Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

How you can fundraise for ALS Canada through Facebook


In late 2018, Facebook began offering the option for Canadians to create fundraisers for nonprofit organizations or for personal causes. Since then many of you have reached out to us with questions about how these giving options can be used...

Posted in: Fund Development

Leading Canadian ALS researcher stresses “time is of the essence”


“When you start researching ALS, it becomes a life mission,” says Dr. Janice Robertson, a prominent figure in the ALS research community in Canada and abroad. Dr. Robertson is studying variations within the brain and spinal cord of people living...

Posted in: Research, Stories

No time to lose: ALS Canada volunteer and fundraiser sees urgent need for change


Beth Robertson’s husband, Tim, lived courageously with ALS for 12 years. He was sustained by the loving presence of his wife, Beth, his three children, and a large network of family and friends. Beth says she would do it all...

Posted in: Research, Stories, Volunteers

How charitable action inspired a cross-Canada bike journey

An avid cyclist, Mike wanted to make his tour more than just a physical challenge. He wanted to raise awareness and money for a good cause.


Last spring, Mike Leech, 59, approached his plant manager to request a 2-month leave from work to complete a bike ride across Canada for charity. An avid cyclist, he dreamed of cycling coast to coast but he wanted to make...

Loss and healing: A 900-km bike ride to drive ALS awareness

Adam Foley set to take on epic cycling trip after loss of his brother


Miles4Matty is part of Adam Foley’s search for meaning after losing his brother, Matthew (aka Matty), who passed of ALS in 2014 at the age of 38. Adam and Matthew were roommates at the time of the diagnosis. When Matthew’s...

Posted in: Advocacy

Because Of You: ALS Canada’s 2018 Annual Report


Every day, more than 3,000 people and families throughout Ontario and Canada live with the realities of ALS, a devastating disease that takes away dreams, abilities, and lives. But for all ALS takes, it cannot take away our shared desire...