Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Learning more about how gene mutations can cause ALS


Updated October 20, 2017 In the late 1980s, Dr. Neil Cashman was completing a neurology fellowship in ALS at the University of Chicago. At that time, little was known about the genetics or biology of ALS and Dr. Cashman became...

Posted in: Research

For Tom and Denis, the Ice Bucket Challenge is Personal


Like many people, Denis and his husband Tom were familiar with the Ice Bucket Challenge that became a social media phenomenon in the summer of 2014 – but they never imagined they would one day have a personal motivation to...

Posted in: Research

Could viruses play a role in the onset or progression of ALS in people with a genetic link?


Updated November 28, 2017 When a person is infected with a virus, it triggers an immune response that generally results in inflammation. For example – think of the sore throat, redness and swelling that occurs when you are sick with...

Posted in: Research

Dr. Richard Bedlack’s Quest for ALS Discovery: The Truth is Out There


Updated October 20, 2017 Dr. Richard Bedlack’s passion for neurology started when he was a child. As many children do, he used to roll down hills with his little brother – but Dr. Bedlack’s inquisitive nature made him wonder why...

Posted in: Research

Q&A with Dr. David Taylor, VP, Research


This interview was originally posted on the Hitfar website in February 2017. Thank you to Hitfar for giving ALS Canada permission to re-post this content. Could you start by explaining the disease and its effects? ALS is a disease where the...

Posted in: Research

Improved community-based support for people living with ALS


Updated November 28, 2017 As we mentioned in an earlier post, ALS Canada has made some improvements to our service offering with the goal of strengthening the support we offer to people and families living with ALS in Ontario. In...

Posted in: Support & Services
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