Media Room

ALS Canada is a source of accurate, up-to-date information about ALS and a point of contact for members of the media looking to inform the public about ALS, including the experiences of people living with the disease and the latest research developments with the potential to make ALS a treatable, not terminal disease.

Please review our recent news releases for the most up-to-date information about ALS research, awareness, and more. For more information or to request an interview with an ALS Canada spokesperson, please contact or call 416-497-2267 x234.

News Releases

ALS Canada awards $3 million for 12 new research projects to help make amyotrophic lateral sclerosis (ALS) a treatable, not terminal disease

TORONTO, November 22, 2017 – Today, the ALS Society of Canada announced 12 exciting new research projects being funded in 2017 through the ALS Canada Research Program, which is supported by ALS Societies across Canada. The research being funded includes a multi-year study of a promising drug combination, three trainee grants that will help to nurture the next generation…Read more.

Making ALS a treatable, not terminal disease – ALS Societies mark ALS Awareness Month in June

TORONTO, June 1, 2017 – The first day of June marks the beginning of ALS Awareness Month in Canada. And while more Canadians may be familiar with ALS as a result of the Ice Bucket Challenge in 2014, there remains much more work to do to help people understand the devastating impact of the disease, its terminal outcome, and the great need for better funding. Read more.

ALS Canada accredited by Imagine Canada’s National Standards Program

TORONTO, February 21, 2017 – Imagine Canada is a leader in the non-profit sector dedicated to supporting and strengthening Canadian organizations so that they can better support the Canadians and communities they serve. Their national Standards Program was established to build excellence in Canada’s charities and non-profits and to strengthen confidence in the sector. Read more.

Why do some people develop ALS while others do not? Canada joins international research partnership to find answers and better target the disease

TORONTO, January 10, 2017 – Canada has become the 17th country to join an international research partnership that is working to determine why some people develop ALS while others do not, with numerous Canadian ALS researchers stepping up in a cross-country collaboration that is among the first of its kind in the country… Read more.

New Canadian investments in ALS research reflect growing knowledge about the disease and increasing likelihood of effective treatments being developed

TORONTO, November 23, 2016 – The ALS Society of Canada (ALS Canada), in partnership with Brain Canada, today announced $4.5 million in funding for nine new ALS research projects. This means that since the Ice Bucket Challenge became a social media phenomenon in 2014, nearly $20 million has been invested in Canadian ALS research at a time when it has the potential to make the greatest impact…Read more.

Liberal MP Mauril Bélanger Takes the Lead as the National Honorary Spokesperson for the ALS Societies’ Across Canada WALK for ALS

MARKHAM, April 19, 2016 – Six months ago, Liberal MP Mauril Bélanger was running in the federal election, continuing his dedication of over 20 years to serving his constituents in the riding of Ottawa-Vanier. His life changed November 2015, when he was diagnosed with the terminal disease amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s… Read more.

ALS research in Canada receives historic $15 million investment

MONTREAL, November 19, 2015 – On the anniversary of the announcement of the 2014 ALS Ice Bucket Challenge results and partnership between ALS Canada and Brain Canada, the ALS Societies across Canada and the ALS Canada Research Program in partnership with Brain Canada, are pleased to announce the final recipients of the 2015 grant competitions…Read more.

Study Shows Canadians Will Take Action to Fight ALS

MARKHAM, June 2, 2015 – In 2014, over 260,000 Canadians dumped a bucket of ice over their heads and made a donation through the ALS Ice Bucket Challenge. They demonstrated a commitment to fight the terminal disease ALS, commonly referred to as Lou Gehrig’s Disease. The Challenge not only spurred Canadians to rally for the cause, but transformed awareness for the disease that previously was relatively unknown to Canadians…Read more.

ALS Canada Supports the Government of Canada’s Decision to Extend the Compassionate Care Benefit to 26 weeks

MARKHAM, April 21, 2015 – ALS Canada is pleased the Government of Canada has decided to extend the Compassionate Care Benefit (CCB) from 6 to 26 weeks – a benefit that will directly provide much needed financial assistance to Canadian families caring for a loved one with the terminal disease, ALS or amyotrophic lateral sclerosis…Read more.

260,000 Canadians raise over $16 million through ALS Ice Bucket Challenge

OTTAWA, November 19, 2014 – ALS Societies across Canada are pleased to announce the ALS Ice Bucket Challenge in Canada raised $16.2 million due to the generosity of more than 260,000 Canadians. This represents a record for donations to the ALS community in support of Canadians living with ALS and ALS research from one event…Read more.

The ALS Canada Board of Directors is pleased to announce the appointment of Tammy Moore as Chief Executive Officer to ALS Canada, effective November 10, 2014

MARKHAM, November 10, 2014 – The ALS Canada Board of Directors is pleased to announce the appointment of Tammy Moore as Chief Executive Officer to ALS Canada, effective November 10, 2014. Earlier this year, ALS Canada underwent a leadership transition, requiring the ALS Canada Board of Directors to embark on a competitive and comprehensive recruitment process to fill the role of CEO. Upon completing a thorough and rigorous process, Ms. Moore was chosen to execute ALS Canada’s strategic vision… Read more.