ALS News

ALS Canada accredited by Imagine Canada’s National Standards Program

TORONTO, (February 21, 2017) – The ALS Society of Canada is proud to share that it has been accredited by Imagine Canada’s national Standards Program.

Imagine Canada is a leader in the non-profit sector dedicated to supporting and strengthening Canadian organizations so that they can better support the Canadians and communities they serve. Their national Standards Program was established to build excellence in Canada’s charities and non-profits and to strengthen confidence in the sector.

We are currently recruiting for a Regional Manager in the Hamilton – Niagara Region. This is a full-time contract position with benefits for an individual residing in the Hamilton, Niagara, Haldimand Brant Local Health Integration Network (LHIN) region. This individual is positive, energetic, empathetic and self-directed people who can work well with all stakeholders in the ALS Community including clients, families, ALS clinics, CCACs, healthcare providers, community agencies and partners, and volunteers. 

We are currently recruiting two regional manager positions to fill part-time temporary contracts in South East Ontario (10 hours per week) and North West Ontario (7.5 hours per week). These individuals are positive, energetic, empathetic and self-directed people who can work well with all stakeholders in the ALS Community including clients, families, ALS clinics, CCACs, healthcare providers, community agencies and partners, and volunteers.

This is a temporary part-time position (2.5 days a week for approximately 9 – 12 months). The Client Services Coordinator will report to the Vice President, Client Services. This person is customer-service oriented, positive, energetic, and self-motivated individual who can work well with all stakeholders in the ALS Community including clients, families, ALS clinics, healthcare providers and equipment vendor partners. 

This is a full-time, contract position with benefits and the potential for renewal. The Research Coordinator will report to the Vice President, Research. This person is a positive, energetic, creative and self-motivated individual who can work well with all stakeholders in the ALS Community including clients, families and researchers, ALS clinics, ALS Health Care Providers, and representatives from the ALS Societies across Canada. They will be responsible for working with the Vice President, Research on all aspects of operations management for the National Research Program including grant management and research communications. 

ALS Society of Canada to spearhead Canada’s participation in Project MinE, which will study the DNA profiles of 22,500 people to identify genetic patterns specific to people with ALS

Season’s Greetings from ALS Canada

We wish you and yours a holiday season filled with the warmth of friends and loved ones.

If you would like to make a holiday donation, there are several ways to do so:

To make a donation online, please visit www.als.ca/donate

To donate over the phone, please call 1-800-267-4257 ext. 203 and leave a message with your name and phone number.

Living with ALS during the Holidays: the Peacock Family

When a friend or loved one is living with ALS, the holiday season can be a difficult time. This is certainly true for the Peacock family ever since husband and father Jeff was diagnosed with ALS three years ago.

ALS Canada and Brain Canada award $4.5 million in research funding; nearly $20 million invested in ALS research in Canada since 2014’s Ice Bucket Challenge

TORONTO, November 23, 2016 – The ALS Society of Canada (ALS Canada), in partnership with Brain Canada, today announced $4.5 million in funding for nine new ALS research projects. This means that since the Ice Bucket Challenge became a social media phenomenon in 2014, nearly $20 million has been invested in Canadian ALS research at a time when it has the potential to make the greatest impact.

Dr. Jeehye Park, Dr. Veronique Belzil, and Dr. Kessen Patten

Three young investigators are pursuing ALS research thanks to funds raised through the Ice Bucket Challenge and matched by Brain Canada with financial support from Health Canada

The generosity of Canadians has helped three early-career researchers to make ALS the focus of their work in the country’s labs and academic institutions. The research funding, which totals more than $1 million, has been awarded through the ALS Canada Research Program and Brain Canada as a result of money raised through the Ice Bucket Challenge.

WALK for ALS early results: $3.9 million (and counting!) raised nationwide

Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe.

Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016 WALK for ALS.

“Every August until a cure. Because we have to.”

These words from Ice Bucket Challenge co-founder Pat Quinn speak to the importance of raising money for ALS research. As we approach the second anniversary of the Ice Bucket Challenge, we are already seeing its impact: last week, researchers who were funded through Ice Bucket Challenge donations announced that the gene NEK1 has been found to play a role in the development of ALS.

July 28, 2016 – Earlier this week researchers announced that the gene NEK1 has been found to play a significant role in the development of amyotrophic lateral sclerosis (ALS). This landmark discovery is the result of an 11-country research collaboration that was funded through the Ice Bucket Challenge. The research team included 3 Canadians, one of whom was directly funded by the ALS Society of Canada for their work during this discovery.

Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the day for ALS Canada.

MARKHAM, ON, April 19, 2016 /CNW/ - Six months ago, Liberal MP Mauril Bélanger was running in the federal election, continuing his dedication of over 20 years to serving his constituents in the riding of Ottawa-Vanier. His life changed November 2015, when he was diagnosed with the terminal disease amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's. Although ALS has taken away his ability to speak, it has not taken away his voice or commitment to help others.

First ALS Canada Clinical Management Grant to Support Exploration of Cannabinoids on Quality of Life

Community engagement plays a really important role in fundraising for ALS Canada. We are grateful for everyone who gets involved and dedicates their time to hosting BBQ’s, block parties, dance-a-thons, and Ice Bucket Challenges! We could not do the work we do, without your support.

Meet Kinga Repic.

ALS Canada: What kind of community events have you helped organize?

Caregiver Information Sessions

How to deal with the unique and individual journey that caregivers and loved ones experience when supporting those living with ALS. 

In Person:

Wednesday April 20th 2016
7 pm – 9pm
Olivet Baptiste Church
36 Margueretta St
Toronto, ON M6K 2P5
RSVP by Monday April 18th 2016

Webinar:

1988. At the office. A young independent redhead grabs Jocelyn’s attention immediately.

She emits a contagious “joie de vivre” that instantly seduces the young man. Chantal, on the other hand, was charmed by Jocelyn’s ability to listen and his sincere consideration for everyone around him. After almost 23 years of marriage and a daughter named Maya, their love has never been so strong. Their secret? “It’s in the little things: a look, a gesture, a spontaneous hug, a compliment, a morning smile and tenderness. These are all elements that keep our flame alive,” confides Chantal.

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