Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

The ALS Canada Research Program


Today was the deadline for applications from the research community for three different types of funding through the ALS Canada Research Program. Applications are evaluated by an international panel of scientific experts through a peer review process, regarded as the...

Posted in: Research

John: Getting by with a little help from his friends


John has always had a positive outlook on life. For many of those living with ALS, the diagnosis can often bring a shift in perspective in what is meaningful and important. For John, it simply reaffirmed the way he has...

Posted in: Stories

There’s no better time than right now to seize today

June is ALS Awareness Month


Receiving an ALS diagnosis is overwhelming, and many people and families living with the disease will tell you its realities are devastating. ALS can take away your mobility, your ability to speak and laugh, your strength and your ability to...

Posted in: Stories

Could state-of-the-art gene editing play a role in correcting genetic mutations linked to the development of ALS?


Research is increasingly demonstrating that genetic mutations play a significant role in the development of ALS: for example, the C9orf72 gene is one of the most prominent genetic causes of the disease. With the scientific community abuzz about CRISPR/CAS9, a...

Posted in: Research

Paying it forward to benefit people with ALS in the future


Deirdre O’Connor and her husband, Floyd, became ALS Canada donors 15 years ago. At the time, they had no personal connection to the cause, but they liked the fact that ALS Canada was a small, cost-effective charitable organization without a...

Posted in: Advocacy, Stories

Honouring Mom this Mother’s Day, and always


For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be...

Posted in: Stories