Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
An author’s “silent rebellion” against ALS
December 7, 2018
Prior to 2009, Zehra Madenli was an active college student, studying Fashion Management at George Brown College in Toronto. She was talkative and outgoing, and loved spending time outdoors. Everything changed when Zehra was diagnosed with ALS. Within 12 months... Read More
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Keeping hope alive this holiday season
Giving Tuesday 2018
November 27, 2018
2018 has been a year of promising discoveries and encouraging clinical trials, but ALS continues to rob countless moments from too many families – families like the Corbers who know all too well the gaps ALS can leave in people’s... Read More
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Giving Tuesday 2018
Double your impact by having your gift matched
November 22, 2018
When you live with a terminal disease like ALS, losing the use of your arms means losing the ability to hug those you love. Losing the use of your legs means you now watch — not run through the park... Read More
Posted in: Fund Development
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Thanks to donor generosity ALS Canada invests $1 million in innovative Canadian ALS research to provide a greater understanding of ALS
November 15, 2018
The ALS Canada Research Program awards eight new project grants in the pursuit of new therapy targets. TORONTO, November 15, 2018 – The ALS Society of Canada (ALS Canada) today announced an investment of $1 million in eight new research... Read More
Posted in: Research
ALS Canada Strengthens Partnerships Within the Health Charities Sector
November 7, 2018
ALS Canada is proud to share that Tammy Moore, CEO ALS Canada, has been named Chair of the Board of Directors for the Health Charities Coalition of Canada (HCCC). ALS Canada’s ongoing membership with HCCC helps to bring the perspective... Read More
Posted in: Update
ALS took Eddy’s voice – today he has it back again
How assistive technologies have helped Eddy regain his personality and independence
November 2, 2018
*UPDATED January 2019 – Eddy passed away from ALS in early 2019. Until this death, he worked tirelessly to raise awareness of ALS and mobilize others to support the cause, using social media and his personal website, to connect with... Read More