Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Access to Therapies: Radicava (edaravone) Update


Updated October 5, 2020 Updated May 28, 2020  Originally posted October 22, 2019 In October 2018, Health Canada approved Radicava (edaravone) for use in Canada. As edaravone continues to move through the drug access pathway to become available to Canadians,...

Posted in: Advocacy
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COVID-19 Update: A message from our CEO


Dear ALS Community, ALS doesn’t stop. Neither will we. We understand what a challenging time this may be for people affected by ALS. The COVID-19 pandemic amplifies the many unknowns and the concerns that come with the realities of the...

Posted in: Advocacy, Update

Luckiest of the unlucky: keeping a positive mindset in the face of ALS


Norman MacIsaac says he’s the “luckiest of the unlucky.” His legs, arms and hands are failing him, his voice is weak, and his speech is slow and laboured, but he refuses to let ALS stifle his positivity. Norm has been...

Posted in: Stories

Can an animal model provide new insights into the formation of stress granules?


Alicia Dubinski may have inherited both her love for science and studying a neurodegenerative disease from her mother, a neuroscientist at the University of Toronto. When Dubinski was still a graduate student at the University of Waterloo, she met Dr....

Posted in: Research

ALS Canada: Committed to the bright future of Canada’s ALS researchers

ALS Canada Research Program revamps its Career Transition Award


We are thrilled to share that the revamped ALS Canada Career Transition Award is accepting applications until Friday, February 21, 2020. This competition will help to support the next generation of scientists working toward a future without ALS. Originally launched...

Posted in: Research

Can new understandings about nuclear speckles lead to new treatment options for ALS?


In 2018, Dr. Ulises Rodriguez Corona was looking for a new research field where he could apply his knowledge and expertise in the biology of protein production in cells and the genetic instructions that control their behaviour. When he learned...

Posted in: Research