June is ALS Awareness Month


Receiving an ALS diagnosis is overwhelming, and many people and families living with the disease will tell you its realities are devastating. ALS can take away your mobility, your ability to speak and laugh, your strength and your ability to eat and drink. What it cannot take away is the relationships, love and personal connections you have fostered and will continue to develop.

At ALS Canada, we have the privilege and responsibility of connecting every day with people and families who are living with ALS. There is no doubt that the challenges are tremendous. But there are also moments of laughter, joy and love that we will be showcasing throughout ALS Awareness Month in June as people and families with ALS “seize today” and make the most of their lives in whatever way they can.

While we cannot control what happens to us, we can control how we react to it. Go for a walk, eat that hamburger, dance with your mom or simply take a deep breath! There’s no better time than right now to seize today.

What does it mean to Seize Today? It sounds like this:

“I can still walk, my hands work. I’m still me. Today is good. So I keep doing what I do. I had to stop working, which gave me more time with family and friends.”
– Vincent Quinn, diagnosed with ALS in August 2014

“Mark was more than the disease he had. He seized every moment with and for the ones he loved. He was spontaneous and romantic, finding occasions to bring me roses any time he could.”
– Debbie Damario, WALK for ALS Volunteer

“Live with no regrets, live as if tomorrow will not come for you. But live respectfully.”
– Eddy Lefrançois, living with ALS since 1992

“The biggest lesson that ALS taught me was to live in the moment and live for today because you never know what tomorrow holds.”
– Kinga Repic

“He danced, he laughed, he smiled, he joked, and he simply lived. He continued to do all the things he loved to do as long as he could; he golfed, he partied, he attended concerts, and listened to his favourite tunes. He lived and he loved living. He was a reminder that every day is precious and each day should be lived to the fullest – the greatest lesson my dad could have taught me…”
– Jacqui Devine

There are many more stories to come – please follow along on our blog throughout the month of June. You can also share your own stories and reflections on Facebook, Twitter and Instagram and hashtag #SeizeTodayALS.

Posted in: Stories