When Shelly Gregory first noticed her speech was slurred two years ago, she drove herself to the hospital in Belleville thinking she was having a stroke. Eight months later, in May 2018, she learned she had bulbar onset amyotrophic lateral sclerosis – a form of ALS that first affects people from the neck up. Since […]
Creating with her hands until she no longer can
Published in Stories, Walk To End ALS on September 12, 2019
Tags: 2019-personal-stories, ALS, als cure, als stories, community, community engagement, Donate to ALS, families with ALS, find a cure for ALS, living with ALS, support, walk to end als
Leading Canadian ALS researcher stresses “time is of the essence”
Published in Research, Stories on August 9, 2019
Tags: 2019-personal-stories, ALS Canada Research Program, als cure, ALS research, Donate to ALS, Every August, find a cure for ALS, funding als research, fundraising, genetic research, motor neuron disease, research
“When you start researching ALS, it becomes a life mission,” says Dr. Janice Robertson, a prominent figure in the ALS research community in Canada and abroad. Dr. Robertson is studying variations within the brain and spinal cord of people living with ALS using two powerful new technologies that allow researchers to examine the nuclei of […]
No time to lose: ALS Canada volunteer and fundraiser sees urgent need for change
Published in Research, Stories, Volunteers on August 2, 2019
Tags: 2019-personal-stories, ALS Canada Research Program, als cure, ALS research, caregiving, Donate to ALS, Every August, Every August Until A Cure, fundraising, Ice Bucket Challenge, living with ALS, motor neuron disease
Beth Robertson’s husband, Tim, lived courageously with ALS for 12 years. He was sustained by the loving presence of his wife, Beth, his three children, and a large network of family and friends. Beth says she would do it all over again for Tim, but she admits ALS is a terrible burden for everyone it […]
Because Of You: ALS Canada’s 2018 Annual Report
Published in Advocacy, Fund Development on June 24, 2019
Tags: advocacy, als cure, Donate to ALS, donating to ALS, edaravone, find a cure for ALS, fundraising, research funding, Research update
Every day, more than 3,000 people and families throughout Ontario and Canada live with the realities of ALS, a devastating disease that takes away dreams, abilities, and lives. But for all ALS takes, it cannot take away our shared desire for a future without this disease. We rely on you – our generous donors – […]
Offsetting the loneliness and isolation of an ALS diagnosis with love and support
Published in Events, Walk To End ALS on May 23, 2019
Tags: 2019-personal-stories, ALS, als cure, als research is important, als research matters, Amyotrophic lateral sclerosis, Amyotrophic lateral sclerosis cure, motor neuron disease, treating als, walk to end als
For the past 40 years, Dale Hodgins has been saving lives as a paramedic and volunteer firefighter in Kingston, Ontario. In December 2018, he was diagnosed with ALS – a disease he was already familiar with through his work. As far back as the 80s and 90s, Dale remembers driving people living with ALS home […]
Positive and pragmatic – an approach for one family facing the realities of ALS
Published in Events, Walk To End ALS on May 15, 2019
Tags: 2019-personal-stories, ALS, als cure, als research is important, als research matters, Amyotrophic lateral sclerosis, Amyotrophic lateral sclerosis cure, finding a cure for als, finding a cure for motor neurone disease, motor neuron disease, motor neurone disease cure, treating als, walk to end als
According to Kevin, there’s one word that sums up ALS: a thief. “ALS is a thief – and a remorseless one at that,” he explains in writing. Now that he can no longer speak, he uses eye gaze technology to type messages with his eyes – his only method of communicating. “The sooner we can arrest […]