How charitable action inspired a cross-Canada bike journey

Last spring, Mike Leech, 59, approached his plant manager to request a 2-month leave from work to complete a bike ride across Canada for charity. An avid cyclist, he dreamed of cycling coast to coast but he wanted to make it more than just a physical challenge. He wanted to raise awareness and money for […]

Loss and healing: A 900-km bike ride to drive ALS awareness

Miles4Matty is part of Adam Foley’s search for meaning after losing his brother, Matthew (aka Matty), who passed of ALS in 2014 at the age of 38. Adam and Matthew were roommates at the time of the diagnosis. When Matthew’s mobility became a significant challenge, they moved into a more accessible apartment together where Adam […]

From the Boston Marathon to the Walk to End ALS

On June 15, Don Doan participated in the Walk to End ALS in Brampton for the fourth time. It’s been three years since he was able to walk the course, but his positive outlook hasn’t changed. There are always people around, including his wife, Pam, to help with his wheelchair. “Generally, it’s a fight over […]

Fighting for more time – to dream, to live, to be with loved ones

Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk without assistance. “Now that I am living with ALS, the roles are a bit reversed,” […]

Living with ALS during the Holidays: the Peacock Family

When a friend or loved one is living with ALS, the holiday season can be a difficult time. This is certainly true for the Peacock family ever since husband and father Jeff was diagnosed with ALS three years ago. This year, Jeff won’t be able to decorate the tree, hand out gifts or enjoy dinner […]

WALK for ALS early results: $3.9 million (and counting!) raised nationwide

Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe. In communities across the country – from Victoria, BC to St. John’s, NL, and from Windsor, ON to Whitehorse, […]

ALS societies across Canada mourn the loss of Mauril Bélanger

Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016 WALK for ALS. As someone who spent much of his adult life in a role […]

June is ALS awareness month

Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the […]

Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks

We are pleased to advise you that the Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks. Effective January 3, 2016, caregivers can now claim up to $13,624 in benefits, where previously it was $3,144. We hope this announcement will now relieve some […]

Thank you to everyone who took the ALS Ice Bucket Challenge 2.0

Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game. We want to thank […]

ALS community challenges Canada to take the ALS Ice Bucket Challenge

“The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat […]

Where your dollars went from the 2014 ALS Ice Bucket Challenge

Canada you made a difference! $17 million was raised through the ALS Ice Bucket Challenge in 2014 ‪ ALS Research: $11.5 million went to ALS research from ALS Societies across Canada We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program By October 2015 $12.9 MILLION to be invested in […]