An author’s “silent rebellion” against ALS

Prior to 2009, Zehra Madenli was an active college student, studying Fashion Management at George Brown College in Toronto. She was talkative and outgoing, and loved spending time outdoors. Everything changed when Zehra was diagnosed with ALS. Within 12 months of diagnosis, she lost the ability to move and speak. Day by day, Zehra lost […]

Keeping hope alive this holiday season

2018 has been a year of promising discoveries and encouraging clinical trials, but ALS continues to rob countless moments from too many families – families like the Corbers who know all too well the gaps ALS can leave in people’s lives. Today, on Giving Tuesday, every donation to ALS Canada will be 100% matched by […]

Giving Tuesday 2018

When you live with a terminal disease like ALS, losing the use of your arms means losing the ability to hug those you love. Losing the use of your legs means you now watch — not run through the park with — your children. Losing the ability to speak means never again saying, “I love […]

A shift in perspective over the holidays

James and Madeleine have been married for 55 years. Their shared life together has included three children, six grandchildren, and a beloved cottage that has been in the family for over five decades. ALS has forced the family to make some adjustments. For example, since James was diagnosed with ALS in 2013, he has lost […]

A Giving Tuesday story of mental resilience and creative expression

When someone receives an ALS diagnosis, the first thought is often about the impending loss of function; for example, the progressive inability to walk, talk, eat and swallow. But the reality of this unforgiving disease can also result in emotional challenges, too. This is something Barry Law knows all too well. When Barry was diagnosed […]

Holiday gift ideas for someone living with ALS

What do you give someone living with ALS to show you care? There’s no ‘one-size-fits-all’ gift that works for everyone, but there are special ways to say “I am thinking of you.” The holiday season can be a perfect time to do just that. We recognize that it’s not always easy to know how to […]