News

Applications are now open for the Canadian ALS Learning Institute (CALI), an online learning experience developed for people affected by ALS, including people living with the disease, caregivers, or bereaved caregivers, who want to better understand ALS research, therapy development…

Dr. Laurence Rouleau's work will explore an understudied area of ALS care and end-of-life decision-making TORONTO, ON, October 8, 2026 - For people living with Amyotrophic Lateral Sclerosis (ALS), decisions about care become increasingly complex as the disease progresses, making…

Our bimonthly Fundamental Research Update keeps you informed about the latest advances in lab-based ALS research. We break down new studies using cellular and animal models, highlight progress on promising preclinical targets, breakdown trending research news, and showcase Canadian led science. For other news on clinical research and trials, read our Clinical…

Living with ALS can bring many changes, including financial questions that may be difficult to navigate. As needs evolve, people living with ALS and their families may find themselves considering income and benefits, taxes, care-related costs, legal planning, and other…

Military veterans face an increased risk of developing ALS, underscoring how much more we need to understand about the disease and the need to accelerate progress toward effective treatments. ALS Canada, alongside the ALS community across Canada, continues to advocate…

Cyclists choose from 25 km, 40 km and 90 km routes in Jordan, Ontario, united by a shared goal to support people affected by ALS JORDAN, ON, September 30, 2026 – On Sunday, October 4, cyclists will hit the road…

I never imagined that after my military career, the biggest fight of my life would be against a disease we understand so little about.” Bill Duff • veteran of the Royal Canadian Navy, who lived with ALS for more than…

FUS-ALS is a rare genetic form of ALS caused by variants in the FUS gene, accounting for less than one per cent of all ALS cases. FUS-ALS can be more common among people who develop ALS at a young age,…