Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Acting against everything that ALS takes


June is ALS Awareness Month in Canada. And while we are only four days in, already there has been lots of momentum behind our shared cause: MPs have made statements in the House of Commons; landmarks have been lit in...

Posted in: Events

Almost 30 years living with ALS and volunteering just as long

Sault Ste. Marie WALK for ALS


ALS usually moves at a rapid pace but Sharon Carson has been living with the disease for almost 30 years. It started with loss of control in her hands and arms making it difficult for her to manage doorknobs, seatbelts,...

Posted in: WALK for ALS

Walking for a common cause keeps the Bailis family connected

York Region WALK for ALS


Brigitte Bailis is described by her three daughters as a friendly and easygoing woman that was more of a friend to them growing up than a mom. As someone who liked to run, salsa dance, cycle, and try new things,...

Posted in: WALK for ALS

WALK for ALS fundraiser inspired by the hope of future treatments

Ottawa WALK for ALS


When Mike Rannie first noticed a problem in his right hand in October 2016, he assumed it had something to do with the arthritis he had been living with for 14 years. In fact, the lack of mobility was an...

Posted in: WALK for ALS

Richard and Heather leave gifts of hope for the future


Richard Ellis and Dr. Heather Durham are two people who have each been affected by the realities of ALS, but in very different ways. Having witnessed the physical and emotional tolls of the disease, Richard and Heather each decided to...

Posted in: Stories

Making life better for people living with ALS today inspires couple to pay it forward


Sandy and Mark Vivarais’ three-year-old grandson, Keaten, is a ray of sunshine in their daily lives, especially now that Mark has been diagnosed with ALS. Keaten is also a great little helper. He loves to put Mark’s socks on and comb...

Posted in: WALK for ALS