Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS took Eddy’s voice – today he has it back again

How assistive technologies have helped Eddy regain his personality and independence


*UPDATED January 2019 – Eddy passed away from ALS in early 2019. Until this death, he worked tirelessly to raise awareness of ALS and mobilize others to support the cause, using social media and his personal website, to connect with...

The Do’s and Dont’s of Pulling a Plane

Tips and tricks from past ALS Canada Plane Pull participants


The countdown is on to ALS Canada’s Plane Pull to End ALS. With only two days until the event, we wanted to help get you in the right frame of mind and give you some advice to consider. Pulling a...

Posted in: Events

Pulling together – with our sponsors – to end ALS

Making a difference in our community – together.


It takes a lot of people to develop and execute an incredible fundraising event -- and establishing and nurturing strong relationships is critical to its success. Our partners have demonstrated commitment, dedication and enthusiasm for the upcoming Plane Pull to...

Posted in: Events, Fund Development

ALS Research Update, October 2018


ALS research is at a time of unprecedented advancement and Canada’s world-class ALS research community - along with international ALS researchers and experts - are accomplishing more than ever before. With new advancements being announced daily, the ALS Canada Research...

Posted in: Research
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A Thanksgiving reminder to treasure those we care about


Today, on a day when many Canadians are sharing a meal and thinking about their blessings, Tammy Fasken is giving thanks for her family, friends and network of formal and informal supports who are the reason she is alive today....

Posted in: Stories
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Health Canada has approved Radicava (edaravone), a second ALS treatment for Canadians


Highlights: On October 4, Health Canada approved Radicava (edaravone) for the treatment of ALS. Health Canada’s terminology for this approval is called a Notice of Compliance, or NOC. The approval follows a 180-day priority review of the drug. Approval from...

Posted in: Advocacy