Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Health Canada has approved Radicava (edaravone), a second ALS treatment for Canadians


Highlights: On October 4, Health Canada approved Radicava (edaravone) for the treatment of ALS. Health Canada’s terminology for this approval is called a Notice of Compliance, or NOC. The approval follows a 180-day priority review of the drug. Approval from...

Posted in: Advocacy

Power in Numbers

Human-focused research to find answers about ALS


Updated October 17, 2018 The first ALS gene was discovered over two decades ago. By the end of 2017, scientists had found more than 25 genes. By studying these genes that are involved in familial ALS, which accounts for 5...

Posted in: Research

ALS Canada’s Plane Pull to End ALS moves to Downtown Toronto

A new location with a revitalized event day experience!


By now you’ve likely heard or read about our new partnerships with Ports Toronto and Porter Airlines Inc. It’s exciting because our 8th Annual Plane Pull to End ALS has found a new home at Toronto’s Downtown Billy Bishop Airport...

Posted in: Events

ALS Canada Brings the Eighth Annual Plane Pull to End ALS to Billy Bishop Airport


The October 20, 2018, event is an opportunity for corporate teams to pull a 37,000-lb plane 100 meters and raise funds to support a future without ALS. TORONTO – September 17 – Today, ALS Canada is excited to announce that...

Posted in: Events
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Living with ALS, one day at a time

London WALK for ALS


Making memories and preserving them through photography has always been a way of life for David Liles. As a formerly self-employed photographer, David is used to looking for the best angles in any given situation, making everyday moments a little...

Posted in: WALK for ALS

Can environmental impacts on genes explain why ALS affects people differently?


Updated October 17, 2018 Over the last decade, scientists have discovered many genes related to ALS, but there are still many questions about how mutations in those genes spark the development of the disease. The range of onset for ALS...

Posted in: Research