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- Category: Advocacy
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- Category: Giving Tuesday
- Category: recherche
- Category: Research
- ALS Research Update, November 2020
- Ice Bucket Challenge Proceeds Help Fund First Canadian ALS Care and Management Guideline
- ALS Doesn’t Stop – So Neither Can Research Investment
- ALS Research Update, August 2020
- Ice Bucket Challenge continues to drive research discovery by providing new insights into ALS
- Can an animal model provide new insights into the formation of stress granules?
- ALS Canada: Committed to the bright future of Canada’s ALS researchers
- Can new understandings about nuclear speckles lead to new treatment options for ALS?
- Could newly discovered tags on TDP-43 protein explain its abnormal behaviour in ALS?
- Is the loss of normal function of C9ORF72 protein in a particular cell type a key driver of ALS disease processes?
- Top 10 Research Stories of 2019
- What is the role of a newly discovered protein in ALS?
- Is an experimental drug that can prevent abnormal protein behaviour in ALS already out there?
- ALS Canada Invests Almost $1.4 Million Towards Innovative ALS Research Projects In Pursuit of a Future Without ALS
- ALS Research Update | October 2019
- Creating a foundation for future therapies: The need for antibody validation in ALS research
- What’s all this FUS about? A new way of delivering future ALS treatments is off to a good start.
- ALS Research Update | August 2019
- From ice bucket to bucket list: how Margot is coping with ALS
- Leading Canadian ALS researcher stresses “time is of the essence”
- No time to lose: ALS Canada volunteer and fundraiser sees urgent need for change
- Can the key to slowing ALS progression be found in the immune cells of the brain?
- Partnering with the ALS community on a new assessment tool
- Can new understandings about RNA granules explain types of ALS?
- Does a previously unstudied protein play an important role in ALS?
- Can antibodies help diagnosis ALS faster?
- Does a viral infection play a role in ALS onset and progression?
- ALS Research Update | March 2019
- Can Advanced Brain Imaging Diagnose ALS Earlier?
- Could decreasing the over-excitability of motor neurons be a new way to treat ALS?
- Do newly-discovered alternative proteins play a role in ALS?
- Cutting-edge technology allows University of Toronto researchers to tackle ALS in a new way.
- Can a revolutionary gene-editing tool create better animal models for studying ALS?
- How are two of the most common occurrences in ALS related?
- Can measuring “biological age” explain why ALS affects people differently?
- Top 10 research stories of 2018
- ALS Society of Canada dedicates last of the matched Ice Bucket Challenge research funding to early-career researchers in pursuit of a future without ALS
- Thanks to donor generosity ALS Canada invests $1 million in innovative Canadian ALS research to provide a greater understanding of ALS
- ALS Research Update, October 2018
- Power in Numbers
- Can environmental impacts on genes explain why ALS affects people differently?
- New clinical trials for Canadians with ALS
- The impact of donor dollars on ALS research in Canada
- Every August Until A Cure 2018
- ALS Research Update, June 2018
- Can microscopic bubbles in our blood deliver ALS therapies effectively?
- Ice Bucket Challenge funded research published in scientific journal “Cell”
- Can insights about why eye muscles are resistant to ALS help preserve function in other muscles?
- The ALS Association Partners with the Motor Neurone Disease Association and the ALS Society of Canada to Establish the ALS Reproducible Antibody Platform
- ALS Research Update, February 2018
- Leveraging scientific advancements and open science to study ALS progression
- Could studying yeast help to answer questions about how ALS progresses?
- Could touchscreen technology improve testing for cognitive impairment in ALS?
- Comparing DNA profiles of Canadians with a similar heritage
- Most newsworthy research stories of 2017
- Can a guardian protein protect motor neurons from toxicity in ALS?
- Can probiotics play a protective role in ALS?
- Understanding if and how the body compensates for motor neuron loss in ALS
- Can a promising drug combination address one of the most defining biological characteristics of ALS?
