Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Can a revolutionary gene-editing tool create better animal models for studying ALS?


Animal models enable scientists to study human diseases in lab settings. They help scientists learn about the biological changes that occur during disease onset and progression, and they can also speed the identification of promising therapies for testing in future...

Posted in: Research

How are two of the most common occurrences in ALS related?


Scientific discoveries are like puzzles. At first, two puzzle pieces may not appear to fit together, but then a new way of comparing them makes it possible to see how they connect, helping to fill in the picture. Mutations in...

Posted in: Research

Can measuring “biological age” explain why ALS affects people differently?


ALS manifests very differently among people who develop the disease. It can occur anytime in adulthood. People usually only live two to five years after diagnosis, but it can range from six months to more than 20 years. Some people...

Posted in: Research

Wrapping up the holiday giving season

Thank you for your generosity


2018 was a momentous year for the ALS community. Discoveries were made that advance our understanding of the disease, clinical trials showed encouraging results, and the first therapy in over 20 years was approved for use in Canada for people...

Posted in: Update
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Top 10 research stories of 2018


Last year, major scientific advances in Canada and internationally led to significant and exciting progress in ALS research. Discoveries that increase our understanding of ALS are happening far more often than ever before, and as a result many new experimental...

Posted in: Research
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Young mother of three adapts to life with ALS


For many people, the holidays are a special time for making memories and spending quality time with friends and loved ones. For 29 year-old mother of three, Stephanie, these quality moments became all the more meaningful since she was diagnosed...

Posted in: Stories
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