Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Paying it forward to benefit people with ALS in the future


Deirdre O’Connor and her husband, Floyd, became ALS Canada donors 15 years ago. At the time, they had no personal connection to the cause, but they liked the fact that ALS Canada was a small, cost-effective charitable organization without a...

Posted in: Advocacy, Stories

Honouring Mom this Mother’s Day, and always


For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be...

Posted in: Stories

A second ALS treatment, edaravone, has been newly approved in the United States


Updated October 5, 2017 Highlights: In May 2017 the United States Food and Drug Administration approved edaravone (also referred to as Radicava and Radicut) for the treatment of ALS. It’s the second ALS drug to be approved in the US....

Posted in: Research

Fulfilling a promise and a passion


National Volunteer Week: Tara Wingrave With two 18 year-old daughters, a 19 year-old son, and a highly demanding job, life is hectic, but that won’s stop me from making the time to organize the Barrie WALK for ALS again this...

Posted in: Stories, Volunteers

Finding support, hope, and community through volunteering


National Volunteer Week: Jacqui Devine They always say ALS is rare, so it’s surprising how many times you hear about people who have been diagnosed with the disease. In 2012, I was working as a personal support worker and my...

Posted in: Stories, Volunteers

Fighting for Genetic Fairness


National Volunteer Week: Benjamin Ritsma I am a physician in Physical Medicine and Rehabilitation (Physiatry), a specialty that aims to help people function better as they deal with a neurological or musculoskeletal condition. My career path was influenced by my...

Posted in: Stories, Volunteers