- ALS Canada awards $3 million for 12 new research projects to help make amyotrophic lateral sclerosis (ALS) a treatable, not terminal disease
- ALS Research Update, November 2017
- Strengthening Canada’s Excellence in ALS Clinical Trials
- Research to help people with ALS stay active and independent
- Finding New Ways to Diagnose ALS Faster with Advanced Imaging
- Maximizing the impact of donor dollars for ALS research
- ALS researchers respond to the Ice Bucket Challenge
- Bench Strength: The Power of Collaboration Fuels Canada’s ALS Research
- Dr. Christen Shoesmith discusses the importance of donor support
- ALS Research Update, August 2017
- Eric Martineau: ALS Researcher Profile
- Audrey Labarre: ALS Researcher Profile
- Elsa Tremblay – ALS and the Neuromuscular Junction
- Pimozide: Everything Old is New Again
- Dr. Christen Shoesmith – ALS Best Practice Recommendations
- ALS Canada Webinar Series: Clinical Trials
- From Inquiry to Insight: Dr. Michael Strong
- Skin models for the study of ALS
- Every August Until A Cure
- Learning more about how gene mutations can cause ALS
- For Tom and Denis, the Ice Bucket Challenge is Personal
- Could viruses play a role in the onset or progression of ALS in people with a genetic link?
- Dr. Richard Bedlack’s Quest for ALS Discovery: The Truth is Out There
- Q&A with Dr. David Taylor, VP, Research
- ALS Canada Webinar Series: Research Update
- The ALS Canada Research Program
- Could state-of-the-art gene editing play a role in correcting genetic mutations linked to the development of ALS?
- A second ALS treatment, edaravone, has been newly approved in the United States
- New Canadian investments in ALS research reflect growing knowledge about the disease and increasing likelihood of effective treatments being developed
- Canada’s rising stars in ALS research receive more than $1 million from the ALS Canada Research Program and Brain Canada
- Ice Bucket Challenge leads to ALS gene discovery
- New bona fide ALS gene discovered by international group of researchers
- Category: Stories
- Your messages of hope, strength and resiliency during the holiday season
- My brother Andrew, my only sibling, my closest friend.
- For What Counts: ALS Canada’s 2019 Annual Report
- Meet Steven, aka Superman, Batman, or the Hulk
- Luckiest of the unlucky: keeping a positive mindset in the face of ALS
- The end of the year brings reflection and renewed perspective
- When you live with ALS, you can’t afford to take time for granted
- Holiday gatherings connect family and honour a mother’s memory
- Because of you: Over $2 million raised through Walk to End ALS events in Ontario
- Through sickness and health: a couple’s love perseveres in the face of ALS
- Walking to increase funding for ALS research
- Creating with her hands until she no longer can
- Walking to end ALS when ALS runs in the family
- Finding ways to make a meaningful difference while living with ALS
- Learning about ALS for the first time: young people share their perspectives
- “Team Ed” a demonstration of love and support at the Walk to End ALS
- Young mother of three adapts to life with ALS
- ALS took Eddy’s voice – today he has it back again
- A Thanksgiving reminder to treasure those we care about
- The emotional challenges of ALS
- Richard and Heather leave gifts of hope for the future
- A Mother’s Day story of love and devotion
- In Memoriam: Professor Stephen Hawking
- A Family Day message of hope, love and laughter
- A shift in perspective over the holidays
- A Giving Tuesday story of mental resilience and creative expression
- Seizing Today by Planning for Tomorrow
- A story of unwavering positivity in the face of ALS
- Awareness Month Round-Up
- Caring for a loved one with ALS brings poignant new perspectives
- The Power of Love: “As long as we’re together, everything will be alright”
- Building “a beautiful life” with dignity and respect
- How a grandson learned to cherish every moment
- From grief to hope: how my grandfather’s ALS diagnosis gave me purpose
- “I am so much more than my physical abilities”
- A Daughter’s Resolution to Honour her Father
- Finding Comfort in Creativity
- Eddy is Living Life on his Terms
- Seizing Today with Passion and Humour
- Carol: Living, Loving and Laughing Today
- A Walk for Remembrance and Awareness
- “Life is beautiful:” Seizing Today with love, support and adventure
- A positive mental attitude continues to drive Don’s daily workout
- Losing mobility never stopped Tim from walking through life with a smile
- John: Getting by with a little help from his friends
- There’s no better time than right now to seize today
- Honouring Mom this Mother’s Day, and always
- Fulfilling a promise and a passion
- Finding support, hope, and community through volunteering
- Fighting for Genetic Fairness
- Making a meaningful contribution
- Living, Loving, Laughing… and Volunteering
- “Compassion is what drives us.”
