ALS Research Update | October 2019

ALS Research Update, October 2019 Welcome to the October 2019 ALS Research update. This month, you’ll learn about the progress researchers have made in: transforming the way clinical trials are conducted; understanding the roles that the microbiome and protein clumping may play in ALS; and identifying the mechanisms by which different genes may contribute to […]

Walking to increase funding for ALS research

The Walk to End ALS events that take place across the province, throughout the year, mean different things to different people, but there is a common thread of support, community and knowing you’re not alone on this journey. James Young, a 42-year-old father of two young boys, considers himself one of the lucky ones. Diagnosed […]

Finding ways to make a meaningful difference while living with ALS

Until he was diagnosed with ALS in 2016, Alan Medcalf spent his adult life “in love with movement.” He was a snowboarder, cross-country skier, unicyclist, cyclist and competed as a runner, swimmer and triathlete. After a second hip replacement he cycled coast to coast across Canada in 2000 and logged over 100,000 km in the […]

ALS Research Update | August 2019

What’s happening in the world of ALS research at this point in the year? Read about the progress researchers have made in developing new and better models to study ALS in the lab, insights gained into the progression of ALS on a cellular level, new compounds identified as potential treatment strategies for ALS and the […]

From ice bucket to bucket list: how Margot is coping with ALS

Margot Algie heard about the ALS Ice Bucket Challenge in 2014 through friends and had no idea that only one year later, she would be diagnosed with the disease. Since then, she has come to understand firsthand the importance of maintaining the momentum of the viral social media phenomenon that resulted in a $21.5M investment […]

How you can fundraise for ALS Canada through Facebook

In late 2018, Facebook began offering the option for Canadians to create fundraisers for nonprofit organizations or for personal causes. Since then many of you have reached out to us with questions about how these giving options can be used to support ALS Canada. We know Facebook can be a quick and easy way to […]

Leading Canadian ALS researcher stresses “time is of the essence”

“When you start researching ALS, it becomes a life mission,” says Dr. Janice Robertson, a prominent figure in the ALS research community in Canada and abroad. Dr. Robertson is studying variations within the brain and spinal cord of people living with ALS using two powerful new technologies that allow researchers to examine the nuclei of […]

How charitable action inspired a cross-Canada bike journey

Last spring, Mike Leech, 59, approached his plant manager to request a 2-month leave from work to complete a bike ride across Canada for charity. An avid cyclist, he dreamed of cycling coast to coast but he wanted to make it more than just a physical challenge. He wanted to raise awareness and money for […]

Loss and healing: A 900-km bike ride to drive ALS awareness

Miles4Matty is part of Adam Foley’s search for meaning after losing his brother, Matthew (aka Matty), who passed of ALS in 2014 at the age of 38. Adam and Matthew were roommates at the time of the diagnosis. When Matthew’s mobility became a significant challenge, they moved into a more accessible apartment together where Adam […]

Fighting for more time – to dream, to live, to be with loved ones

Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk without assistance. “Now that I am living with ALS, the roles are a bit reversed,” […]

Walking in memory fuels hope and strengthens community

Lise Michaud’s brother, Eddy Lefrançois, made every day count. He lived nearly three decades with ALS, proudly defying the odds and outliving his “expiry date” (EXP: 04.97) which he tattooed on the inside of his forearm as a reminder to live with passion and purpose. Eddy’s personal motto – “Let’s Roll” – always kept him […]

Finding inspiration from the small things makes a big difference

Brian Bower has always been passionate about sports. Above all, he is an ardent fisherman, known on occasion to snatch 15 minutes from his day for the joy of casting a line in one of the abundant waterways in and around Welland, where he lives. Brian also loves soccer, tennis, lacrosse, hockey and baseball. An […]

Music and resiliency: lessons from my father

Talking about his dad’s ALS diagnosis, Connor Stratton, 17, says, “It’s a hard thing to understand at times, but it’s good to try to look at the bright side because my dad still has his spirits up. He’s still happy around us, and that’s something that reflects on all of us.” Kerry Stratton, a well-known […]

Reinforcing spiritual values through community connection

Since receiving his ALS diagnosis in February 2018, Mark Ianniello’s life has changed in profound ways. He is a 49-year-old father to three teenagers and can no longer work to help support his family. ALS has affected his speech and his mobility. Mark admits to having ups and downs. Despite the challenges, he says ALS […]