Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Mother and daughter caregiving team reach out with love and compassion


When Emma and Tom Belen decided to share the tragic news of Tom’s ALS diagnosis with their two daughters at a Sunday lunch gathering in March 2011, their eldest daughter, Stephanie, surprised them both. She decided to announce her pregnancy...

Posted in: Events

Healing through giving: A daughter’s story


It was Noella LeBlanc’s father who was diagnosed with ALS, but she believes the disease was responsible for her mother’s death, too. “The two of them had been joined at the hip for nearly 50 years, raising their children and...

Posted in: Events

Enduring love of a ‘forever husband’ inspires hope


ALS took the love of her life in September 2017, but Debbie Caswell’s love for her husband Jamie is still the light that guides her. This June Awareness Month marks their first wedding anniversary. At the time of the ceremony,...

Posted in: Events

A Caregiver’s Story, Part 3: Looking forward, looking back

Part three of a three-part series


Jess Gustafson says she will never forget the first time she met Lianne, the ALS Canada Regional Manager in her area. Lianne came and sat with Jess and her husband, Alan, on their front porch to talk to them about...

Posted in: Events

A Caregiver’s Story, Part 2: Speaking out against the helplessness of ALS

Part two of a three-part series


It is difficult to stay positive in the face of an ALS diagnosis. Jess Gustafson says she and her husband, Alan, found hope and courage by supporting each other with a love that deepened over the course of Alan’s illness....

Posted in: Events

A Caregiver’s Story, Part 1: Championing the ALS cause

Part one of a three-part series


Caring for a loved one with ALS is a challenging task that requires time, energy and emotional resilience, and caregivers give so much of themselves -- time and time again. Even after a loved one passes away, caregivers continue to...

Posted in: Events