- “When you are loved, you have everything:” ALS Canada ambassador Eddy Lefrançois reflects on 25 years living with ALS
- National Family Caregiver Day: A conversation with ALS Caregiver Jonathan Corber
- Trevor and Jennifer: Finding love while living with ALS
- Living with ALS during the Holidays: the Peacock Family
- ALS societies across Canada mourn the loss of Mauril Bélanger
- June is ALS awareness month
- Love wins against ALS
- The holidays will never be the same for John
- Today is Giving Tuesday
- Thank you to everyone who took the ALS Ice Bucket Challenge 2.0
- ALS community challenges Canada to take the ALS Ice Bucket Challenge
- Where your dollars went from the 2014 ALS Ice Bucket Challenge
- Category: Support & Services
- Category: Update
- Category: Volunteers
- Category: WALK for ALS
- Category: Walk To End ALS
Blog Posts
- Your messages of hope, strength and resiliency during the holiday season
- My brother Andrew, my only sibling, my closest friend.
- ALS Research Update, November 2020
- ALS gave me a different perspective
- Ice Bucket Challenge Proceeds Help Fund First Canadian ALS Care and Management Guideline
- ALS Doesn’t Stop – So Neither Can Research Investment
- Maintaining dignity, independence and safety through ALS Canada’s Equipment Loan Program
- Thanks to our ALS Canada Research Forum sponsors for standing with us
- Tips for successful virtual fundraising
- ALS Research Update, August 2020
- COVID-19 and the impact of your donor dollars
- June 2020 PMPRB Draft Guidelines
- For What Counts: ALS Canada’s 2019 Annual Report
- ALS Canada community support services continue to evolve during COVID-19
- The virtual Walk to End ALS was a day to remember
- Team “Living into a Cure” is keeping hope alive
- ALS Canada welcomes three new Board members in 2020/21
- You’re invited to the Walk to End ALS virtual finish line!
- A Duty to help
- ALS Canada thanks outgoing Board members for dedication to our shared cause
- Resilient spirit sparks desire to live well and to give back
- Daughter raises record amount for virtual Walk to End ALS
- Day 8: Get creative!
- Uncharted territory just “part of the journey” for 2020 virtual Walk participants
- How you can get ready for ALS Awareness Month
- ALS Research Update, May 2020
- Meet Steven, aka Superman, Batman, or the Hulk
- Your Walk, your way: Getting ready for June 21
- COVID-19 Update
- Celebrating the strength of ALS Canada’s volunteer community
- Ice Bucket Challenge continues to drive research discovery by providing new insights into ALS
- Together we are stronger: The ALS community takes to Ottawa
- Access to Therapies: Radicava (edaravone) Update
- COVID-19 Update: A message from our CEO
- Luckiest of the unlucky: keeping a positive mindset in the face of ALS
- Can an animal model provide new insights into the formation of stress granules?
- ALS Canada: Committed to the bright future of Canada’s ALS researchers
- Can new understandings about nuclear speckles lead to new treatment options for ALS?
- Could newly discovered tags on TDP-43 protein explain its abnormal behaviour in ALS?
- Radicava (edaravone): Take Action for Access
- Is the loss of normal function of C9ORF72 protein in a particular cell type a key driver of ALS disease processes?
- Top 10 Research Stories of 2019
- What is the role of a newly discovered protein in ALS?
- Is an experimental drug that can prevent abnormal protein behaviour in ALS already out there?
