Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
The Do’s and Dont’s of Pulling a Plane
Tips and tricks from past ALS Canada Plane Pull participants
October 18, 2018
The countdown is on to ALS Canada’s Plane Pull to End ALS. With only two days until the event, we wanted to help get you in the right frame of mind and give you some advice to consider. Pulling a... Read More
Posted in: Events
Pulling together – with our sponsors – to end ALS
Making a difference in our community – together.
October 16, 2018
It takes a lot of people to develop and execute an incredible fundraising event -- and establishing and nurturing strong relationships is critical to its success. Our partners have demonstrated commitment, dedication and enthusiasm for the upcoming Plane Pull to... Read More
ALS Research Update, October 2018
October 12, 2018
ALS research is at a time of unprecedented advancement and Canada’s world-class ALS research community - along with international ALS researchers and experts - are accomplishing more than ever before. With new advancements being announced daily, the ALS Canada Research... Read More
Posted in: Research
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A Thanksgiving reminder to treasure those we care about
October 8, 2018
Today, on a day when many Canadians are sharing a meal and thinking about their blessings, Tammy Fasken is giving thanks for her family, friends and network of formal and informal supports who are the reason she is alive today.... Read More
Posted in: Stories
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Health Canada has approved Radicava (edaravone), a second ALS treatment for Canadians
October 4, 2018
Highlights: On October 4, Health Canada approved Radicava (edaravone) for the treatment of ALS. Health Canada’s terminology for this approval is called a Notice of Compliance, or NOC. The approval follows a 180-day priority review of the drug. Approval from... Read More
Posted in: Advocacy
Power in Numbers
Human-focused research to find answers about ALS
October 1, 2018
Updated October 17, 2018 The first ALS gene was discovered over two decades ago. By the end of 2017, scientists had found more than 25 genes. By studying these genes that are involved in familial ALS, which accounts for 5... Read More
Posted in: Research
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