James and Madeleine have been married for 55 years. Their shared life together has included three children, six grandchildren, and a beloved cottage that has been in the family for over five decades. ALS has forced the family to make some adjustments. For example, since James was diagnosed with ALS in 2013, he has lost […]
A shift in perspective over the holidays
Published in Stories on December 13, 2017
Tags: families with ALS, holidays
Communicating an ALS diagnosis
Published in Support & Services on November 20, 2017
Tags: als stories, families with ALS, living with ALS
There is no easy way to tell family and friends you have been diagnosed with ALS. And there is no right or wrong way, either. Individual personalities, family circumstances, and the degree to which the symptoms are visible can all play a role in when, how, and with whom to share the news. Lianne Johnston […]
Paying it forward to benefit people with ALS in the future
Published in Advocacy, Stories on May 24, 2017
Tags: caregiving, families with ALS, family, giving, giving back, legacy, living with ALS, support
Deirdre O’Connor and her husband, Floyd, became ALS Canada donors 15 years ago. At the time, they had no personal connection to the cause, but they liked the fact that ALS Canada was a small, cost-effective charitable organization without a lot of overhead. Deirdre’s generosity extends to half a dozen or more organizations she supports […]
Honouring Mom this Mother’s Day, and always
Published in Stories on May 13, 2017
Tags: als stories, care, caregiving, community, families with ALS, family, fundraising, living with ALS, Mother's Day, remembering, support, WALK for ALS
For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be the first Mother’s Day she spends without her mother, Margaret. After participating in the 2016 […]
National Family Caregiver Day: A conversation with ALS Caregiver Jonathan Corber
Published in Stories on April 4, 2017
Tags: advocacy, ALS, als stories, care, caregiving, families with ALS, living with ALS
Jonathan Corber is an ALS Canada Ambassador. After his mother, Wendy, was diagnosed with ALS in February 2016, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Jonathan took some time to connect with us recently to share his experience as his mother’s caregiver for […]
The holidays will never be the same for John
Published in Stories on December 15, 2015
Tags: ALS, als stories, awareness, care, caregiving, community, families with ALS
Last Christmas I was playing hockey. Now I need help to stand up. John Hamm, diagnosed with ALS in 2014 One of John Hamm’s favourite holiday traditions is playing pond hockey with his three kids. But this year, he won’t be strapping on skates. This holiday season, John’s wife Cathy will bundle him up in […]