Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

New clinical trials for Canadians with ALS


Updated October 17, 2018 The opportunity to be involved in clinical trials for experimental ALS treatments is something that is often on the radar for people who are living with ALS. Did you know that there are three clinical trials...

Posted in: Research

WALKing for ALS with gratitude and positivity

The Belleville-Quinte WALK for ALS


For the second year in a row, the Williams family is “trekking for ALS research – boldly going where ALS research needs to go.” These are the words of Scott Williams, who since receiving his ALS diagnosis in 2015, has...

Posted in: WALK for ALS

The impact of donor dollars on ALS research in Canada

Investing with care and consideration


The result of the 2014 Ice Bucket Challenge gave the ALS community a tremendous gift: awareness and unprecedented investment in ALS research. Thanks to the viral fundraising phenomenon that year, along with matched funds from Brain Canada (through the Canada...

Posted in: Research

A Community Connected

2017 Annual Report to the community


In 2014, the Ice Bucket Challenge gave hope to people and families living with ALS – hope that one day there would be a cure for this terminal disease. With the Ice Bucket Challenge came an immense responsibility to invest...

Posted in: Update
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Every August Until A Cure 2018


"Every August until a cure." These five words were first spoken by ALS patient and advocate, Pat Quinn, upon accepting a Webby Award for his part in creating the Ice Bucket Challenge. The social media phenomenon raised millions of dollars...

Posted in: Research

The emotional challenges of ALS

Below the surface


When someone hears about ALS, the first thought is often about the loss of physical function; for example, the progressive inability to walk, talk, eat, swallow, and eventually, breathe. Losing these functions one by one can be profoundly difficult on...

Posted in: Stories