How new drugs become approved and available to Canadians

With the news that manufacturer MT Pharma is pursuing the regulatory channels necessary to bring the drug edaravone to Canada, the ALS community in this country finds itself facing the possibility of a second treatment option nearly 20 years after riluzole was approved. But how does any new drug become approved in Canada – and […]

National Family Caregiver Day: A conversation with ALS Caregiver Jonathan Corber

Jonathan Corber is an ALS Canada Ambassador. After his mother, Wendy, was diagnosed with ALS in February 2016, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Jonathan took some time to connect with us recently to share his experience as his mother’s caregiver for […]

ALS societies across Canada mourn the loss of Mauril Bélanger

Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016 WALK for ALS. As someone who spent much of his adult life in a role […]

Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks

We are pleased to advise you that the Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks. Effective January 3, 2016, caregivers can now claim up to $13,624 in benefits, where previously it was $3,144. We hope this announcement will now relieve some […]