Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

A second ALS treatment, edaravone, has been newly approved in the United States


Updated October 5, 2017 Highlights: In May 2017 the United States Food and Drug Administration approved edaravone (also referred to as Radicava and Radicut) for the treatment of ALS. It’s the second ALS drug to be approved in the US....

Posted in: Research

Fulfilling a promise and a passion


National Volunteer Week: Tara Wingrave With two 18 year-old daughters, a 19 year-old son, and a highly demanding job, life is hectic, but that won’s stop me from making the time to organize the Barrie WALK for ALS again this...

Posted in: Stories, Volunteers

Finding support, hope, and community through volunteering


National Volunteer Week: Jacqui Devine They always say ALS is rare, so it’s surprising how many times you hear about people who have been diagnosed with the disease. In 2012, I was working as a personal support worker and my...

Posted in: Stories, Volunteers

Fighting for Genetic Fairness


National Volunteer Week: Benjamin Ritsma I am a physician in Physical Medicine and Rehabilitation (Physiatry), a specialty that aims to help people function better as they deal with a neurological or musculoskeletal condition. My career path was influenced by my...

Posted in: Stories, Volunteers

Making a meaningful contribution


National Volunteer Week: Caroline Price The hardest part about retiring for me was losing the daily connection with my “family” of colleagues. It was one of the reasons I was actively looking for a volunteer role when a position with...

Posted in: Stories, Volunteers

Living, Loving, Laughing… and Volunteering


National Volunteer Week: Carol Skinner When I received my ALS diagnosis in 2013, I was given two to three years to live. I was 41 years old. I had settled into a rewarding career - art therapy - and I...

Posted in: Stories, Volunteers