ALS Canada ambassadors are experienced volunteers who inspire hope and positive change in connection with our shared cause. They help to create strong connections and relationships with the communities we serve and support, and who in turn support us. To contact or inquire about an ambassador, please email email@example.com.
Mark Britt – Central Ontario and Toronto
Mark’s wife was diagnosed with ALS in 2012 and she passed away in 2015. Mark is a father of two who is a strong advocate for the ALS cause for very personal reasons: his wife was diagnosed with the disease in 2012 and passed away in 2015. He speaks publicly about his personal experience and the necessity for services and support for people and families living with ALS, as well as research to help create a brighter future for people diagnosed with the disease.
Jonathan Corber – Toronto
Jonathan is a strong supporter of ALS Canada. After his mother, Wendy, was diagnosed with ALS, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Inspired by his mother’s bravery, he felt strongly about raising awareness for this important cause and sharing his experience and Wendy’s journey with others. Jonathan has spent his professional career within the insurance and financial industries. In his spare time, he enjoys playing hockey and golf and spending time with his friends and family.
Jacqui Devine – Durham Region
Jacqui became active in the ALS community in 2013 when her father was diagnosed with ALS at the age of 59. She started volunteering at events like the Bombardier Plane Pull and the Hike for ALS and attended numerous WALK for ALS fundraisers across the province. Jacqui is also an artisan. She hand-makes and sells beaded bracelets, donating a portion of the proceeds to ALS Canada.
Emma Fattori – Central Ontario and Toronto
Emma has multiple family members who have been diagnosed with ALS. As many as 10% of ALS cases are familial, meaning that the disease is capable of being passed from a parent to his or her child. With ALS being so prevalent in her family, Emma has a keen interest in educating others about the disease, the research that is currently underway and the strength and resilience of the many people and families living with ALS.
Tara Favretto – Central Ontario
Tara has been a volunteer WALK coordinator for the Barrie WALK for ALS since 2011, when her mother was diagnosed with ALS at the age of 65. Tara says being an ALS Ambassador is “one of the few things that I can do to change or influence a situation that made me feel so helpless.” Tara’s mom passed away in 2015. She asked Tara to never stop trying to prevent others from having to endure what she did. Today, Tara continues to fulfill her mother’s last wish.
Jay Johnston – Durham Region
Jay’s father was diagnosed with ALS in 2013. Shortly after, Jay entered a team in the Bombardier Plane Pull and got his first taste of fundraising. The response was overwhelming and he has since organized his own fundraising events for ALS Canada. By seeing firsthand the increasing need for support as the disease progresses, Jay believes strongly in the value of the support groups that ALS Canada runs. Jay’s father passed away in 2014, and it’s important to Jay that he continue to raise funds and awareness to support the friends he’s made and future families that will be touched by the disease.
Charles Lam – Central Ontario
Currently pursuing his BBA at York University, Charles is fascinated by world issues and the sciences. His connection to ALS is through a friend whose father is currently living with the disease. Charles would like to encourage youth to volunteer with ALS Canada in order to help make ALS a treatable, not terminal disease.
Eddy Lefrançois – Northern Ontario
Diagnosed with ALS in 1992, Eddy is a rare example of someone who has lived well beyond the average life expectancy of someone diagnosed with ALS, which can vary from 2 to 5 years. He is highly motivated to share his story, educate others about ALS and be a voice for people who have passed away before their voices could be heard. Eddy travels around the world educating everyone along the way about life with ALS. He is active online through social media and through his personal website, www.lets-roll.ca.
Caphan Lieu – Toronto
Caphan is committed to advancing the ALS cause. His mother was diagnosed with ALS in 2014 and as one of her primary caregivers, Caphan has experienced firsthand the significant impact of the disease and the adaptations it requires both for the person living with ALS as well as that person’s family members. Caphan hopes to raise the profile of ALS, advocate on behalf of the community and assist other families affected by the disease.
Chris McCauley – Barrie
Chris became keenly interested in ALS research following his ALS diagnosis in 2015. Given the multiple causes, numerous disease pathways, and the different ways and rates at which ALS progresses and the variations in survival, he has been struck by the immense challenges researchers face in developing a treatment or cure. As ALS Canada’s ambassador for Project MinE, Chris sees tremendous promise in the initiative’s ability to make ALS easier to study and its potential to lead to effective treatments.
Ron Myles – Northern Ontario
Ron has worked as a manager in hotels and restaurants for 40 years, and still continued to work at Home Depot after retiring at age 60. He was diagnosed with ALS in 2015, and refuses to let the disease slow him down. Sharing his experience with ALS is Ron’s way of supporting others who live with or are affected by the disease.
Anne-Ellice Pascoe – Hamilton and Peel
Anne-Ellice has been volunteering with ALS Canada for more than six years with a special focus on the WALK for ALS, and she is a passionate advocate for the ALS cause. Over her many years of being involved with the community, Anne-Ellice has made and lost many friends and has become familiar with the range of questions people have about the disease. She is interested in helping to answer these questions while raising awareness of ALS.
Carol Skinner – Ottawa
Carol was diagnosed with ALS in 2013 after she was unable to hold herself up while skating and began to trip and fall while walking. Her blog, livelovelaughwithcarol.com, keeps friends and family up to date about her life and her journey with ALS. Carol has shared her story in numerous ways to raise awareness of ALS and support ALS Canada’s fundraising efforts including on Parliament Hill where she advocates for the critical role of research in developing effective treatments for ALS.