Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

From grief to hope: how my grandfather’s ALS diagnosis gave me purpose


From a very young age, my grandfather and I had a special connection. I remember as a young girl, he and my grandmother would go to Portugal for six months at a time. When they returned, I refused to leave...

Posted in: Stories

“I am so much more than my physical abilities”


The only muscles Jeff can fully control are behind his eyes. He lives with ALS, but that hasn’t stopped him from staying fully engaged in life and finding purpose in helping others. That’s the way he’s always been, says his...

Posted in: Stories

A Daughter’s Resolution to Honour her Father


If you were to have asked Kimberley a couple years ago the definition of Amyotrophic Lateral Sclerosis, she would have admitted that she did not know. Medically speaking, the word “lateral” identifies the area where nerve cells in the spinal...

Posted in: Stories

Finding Comfort in Creativity


When life hands you an ALS diagnosis, the fear of the unknown can often prevent you from embracing the present. This is something Mary-Anne experienced first-hand three years ago, when she was diagnosed with ALS. During a vacation in Puerto...

Posted in: Stories

Eddy is Living Life on his Terms


When Eddy was diagnosed with ALS in 1992, he was given three to five years to live. His symptoms began with a weakness in his left hand that gradually progressed throughout his body. “Over the next 15 months I was...

Posted in: Stories

Seizing Today with Passion and Humour


Judy is the kind of woman who can make you smile in any situation. With a zest for life, unwavering positivity and a witty sense of humour, Judy is an inspiration for what it means to seize today. At first...

Posted in: Stories