- Giving back honours a father’s sacrifice and untimely passing
- The end of the year brings reflection and renewed perspective
- When you live with ALS, you can’t afford to take time for granted
- Holiday gatherings connect family and honour a mother’s memory
- Because of you: Over $2 million raised through Walk to End ALS events in Ontario
- Through sickness and health: a couple's love perseveres in the face of ALS
- ALS Canada Invests Almost $1.4 Million Towards Innovative ALS Research Projects In Pursuit of a Future Without ALS
- ALS Research Update | October 2019
- A London children’s choir sings to support ALS Canada
- Creating a foundation for future therapies: The need for antibody validation in ALS research
- Understanding the Issues: 2019 Federal Election Health Commitments
- Walking to increase funding for ALS research
- In the face of ALS, Dad is a hero and community is everything
- What’s all this FUS about? A new way of delivering future ALS treatments is off to a good start.
- Think you have what it takes to pull a plane?
- Creating with her hands until she no longer can
- Walking to end ALS when ALS runs in the family
- Finding ways to make a meaningful difference while living with ALS
- ALS Research Update | August 2019
- Mother and son hold on to precious time left together
- From ice bucket to bucket list: how Margot is coping with ALS
- How you can fundraise for ALS Canada through Facebook
- Leading Canadian ALS researcher stresses “time is of the essence”
- No time to lose: ALS Canada volunteer and fundraiser sees urgent need for change
- How charitable action inspired a cross-Canada bike journey
- Loss and healing: A 900-km bike ride to drive ALS awareness
- Because Of You: ALS Canada’s 2018 Annual Report
- From the Boston Marathon to the Walk to End ALS
- Fighting for more time – to dream, to live, to be with loved ones
- Walking in memory fuels hope and strengthens community
- Coach Sunshine’s ‘never quit attitude’ can help change the future of ALS
- Community spirit ignites passion to increase ALS awareness
- Finding inspiration from the small things makes a big difference
- It's about time to change the reality of ALS
- Learning about ALS for the first time: young people share their perspectives
- Music and resiliency: lessons from my father
- Reinforcing spiritual values through community connection
- Offsetting the loneliness and isolation of an ALS diagnosis with love and support
- Can the key to slowing ALS progression be found in the immune cells of the brain?
- Positive and pragmatic – an approach for one family facing the realities of ALS
- “Team Ed” a demonstration of love and support at the Walk to End ALS
- Partnering with the ALS community on a new assessment tool
- Augie’s Quest and ALS Research in Canada
- Can new understandings about RNA granules explain types of ALS?
- Does a previously unstudied protein play an important role in ALS?
- Celebrating Your Impact: ALS Canada Volunteers
- Can antibodies help diagnosis ALS faster?
- Does a viral infection play a role in ALS onset and progression?
- ALS Research Update | March 2019
- Can Advanced Brain Imaging Diagnose ALS Earlier?
- Could decreasing the over-excitability of motor neurons be a new way to treat ALS?
- What’s the story with CuATSM
- Do newly-discovered alternative proteins play a role in ALS?
- ALS Research Matters
- Cutting-edge technology allows University of Toronto researchers to tackle ALS in a new way.
- Can a revolutionary gene-editing tool create better animal models for studying ALS?
- How are two of the most common occurrences in ALS related?
- Can measuring “biological age” explain why ALS affects people differently?
- Wrapping up the holiday giving season
- Top 10 research stories of 2018
- Young mother of three adapts to life with ALS
- Holiday Gift Ideas
- ALS Society of Canada dedicates last of the matched Ice Bucket Challenge research funding to early-career researchers in pursuit of a future without ALS
- An author’s “silent rebellion” against ALS
- Keeping hope alive this holiday season
- Giving Tuesday 2018
- Thanks to donor generosity ALS Canada invests $1 million in innovative Canadian ALS research to provide a greater understanding of ALS
- ALS Canada Strengthens Partnerships Within the Health Charities Sector
- ALS took Eddy’s voice – today he has it back again
- The Do's and Dont's of Pulling a Plane
- Pulling together - with our sponsors - to end ALS
- ALS Research Update, October 2018
- A Thanksgiving reminder to treasure those we care about
- Health Canada has approved Radicava (edaravone), a second ALS treatment for Canadians
- Power in Numbers
- ALS Canada's Plane Pull to End ALS moves to Downtown Toronto
- ALS Canada Brings the Eighth Annual Plane Pull to End ALS to Billy Bishop Airport
- Living with ALS, one day at a time
- Can environmental impacts on genes explain why ALS affects people differently?
