Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

From the Boston Marathon to the Walk to End ALS

In the face of an ALS diagnosis, Don Doan is committed to staying active


On June 15, Don Doan participated in the Walk to End ALS in Brampton for the fourth time. It’s been three years since he was able to walk the course, but his positive outlook hasn’t changed. There are always people...

Posted in: Events, Walk To End ALS

Fighting for more time – to dream, to live, to be with loved ones


Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk...

Posted in: Events, Walk To End ALS

Walking in memory fuels hope and strengthens community


Lise Michaud’s brother, Eddy Lefrançois, made every day count. He lived nearly three decades with ALS, proudly defying the odds and outliving his “expiry date” (EXP: 04.97) which he tattooed on the inside of his forearm as a reminder to...

Posted in: Events, Walk To End ALS

Coach Sunshine’s ‘never quit attitude’ can help change the future of ALS


At the rink where he has coached boys’ ice hockey for more than 10 years, Adam Welburn-Ross, 43, is fondly known as “Coach Sunshine.” He wears his positivity as a badge of honour and now that he is living with...

Posted in: Walk To End ALS

Community spirit ignites passion to increase ALS awareness


An active mother of three young children, Stephanie Christiansen Hall wants people to know she has ALS – but she wants everyone to know that her disease is only part of her story. Apart from living with ALS, Stephanie is...

Posted in: Events, Walk To End ALS

Finding inspiration from the small things makes a big difference


Brian Bower has always been passionate about sports. Above all, he is an ardent fisherman, known on occasion to snatch 15 minutes from his day for the joy of casting a line in one of the abundant waterways in and...

Posted in: Events, Walk To End ALS