Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Webinar Series: Research Update


ALS research is at a significant tipping point, and we can now envision a future where ALS becomes a treatable condition. This was one of the highlights shared by Dr. David Taylor, Vice President of Research at ALS Canada, during...

Posted in: Research
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Caring for a loved one with ALS brings poignant new perspectives


A week before the annual WALK for ALS in his community, Susan Peacock’s husband, Jeff, spent a few hours on his computer composing a message to post on Facebook using eye gaze software. The technology allows him to communicate now...

Posted in: Stories

The Power of Love: “As long as we’re together, everything will be alright”


Like most couples, Denis and Tom had dreams for their future together. They met 25 years ago in Philadelphia, and when Denis accepted a new position in Toronto, Tom quit his job and moved to a foreign city to be...

Posted in: Stories

Building “a beautiful life” with dignity and respect


Husband. Partner. Lifelong friend. Grace had known Randy since he was a teenager, and over time he had become all of these things to her. The couple had been married for almost 50 years before Randy passed away from ALS...

Posted in: Stories

How a grandson learned to cherish every moment


When Fabio talks about his grandmother Giuseppina, the love and respect he has for her is unmistakable. The woman he describes is warm, fun-spirited and hard-working; a woman who would do anything for the ones she loves. As the eldest...

Posted in: Stories

From grief to hope: how my grandfather’s ALS diagnosis gave me purpose


From a very young age, my grandfather and I had a special connection. I remember as a young girl, he and my grandmother would go to Portugal for six months at a time. When they returned, I refused to leave...

Posted in: Stories