- Toronto family reflects on the realities of “living and dying” with ALS
- New clinical trials for Canadians with ALS
- WALKing for ALS with gratitude and positivity
- The impact of donor dollars on ALS research in Canada
- A Community Connected
- Every August Until A Cure 2018
- The emotional challenges of ALS
- Wrapping up ALS Awareness Month
- Mother and daughter caregiving team reach out with love and compassion
- Healing through giving: A daughter’s story
- Enduring love of a ‘forever husband’ inspires hope
- A Caregiver’s Story, Part 3: Looking forward, looking back
- A Caregiver’s Story, Part 2: Speaking out against the helplessness of ALS
- A Caregiver’s Story, Part 1: Championing the ALS cause
- How it feels knowing your daughter has ALS
- Radicava (edaravone): Make your voice heard
- Giving back to stop ALS from taking more
- ALS Research Update, June 2018
- Long-time altruist lends his voice to ALS cause
- Acting against everything that ALS takes
- Almost 30 years living with ALS and volunteering just as long
- Walking for a common cause keeps the Bailis family connected
- Walk to End ALS fundraiser inspired by the hope of future treatments
- Richard and Heather leave gifts of hope for the future
- Making life better for people living with ALS today inspires couple to pay it forward
- Kingston family raises funds, awareness and hope for a future without ALS
- A decade of strength, support and hope in Georgetown/Acton
- Can microscopic bubbles in our blood deliver ALS therapies effectively?
- A Mother's Day story of love and devotion
- Halton family challenges ALS by giving back to the community
- Ice Bucket Challenge funded research published in scientific journal "Cell"
- A message from ALS Canada to our volunteers
- Young fundraisers making a big impact
- National Volunteer Week | Debbie Damario and Ashley Dunseith
- National Volunteer Week | Judith Malvern
- Shining a light on volunteerism across the board
- How new drugs become approved and available to Canadians
- Become a monthly donor and contribute to a future without ALS
- Can insights about why eye muscles are resistant to ALS help preserve function in other muscles?
- ALS Canada responds to the #ALSPepperChallenge
- In Memoriam: Professor Stephen Hawking
- The ALS Association Partners with the Motor Neurone Disease Association and the ALS Society of Canada to Establish the ALS Reproducible Antibody Platform
- ALS Research Update, February 2018
- A Family Day message of hope, love and laughter
- Breaking a sweat for ALS research
- Leveraging scientific advancements and open science to study ALS progression
- Could studying yeast help to answer questions about how ALS progresses?
- Could touchscreen technology improve testing for cognitive impairment in ALS?
- Comparing DNA profiles of Canadians with a similar heritage
- Most newsworthy research stories of 2017
- Can a guardian protein protect motor neurons from toxicity in ALS?
- A shift in perspective over the holidays
- Can probiotics play a protective role in ALS?
- Understanding if and how the body compensates for motor neuron loss in ALS
- Who does what?
- Talking about ALS with friends and family poses special challenges for caregivers
- A Giving Tuesday story of mental resilience and creative expression
- Can a promising drug combination address one of the most defining biological characteristics of ALS?
- ALS Canada awards $3 million for 12 new research projects to help make amyotrophic lateral sclerosis (ALS) a treatable, not terminal disease
- Communicating an ALS diagnosis
- Holiday gift ideas for someone living with ALS
- New Board appointments in 2017/18
- ALS Research Update, November 2017
- Strengthening Canada’s Excellence in ALS Clinical Trials
- Research to help people with ALS stay active and independent
- The power of connection – one family’s experience with ALS
- Finding New Ways to Diagnose ALS Faster with Advanced Imaging
- Deanna Fennell: moving forward and giving back
- Kristine Lee: making adjustments along the way
- Maximizing the impact of donor dollars for ALS research
- 7 Ways to Support ALS Canada this fall
- ALS researchers respond to the Ice Bucket Challenge
- Bench Strength: The Power of Collaboration Fuels Canada’s ALS Research
- Dr. Christen Shoesmith discusses the importance of donor support
- Toilets are turning heads and raising awareness for ALS in the Soo!
