Walking to increase funding for ALS research

The Walk to End ALS events that take place across the province, throughout the year, mean different things to different people, but there is a common thread of support, community and knowing you’re not alone on this journey. James Young, a 42-year-old father of two young boys, considers himself one of the lucky ones. Diagnosed […]

In the face of ALS, Dad is a hero and community is everything

Kelsey Barker describes her dad, Jeff, as her hero. Diagnosed with ALS in February 2018, he has since lost the use of his right arm and is now having difficulty breathing and walking – but ALS has not changed the person he is. “He lights up a room. He is selfless and courageous. He pushes […]

Mother and son hold on to precious time left together

Five years ago, when the ALS Ice Bucket Challenge went viral in 2014, Mario knew very little about ALS, and had no idea how it would affect his life. Because of a co-worker whose dad was living with ALS, Mario completed the ALS Ice Bucket Challenge. “Once I got tagged in a post there was […]

From ice bucket to bucket list: how Margot is coping with ALS

Margot Algie heard about the ALS Ice Bucket Challenge in 2014 through friends and had no idea that only one year later, she would be diagnosed with the disease. Since then, she has come to understand firsthand the importance of maintaining the momentum of the viral social media phenomenon that resulted in a $21.5M investment […]

How you can fundraise for ALS Canada through Facebook

In late 2018, Facebook began offering the option for Canadians to create fundraisers for nonprofit organizations or for personal causes. Since then many of you have reached out to us with questions about how these giving options can be used to support ALS Canada. We know Facebook can be a quick and easy way to […]

Leading Canadian ALS researcher stresses “time is of the essence”

“When you start researching ALS, it becomes a life mission,” says Dr. Janice Robertson, a prominent figure in the ALS research community in Canada and abroad. Dr. Robertson is studying variations within the brain and spinal cord of people living with ALS using two powerful new technologies that allow researchers to examine the nuclei of […]

No time to lose: ALS Canada volunteer and fundraiser sees urgent need for change

Beth Robertson’s husband, Tim, lived courageously with ALS for 12 years. He was sustained by the loving presence of his wife, Beth, his three children, and a large network of family and friends. Beth says she would do it all over again for Tim, but she admits ALS is a terrible burden for everyone it […]

How charitable action inspired a cross-Canada bike journey

Last spring, Mike Leech, 59, approached his plant manager to request a 2-month leave from work to complete a bike ride across Canada for charity. An avid cyclist, he dreamed of cycling coast to coast but he wanted to make it more than just a physical challenge. He wanted to raise awareness and money for […]

Loss and healing: A 900-km bike ride to drive ALS awareness

Miles4Matty is part of Adam Foley’s search for meaning after losing his brother, Matthew (aka Matty), who passed of ALS in 2014 at the age of 38. Adam and Matthew were roommates at the time of the diagnosis. When Matthew’s mobility became a significant challenge, they moved into a more accessible apartment together where Adam […]

Because Of You: ALS Canada’s 2018 Annual Report

Every day, more than 3,000 people and families throughout Ontario and Canada live with the realities of ALS, a devastating disease that takes away dreams, abilities, and lives. But for all ALS takes, it cannot take away our shared desire for a future without this disease. We rely on you – our generous donors – […]

Toilets are turning heads and raising awareness for ALS in the Soo!

Last summer when her mother Deloris was diagnosed with amyotrophic lateral sclerosis (ALS), Jennifer Tranberg decided to plan a community fundraising event in conjunction with members of her son’s hockey team, the Sault Ste. Marie Pee Wee Major AA Junior Greyhounds. With so many special events competing for charitable giving, Jennifer wanted to come up […]

Honouring Mom this Mother’s Day, and always

For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be the first Mother’s Day she spends without her mother, Margaret. After participating in the 2016 […]

WALK for ALS early results: $3.9 million (and counting!) raised nationwide

Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe. In communities across the country – from Victoria, BC to St. John’s, NL, and from Windsor, ON to Whitehorse, […]

Today is Giving Tuesday

Today is Giving Tuesday. On this very special day of giving from the heart, I hope you’ll give the most precious gift of all — the gift of hope. Right now, approximately 3,000 Canadians are living with ALS (Amyotrophic Lateral Sclerosis) — a degenerative disease that quickly and progressively steals a person’s mobility, speech and […]

Thank you to everyone who took the ALS Ice Bucket Challenge 2.0

Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game. We want to thank […]

ALS community challenges Canada to take the ALS Ice Bucket Challenge

“The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat […]

Where your dollars went from the 2014 ALS Ice Bucket Challenge

Canada you made a difference! $17 million was raised through the ALS Ice Bucket Challenge in 2014 ‪ ALS Research: $11.5 million went to ALS research from ALS Societies across Canada We have seen a 70% INCREASE in grant applications through the ALS Canada Research Program By October 2015 $12.9 MILLION to be invested in […]