Living with ALS, one day at a time

Making memories and preserving them through photography has always been a way of life for David Liles. As a formerly self-employed photographer, David is used to looking for the best angles in any given situation, making everyday moments a little more extraordinary. This way of moving through life has carried David through his ALS diagnosis, […]

Toronto family reflects on the realities of “living and dying” with ALS

Two months after receiving his ALS diagnosis in June 2017, Chris Gort made a decision to start writing letters to his family and friends. What started out as a small endeavour to keep his loved ones informed on his ALS progression, grew to a mailing list of 175 people. Reading these letters, the reality of […]

WALKing for ALS with gratitude and positivity

For the second year in a row, the Williams family is “trekking for ALS research – boldly going where ALS research needs to go.” These are the words of Scott Williams, who since receiving his ALS diagnosis in 2015, has adapted his love of the Star Trek franchise into a rallying call for the WALK […]

Giving back to stop ALS from taking more

According to Brian Heaney, the Kitchener/Waterloo WALK for ALS is the “best day of the year.” As a dedicated participant attending the WALK for his eighth year in a row, Brian has a robust understanding of what the WALK for ALS in his community is all about – and he looks forward to attending with […]

Long-time altruist lends his voice to ALS cause

Throughout his career, Vincent Quinn has worked with people living with disabilities, tended to social justice issues for homeless youth and adults, and facilitated support groups for people who have lost someone to suicide. Today, he volunteers his time to the Barrie WALK for ALS and the Board of Directors of ALS Canada, where he […]

Almost 30 years living with ALS and volunteering just as long

ALS usually moves at a rapid pace but Sharon Carson has been living with the disease for almost 30 years. It started with loss of control in her hands and arms making it difficult for her to manage doorknobs, seatbelts, buttons, and shoelaces – and then restricting her ability to drive, dress herself, and eat […]

Walking for a common cause keeps the Bailis family connected

Brigitte Bailis is described by her three daughters as a friendly and easygoing woman that was more of a friend to them growing up than a mom. As someone who liked to run, salsa dance, cycle, and try new things, Brigitte was the kind of mom that her daughters wanted to go for coffee with. […]

WALK for ALS fundraiser inspired by the hope of future treatments

When Mike Rannie first noticed a problem in his right hand in October 2016, he assumed it had something to do with the arthritis he had been living with for 14 years. In fact, the lack of mobility was an early symptom of ALS. After a series of tests and consultations with neurologists, Mike received […]

Making life better for people living with ALS today inspires couple to pay it forward

Sandy and Mark Vivarais’ three-year-old grandson, Keaten, is a ray of sunshine in their daily lives, especially now that Mark has been diagnosed with ALS. Keaten is also a great little helper. He loves to put Mark’s socks on and comb his hair for him, simple tasks Mark can no longer complete on his own. Keaten […]

Kingston family raises funds, awareness and hope for a future without ALS

Joe Pacheco has found a way to channel his ALS diagnosis into positivity and a renewed sense of purpose to support others. Having been diagnosed in late 2012, he has been living with the disease for almost six years — time he has used to help raise funds, awareness and hope for a disease with […]

A decade of strength, support and hope in Georgetown/Acton

Over the past decade, members of the Georgetown/Acton community have rallied together to help people and families living with ALS make the most of every moment, raising $1.6 million for ALS Canada — funds that provide help to those living with the disease today and hope in the form of research investment for a future […]

Halton family challenges ALS by giving back to the community

When Mike and Carmen Cels participated in the Ice Bucket Challenge in 2014, they had no idea that ALS would affect them on a personal level. Both professionals in the pharmaceutical industry, they were peripherally aware of the disease at the time; however, it wasn’t until Mike was diagnosed with ALS in 2017 that they […]