers need to develop... Read More
Posted in: Research
Think you have what it takes to pull a plane?
Tips from past participants on how to pull together to end ALS
September 20, 2019
With the 2019 ALS Canada Plane Pull to End ALS happening this weekend, we connected with returning participants to get the low-down on what this year’s teams should keep in mind as they step onto the tarmac. Preparation Jessica Pellerin... Read More
Posted in: Events
Creating with her hands until she no longer can
September 12, 2019
When Shelly Gregory first noticed her speech was slurred two years ago, she drove herself to the hospital in Belleville thinking she was having a stroke. Eight months later, in May 2018, she learned she had bulbar onset amyotrophic lateral... Read More
Walking to end ALS when ALS runs in the family
September 5, 2019
It wasn’t until her own diagnosis that Jackie learned ALS can be passed on through generations. Jackie Pasch, 55, was diagnosed with familial ALS almost a year ago. Shortly after, she lost the use of her left arm and developed... Read More