Q&A with Dr. David Taylor, VP, Research

This interview was originally posted on the Hitfar website in February 2017. Thank you to Hitfar for giving ALS Canada permission to re-post this content. Could you start by explaining the disease and its effects? ALS is a disease where the living wires, called motor neurons, that connect your brain to your muscles die. This means […]

Improved community-based support for people living with ALS

Updated November 28, 2017 As we mentioned in an earlier post, ALS Canada has made some improvements to our service offering with the goal of strengthening the support we offer to people and families living with ALS in Ontario. In mid-July, we shared some of the enhancements made to our equipment program. Another important area […]

Fulfilling a promise and a passion

National Volunteer Week: Tara Wingrave With two 18 year-old daughters, a 19 year-old son, and a highly demanding job, life is hectic, but that won’s stop me from making the time to organize the Barrie WALK for ALS again this year. It’s something I feel passionate about, and it’s one of the most important ways […]

Finding support, hope, and community through volunteering

National Volunteer Week: Jacqui Devine They always say ALS is rare, so it’s surprising how many times you hear about people who have been diagnosed with the disease. In 2012, I was working as a personal support worker and my favourite client was living with ALS. Since I knew very little about it, I decided […]

“Compassion is what drives us.”

National Volunteer Week: Geneviève Bertrand Many of us who contribute to the work of ALS Canada as volunteers have a personal connection to ALS, whether we are living with the disease ourselves, or supporting or remembering a close family member, friend, colleague or acquaintance. We are spurred on by the hope for a cure, and want […]

National Family Caregiver Day: A conversation with ALS Caregiver Jonathan Corber

Jonathan Corber is an ALS Canada Ambassador. After his mother, Wendy, was diagnosed with ALS in February 2016, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Jonathan took some time to connect with us recently to share his experience as his mother’s caregiver for […]

Trevor and Jennifer: Finding love while living with ALS

This Valentine’s Day, we would like to highlight Trevor and Jennifer’s story about finding love while living with ALS. – Trevor was my first love in high school. Although short term, the strong connection we had was never forgotten. We lost track of each other but reconnected again after 28 years on Facebook in 2015. […]

Living with ALS during the Holidays: the Peacock Family

When a friend or loved one is living with ALS, the holiday season can be a difficult time. This is certainly true for the Peacock family ever since husband and father Jeff was diagnosed with ALS three years ago. This year, Jeff won’t be able to decorate the tree, hand out gifts or enjoy dinner […]

New Canadian investments in ALS research reflect growing knowledge about the disease and increasing likelihood of effective treatments being developed

The ALS Society of Canada (ALS Canada), in partnership with Brain Canada, today announced $4.5 million in funding for nine new ALS research projects. This means that since the Ice Bucket Challenge became a social media phenomenon in 2014, nearly $20 million has been invested in Canadian ALS research at a time when it has […]

WALK for ALS early results: $3.9 million (and counting!) raised nationwide

Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe. In communities across the country – from Victoria, BC to St. John’s, NL, and from Windsor, ON to Whitehorse, […]

ALS societies across Canada mourn the loss of Mauril Bélanger

Our hearts are heavy as we say good-bye to Mauril Bélanger, MP for Ottawa-Vanier. Diagnosed with ALS in late 2015, he partnered with the ALS Societies across Canada and took on the role of National Honorary Spokesperson for the 2016 WALK for ALS. As someone who spent much of his adult life in a role […]

Ice Bucket Challenge leads to ALS gene discovery

Earlier this week researchers announced that the gene NEK1 has been found to play a significant role in the development of amyotrophic lateral sclerosis (ALS). This landmark discovery is the result of an 11-country research collaboration that was funded through the Ice Bucket Challenge. The research team included 3 Canadians, one of whom was directly […]

June is ALS awareness month

Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the […]

Love wins against ALS

1988. At the office. A young independent redhead grabs Jocelyn’s attention immediately. She emits a contagious “joie de vivre” that instantly seduces the young man. Chantal, on the other hand, was charmed by Jocelyn’s ability to listen and his sincere consideration for everyone around him. After almost 23 years of marriage and a daughter named Maya, their […]

Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks

We are pleased to advise you that the Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks. Effective January 3, 2016, caregivers can now claim up to $13,624 in benefits, where previously it was $3,144. We hope this announcement will now relieve some […]

The holidays will never be the same for John

Last Christmas I was playing hockey. Now I need help to stand up. John Hamm, diagnosed with ALS in 2014 One of John Hamm’s favourite holiday traditions is playing pond hockey with his three kids. But this year, he won’t be strapping on skates. This holiday season, John’s wife Cathy will bundle him up in […]

Thank you to everyone who took the ALS Ice Bucket Challenge 2.0

Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game. We want to thank […]

ALS community challenges Canada to take the ALS Ice Bucket Challenge

“The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat […]

Where your dollars went from the 2014 ALS Ice Bucket Challenge

Canada you made a difference! $17 million was raised through the ALS Ice Bucket Challenge in 2014 ‪ ALS Research: $11.5 million went to ALS research from ALS Societies across Canada We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program By October 2015 $12.9 MILLION to be invested in […]

New bona fide ALS gene discovered by international group of researchers

A large consortium of researchers from six countries have definitively identified a new ALS gene called TANK-binding kinase 1 (TBK1) by performing a rigorous study that involved sequencing of more than 2800 people with ALS compared with more than 6000 control samples. Canadian researcher Dr. Guy Rouleau, Director of the Montreal Neurological Institute and his […]