Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Carol: Living, Loving and Laughing Today


Diagnosed with ALS in September 2013 at the age of 41, Carol has surpassed the two to three year life expectancy that was originally given to her by her neurologist. Since then, she has struggled with degenerating muscle function every...

Posted in: Stories

Improving support for people and families living with ALS


Updated November 28, 2017 When you are living with or caring for someone with ALS, there are countless challenges and changes to consider. Through donor support, ALS Canada helps people and families in Ontario to navigate the options available through...

Posted in: Support & Services

A Walk for Remembrance and Awareness


Last month, John Scarborough and his two brothers completed their “Long Walk Home.” The 459km walk was a way to honour their sister and John’s first wife who both died of cancer, and to remember Rita, John’s second wife who...

Posted in: Stories

“Life is beautiful:” Seizing Today with love, support and adventure


In his lifetime, Jamie has climbed the Swiss Alps, bungee jumped, skydived, white water rafted and cave climbed. He has gone on a balloon ride in Estonia, taken a cruise to the Caribbean, done a rainforest canopy tour in St....

Posted in: Stories

A positive mental attitude continues to drive Don’s daily workout


Oftentimes, significant life struggles – like an ALS diagnosis – bring about a reassessment and shift in perspective. For Don, living with ALS means readjusting his physical goals, but his attitude about life is the same as it has always...

Posted in: Stories

Losing mobility never stopped Tim from walking through life with a smile


Tim was always actively engaged in life. He loved his work, coaching and playing hockey, riding his bike, and spending time with his circle of family and friends. ALS took away his ability to move. It forced him to make...

Posted in: Stories