Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Today is Giving Tuesday


Today is Giving Tuesday. On this very special day of giving from the heart, I hope you’ll give the most precious gift of all — the gift of hope. Right now, approximately 3,000 Canadians are living with ALS (Amyotrophic Lateral...

Posted in: Stories

Thank you to everyone who took the ALS Ice Bucket Challenge 2.0


Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring...

Posted in: Stories

ALS community challenges Canada to take the ALS Ice Bucket Challenge


"The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS...

Posted in: Stories

Where your dollars went from the 2014 ALS Ice Bucket Challenge


Canada you made a difference! $17 million was raised through the ALS Ice Bucket Challenge in 2014 ‪ ALS Research: $11.5 million went to ALS research from ALS Societies across Canada We have seen a 70% INCREASE in grant applications...

Posted in: Stories

New bona fide ALS gene discovered by international group of researchers


A large consortium of researchers from six countries have definitively identified a new ALS gene called TANK-binding kinase 1 (TBK1) by performing a rigorous study that involved sequencing of more than 2800 people with ALS compared with more than 6000...

Posted in: Research