Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Finding inspiration from the small things makes a big difference


Brian Bower has always been passionate about sports. Above all, he is an ardent fisherman, known on occasion to snatch 15 minutes from his day for the joy of casting a line in one of the abundant waterways in and...

Posted in: Events, Walk To End ALS

It’s about time to change the reality of ALS


ALS is always about time. How much time do I have? How much time until I can’t hug my children? How much time until I can no longer walk, or eat, or breathe? It’s about time we change that. It’s...

Posted in: Advocacy

Learning about ALS for the first time: young people share their perspectives


Kyla and Vaughn visited their Great Uncle Murray in Thunder Bay a couple summers ago, making the trip all the way from Colorado. It was their first time meeting someone with ALS, and they were both affected deeply by the...

Posted in: Stories

Music and resiliency: lessons from my father


Talking about his dad’s ALS diagnosis, Connor Stratton, 17, says, “It’s a hard thing to understand at times, but it’s good to try to look at the bright side because my dad still has his spirits up. He’s still happy...

Posted in: Events, Walk To End ALS

Reinforcing spiritual values through community connection


Since receiving his ALS diagnosis in February 2018, Mark Ianniello's life has changed in profound ways. He is a 49-year-old father to three teenagers and can no longer work to help support his family. ALS has affected his speech and...

Posted in: Events, Walk To End ALS

Offsetting the loneliness and isolation of an ALS diagnosis with love and support


For the past 40 years, Dale Hodgins has been saving lives as a paramedic and volunteer firefighter in Kingston, Ontario. In December 2018, he was diagnosed with ALS – a disease he was already familiar with through his work. As...

Posted in: Events, Walk To End ALS