Walking to increase funding for ALS research

The Walk to End ALS events that take place across the province, throughout the year, mean different things to different people, but there is a common thread of support, community and knowing you’re not alone on this journey. James Young, a 42-year-old father of two young boys, considers himself one of the lucky ones. Diagnosed […]

Creating with her hands until she no longer can

When Shelly Gregory first noticed her speech was slurred two years ago, she drove herself to the hospital in Belleville thinking she was having a stroke. Eight months later, in May 2018, she learned she had bulbar onset amyotrophic lateral sclerosis – a form of ALS that first affects people from the neck up. Since […]

Walking to end ALS when ALS runs in the family

It wasn’t until her own diagnosis that Jackie learned ALS can be passed on through generations. Jackie Pasch, 55, was diagnosed with familial ALS almost a year ago. Shortly after, she lost the use of her left arm and developed difficulty breathing necessitating the use of a BiPAP machine at night to help her breathe […]

Finding ways to make a meaningful difference while living with ALS

Until he was diagnosed with ALS in 2016, Alan Medcalf spent his adult life “in love with movement.” He was a snowboarder, cross-country skier, unicyclist, cyclist and competed as a runner, swimmer and triathlete. After a second hip replacement he cycled coast to coast across Canada in 2000 and logged over 100,000 km in the […]

From ice bucket to bucket list: how Margot is coping with ALS

Margot Algie heard about the ALS Ice Bucket Challenge in 2014 through friends and had no idea that only one year later, she would be diagnosed with the disease. Since then, she has come to understand firsthand the importance of maintaining the momentum of the viral social media phenomenon that resulted in a $21.5M investment […]

No time to lose: ALS Canada volunteer and fundraiser sees urgent need for change

Beth Robertson’s husband, Tim, lived courageously with ALS for 12 years. He was sustained by the loving presence of his wife, Beth, his three children, and a large network of family and friends. Beth says she would do it all over again for Tim, but she admits ALS is a terrible burden for everyone it […]

From the Boston Marathon to the Walk to End ALS

On June 15, Don Doan participated in the Walk to End ALS in Brampton for the fourth time. It’s been three years since he was able to walk the course, but his positive outlook hasn’t changed. There are always people around, including his wife, Pam, to help with his wheelchair. “Generally, it’s a fight over […]

Walking in memory fuels hope and strengthens community

Lise Michaud’s brother, Eddy Lefrançois, made every day count. He lived nearly three decades with ALS, proudly defying the odds and outliving his “expiry date” (EXP: 04.97) which he tattooed on the inside of his forearm as a reminder to live with passion and purpose. Eddy’s personal motto – “Let’s Roll” – always kept him […]

Communicating an ALS diagnosis

There is no easy way to tell family and friends you have been diagnosed with ALS. And there is no right or wrong way, either. Individual personalities, family circumstances, and the degree to which the symptoms are visible can all play a role in when, how, and with whom to share the news. Lianne Johnston […]

Holiday gift ideas for someone living with ALS

What do you give someone living with ALS to show you care? There’s no ‘one-size-fits-all’ gift that works for everyone, but there are special ways to say “I am thinking of you.” The holiday season can be a perfect time to do just that. We recognize that it’s not always easy to know how to […]

John: Getting by with a little help from his friends

John has always had a positive outlook on life. For many of those living with ALS, the diagnosis can often bring a shift in perspective in what is meaningful and important. For John, it simply reaffirmed the way he has always chosen to live. John is a 63 year-old retired animal and agriculture research worker […]

Paying it forward to benefit people with ALS in the future

Deirdre O’Connor and her husband, Floyd, became ALS Canada donors 15 years ago. At the time, they had no personal connection to the cause, but they liked the fact that ALS Canada was a small, cost-effective charitable organization without a lot of overhead. Deirdre’s generosity extends to half a dozen or more organizations she supports […]

Honouring Mom this Mother’s Day, and always

For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be the first Mother’s Day she spends without her mother, Margaret. After participating in the 2016 […]

Living, Loving, Laughing… and Volunteering

National Volunteer Week: Carol Skinner When I received my ALS diagnosis in 2013, I was given two to three years to live. I was 41 years old. I had settled into a rewarding career – art therapy – and I was happily married to the man I love. Learning I had ALS and that “there […]

“When you are loved, you have everything:” ALS Canada ambassador Eddy Lefrançois reflects on 25 years living with ALS

Like many young people, 22-year-old Eddy Lefrançois had carefully mapped out his future and had a vision of how his life would be. Then, on April 14, 1992, his doctor delivered the news that Eddy had ALS. That day and that news changed his life forever – but not in the way you might expect. […]

National Family Caregiver Day: A conversation with ALS Caregiver Jonathan Corber

Jonathan Corber is an ALS Canada Ambassador. After his mother, Wendy, was diagnosed with ALS in February 2016, Jonathan became one of her primary caregivers and stayed in this role through to the end of her journey. Jonathan took some time to connect with us recently to share his experience as his mother’s caregiver for […]

Trevor and Jennifer: Finding love while living with ALS

This Valentine’s Day, we would like to highlight Trevor and Jennifer’s story about finding love while living with ALS. – Trevor was my first love in high school. Although short term, the strong connection we had was never forgotten. We lost track of each other but reconnected again after 28 years on Facebook in 2015. […]

Living with ALS during the Holidays: the Peacock Family

When a friend or loved one is living with ALS, the holiday season can be a difficult time. This is certainly true for the Peacock family ever since husband and father Jeff was diagnosed with ALS three years ago. This year, Jeff won’t be able to decorate the tree, hand out gifts or enjoy dinner […]