The ALS Canada Blog is a pilot project. We will be working towards publishing content in both English and French in the coming months. Please refer to the “Français” category to access blog posts that are available in French at this time.

Le blogue de la Société canadienne de la SLA est un projet pilote. Nous poursuivrons des travaux sur la publication d’un contenu de blogue en anglais et en français dans les mois à venir. Veuillez consulter la catégorie « Français » pour accéder aux entrées de blogue qui sont disponibles en français en ce moment.

A Caregiver’s Story, Part 2: Speaking out against the helplessness of ALS

Part two of a three-part series


It is difficult to stay positive in the face of an ALS diagnosis. Jess Gustafson says she and her husband, Alan, found hope and courage by supporting each other with a love that deepened over the course of Alan’s illness....

Posted in: Events

A Caregiver’s Story, Part 1: Championing the ALS cause

Part one of a three-part series


Caring for a loved one with ALS is a challenging task that requires time, energy and emotional resilience, and caregivers give so much of themselves -- time and time again. Even after a loved one passes away, caregivers continue to...

Posted in: Events

How it feels knowing your daughter has ALS

A father’s journey


Peter Sharman and his wife, Louise, were on a cruise in the Black Sea when they received the call. Their daughter, Carol, had just been diagnosed with ALS and they were thousands of miles away. Immediately running to the computer,...

Posted in: Events

Radicava (edaravone): Make your voice heard


Update: The survey is now closed.  The Canadian Agency for Drugs and Technologies in Health (CADTH) recently posted an open call for patient input on Radicava (edaravone). This is an additional step along the approval and affordability pathway for the...

Posted in: Advocacy

Giving back to stop ALS from taking more

Kitchener/Waterloo WALK for ALS


According to Brian Heaney, the Kitchener/Waterloo WALK for ALS is the “best day of the year.” As a dedicated participant attending the WALK for his eighth year in a row, Brian has a robust understanding of what the WALK for...

Posted in: WALK for ALS

ALS Research Update, June 2018


ALS research is at a time of unprecedented advancement. Our biggest hope is to stop ALS from stealing dreams, abilities, and lives – and researchers are closer than they’ve ever been to making this a reality. With such unprecedented momentum,...

Posted in: Research