Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Society of Canada dedicates last of the matched Ice Bucket Challenge research funding to early-career researchers in pursuit of a future without ALS


2018 funding competition with Brain Canada results in $720,000 for six trainee awards – more trainee awards in a single year than ever before TORONTO December 13, 2018 – The ALS Society of Canada (ALS Canada), together with Brain Canada, today...

Posted in: Research

An author’s “silent rebellion” against ALS


Prior to 2009, Zehra Madenli was an active college student, studying Fashion Management at George Brown College in Toronto. She was talkative and outgoing, and loved spending time outdoors. Everything changed when Zehra was diagnosed with ALS. Within 12 months...

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Keeping hope alive this holiday season

Giving Tuesday 2018


2018 has been a year of promising discoveries and encouraging clinical trials, but ALS continues to rob countless moments from too many families – families like the Corbers who know all too well the gaps ALS can leave in people’s...

Giving Tuesday 2018

Double your impact by having your gift matched


When you live with a terminal disease like ALS, losing the use of your arms means losing the ability to hug those you love. Losing the use of your legs means you now watch — not run through the park...

Posted in: Fund Development
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Thanks to donor generosity ALS Canada invests $1 million in innovative Canadian ALS research to provide a greater understanding of ALS


The ALS Canada Research Program awards eight new project grants in the pursuit of new therapy targets. TORONTO, November 15, 2018 – The ALS Society of Canada (ALS Canada) today announced an investment of $1 million in eight new research...

Posted in: Research

ALS Canada Strengthens Partnerships Within the Health Charities Sector


ALS Canada is proud to share that Tammy Moore, CEO ALS Canada, has been named Chair of the Board of Directors for the Health Charities Coalition of Canada (HCCC). ALS Canada’s ongoing membership with HCCC helps to bring the perspective...

Posted in: Update