- ALS Research Update, August 2017
- Eric Martineau: ALS Researcher Profile
- Audrey Labarre: ALS Researcher Profile
- Elsa Tremblay - ALS and the Neuromuscular Junction
- Pimozide: Everything Old is New Again
- Dr. Christen Shoesmith - ALS Best Practice Recommendations
- ALS Canada Webinar Series: Clinical Trials
- From Inquiry to Insight: Dr. Michael Strong
- Skin models for the study of ALS
- Every August Until A Cure
- Learning more about how gene mutations can cause ALS
- For Tom and Denis, the Ice Bucket Challenge is Personal
- Could viruses play a role in the onset or progression of ALS in people with a genetic link?
- Dr. Richard Bedlack’s Quest for ALS Discovery: The Truth is Out There
- Q&A with Dr. David Taylor, VP, Research
- Improved community-based support for people living with ALS
- Do you use ALS Canada’s Equipment Loan Program? Improvements are here!
- Now available: ALS Canada’s 2016 Annual Report
- Seizing Today by Planning for Tomorrow
- A story of unwavering positivity in the face of ALS
- MPs give ALS a voice in Parliament
- Awareness Month Round-Up
- ALS Canada Webinar Series: Research Update
- Caring for a loved one with ALS brings poignant new perspectives
- The Power of Love: “As long as we’re together, everything will be alright”
- Building “a beautiful life” with dignity and respect
- How a grandson learned to cherish every moment
- From grief to hope: how my grandfather’s ALS diagnosis gave me purpose
- “I am so much more than my physical abilities”
- A Daughter’s Resolution to Honour her Father
- Finding Comfort in Creativity
- Eddy is Living Life on his Terms
- Seizing Today with Passion and Humour
- Carol: Living, Loving and Laughing Today
- Improving support for people and families living with ALS
- A Walk for Remembrance and Awareness
- “Life is beautiful:” Seizing Today with love, support and adventure
- A positive mental attitude continues to drive Don’s daily workout
- Losing mobility never stopped Tim from walking through life with a smile
- The ALS Canada Research Program
- John: Getting by with a little help from his friends
- There’s no better time than right now to seize today
- Could state-of-the-art gene editing play a role in correcting genetic mutations linked to the development of ALS?
- Paying it forward to benefit people with ALS in the future
- Honouring Mom this Mother's Day, and always
- A second ALS treatment, edaravone, has been newly approved in the United States
- Fulfilling a promise and a passion
- Finding support, hope, and community through volunteering
- Fighting for Genetic Fairness
- Making a meaningful contribution
- Living, Loving, Laughing... and Volunteering
- “Compassion is what drives us.”
- “When you are loved, you have everything:” ALS Canada ambassador Eddy Lefrançois reflects on 25 years living with ALS
- Upcoming Webinar: The Canadian ALS Neuroimaging Consortium (CALSNIC)
- National Family Caregiver Day: A conversation with ALS Caregiver Jonathan Corber
- Trevor and Jennifer: Finding love while living with ALS
- Living with ALS during the Holidays: the Peacock Family
- New Canadian investments in ALS research reflect growing knowledge about the disease and increasing likelihood of effective treatments being developed
- Canada’s rising stars in ALS research receive more than $1 million from the ALS Canada Research Program and Brain Canada
- WALK for ALS early results: $3.9 million (and counting!) raised nationwide
- ALS societies across Canada mourn the loss of Mauril Bélanger
- Ice Bucket Challenge leads to ALS gene discovery
- June is ALS awareness month
- Become a fundraiser through community engagement
- Love wins against ALS
- Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks
- The holidays will never be the same for John
- Today is Giving Tuesday
- Thank you to everyone who took the ALS Ice Bucket Challenge 2.0
- ALS community challenges Canada to take the ALS Ice Bucket Challenge
- Where your dollars went from the 2014 ALS Ice Bucket Challenge
- New bona fide ALS gene discovered by international group of researchers
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